Academic Journal
'I'm Dealing with a Health Care System That Doesn't Get It': Barriers and Facilitators to Inclusive Healthcare for Autistic Adults
| العنوان: | 'I'm Dealing with a Health Care System That Doesn't Get It': Barriers and Facilitators to Inclusive Healthcare for Autistic Adults |
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| اللغة: | English |
| المؤلفون: | Kiley J. McLean (ORCID |
| المصدر: | Autism: The International Journal of Research and Practice. 2024 28(6):1382-1393. |
| الاتاحة: | SAGE Publications. 2455 Teller Road, Thousand Oaks, CA 91320. Tel: 800-818-7243; Tel: 805-499-9774; Fax: 800-583-2665; e-mail: journals@sagepub.com; Web site: https://sagepub.com |
| Peer Reviewed: | Y |
| Page Count: | 12 |
| تاريخ النشر: | 2024 |
| Sponsoring Agency: | Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) (DHHS/NIH) National Center for Advancing Translational Sciences (NCATS) (DHHS/NIH) National Institute of Mental Health (NIMH) (DHHS/NIH) US Department of Health and Human Services |
| Contract Number: | P50HD105353 U54HD090256 UL1TR002373 KL2TR002374 KL2TR000428 R01MH132218 UT6MC45902 UT2MC39440 |
| نوع الوثيقة: | Journal Articles Reports - Research |
| Descriptors: | Access to Health Care, Adults, Autism Spectrum Disorders, Barriers, Affordances, Individual Characteristics |
| DOI: | 10.1177/13623613241236380 |
| تدمد: | 1362-3613 1461-7005 |
| مستخلص: | Emerging research points to high rates of major psychiatric disorders and chronic medical conditions among autistic adults. However, the unique healthcare needs of autistic adults are often overlooked, perhaps due to limitations in population-level surveillance and widespread public misconceptions about autism in adulthood. Understanding the mechanisms underlying this prevalence of poor health outcomes in autistic adults requires an exploration into the lived experiences of autistic adults across their lifespans. This study uses a qualitative approach to investigate the healthcare experiences of autistic adults. We conducted semi-structured interviews with 23 autistic adults in the United States, ranging in age from 18 to 56 years, seven of whom identified as nonbinary or gender non-conforming. We asked autistic adults about how they manage their health and interact with healthcare systems. Through thematic analysis of the data, barriers to receipt of quality care for autistic adults were identified. Results were then conceptualized through the Systems Engineering Initiative for Patient Safety model of work system and patient safety. Through this model, this study describes the interactions between autistic adults and their healthcare systems, pointing to specific areas for improvement and intervention. Overall, findings advocate for a system-level approach to improving health outcomes of autistic adults. |
| Abstractor: | As Provided |
| Entry Date: | 2024 |
| رقم الانضمام: | EJ1426569 |
| قاعدة البيانات: | ERIC |
| تدمد: | 1362-3613 1461-7005 |
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| DOI: | 10.1177/13623613241236380 |