Electronic Resource
Perspectives on life participation by young adults with chronic kidney disease: An interview study.
| العنوان: | Perspectives on life participation by young adults with chronic kidney disease: An interview study. |
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| المؤلفون: | Sinha A., Wong G., Tong A., Groothoff J., Kerklaan J., Hannan E., Hanson C., Craig J., Guha C., Cho Y., Christian M., Hamiwka L., Ryan J. |
| بيانات النشر: | BMJ Publishing Group United Kingdom 2020-12-04 |
| نوع الوثيقة: | Electronic Resource |
| مستخلص: | Objective To describe the perspectives on life participation by young adults with childhood-onset chronic kidney disease (CKD). Design Semi-structured interviews; thematic analysis. Setting Multiple centres across six countries (Australia, Canada, India, UK, USA and New Zealand). Participants Thirty young adults aged 18 to 35 years diagnosed with CKD during childhood. Results We identified six themes: struggling with daily restrictions (debilitating symptoms and side effects, giving up valued activities, impossible to attend school and work, trapped in a medicalised life, overprotected by adults and cautious to avoid health risks); lagging and falling behind (delayed independence, failing to keep up with peers and socially inept); defeated and hopeless (incapacitated by worry, an uncertain and bleak future, unworthy of relationships and low self-esteem and shame); reorienting plans and goals (focussing on the day-to-day, planning parenthood and forward and flexible planning); immersing oneself in normal activities (refusing to miss out, finding enjoyment, determined to do what peers do and being present at social events); and striving to reach potential and seizing opportunities (encouragement from others, motivated by the illness, establishing new career goals and grateful for opportunities). Conclusions Young adults encounter lifestyle limitations and missed school and social opportunities as a consequence of developing CKD during childhood and as a consequence lack confidence and social skills, are uncertain of the future, and feel vulnerable. Some re-adjust their goals and become more determined to participate in 'normal' activities to avoid missing out. Strategies are needed to improve life participation in young adult 'graduates' of childhood CKD and thereby strengthen their mental and social well-being and enhance their overall health.Copyright © |
| مصطلحات الفهرس: | controlled study, adult, article, caregiver, chronic kidney failure/di [Diagnosis], chronic kidney failure/su [Surgery], chronic kidney failure/th [Therapy], clinical article, cognitive defect, falling, female, health hazard, hemodialysis, human, kidney graft, male, osteoporosis, patient participation, peritoneal dialysis, self esteem, semi structured interview, social competence, thematic analysis, young adult, Article |
| URL: | BMJ Open Click here for full text options LibKey Link |
| الاتاحة: | Open access content. Open access content Copyright 2020 Elsevier B.V., All rights reserved. |
| Other Numbers: | AUSHL oai:repository.monashhealth.org:1/28918 BMJ Open. 10 (10) (no pagination), 2020. Article Number: e037840. Date of Publication: 16 Oct 2020. 2044-6055 (electronic) https://repository.monashhealth.org/monashhealthjspui/handle/1/28918 33067282 [http://www.ncbi.nlm.nih.gov/pubmed/?term=33067282] 633122468 (Kerklaan, Hannan, Hanson, Guha, Wong, Tong) Sydney School of Public Health, University of Sydney, Sydney, NSW, Australia (Kerklaan, Hannan, Hanson, Guha, Wong, Tong) Centre for Kidney Research, Children's Hospital at Westmead, Westmead, NSW, Australia (Kerklaan, Groothoff) Department of Pediatric Nephrology, Emma Children's Hospital, Academic Medical Center, Amsterdam, Netherlands (Cho) Department of Neprohology, Princess Alexandra Hospital, Brisbane, QLD, Australia (Cho) Australasian Kidney Trials Network, University of Queensland, Brisbane, QLD, Australia (Christian) Department of Paediatric Nephrology, Nottingham Children's Hospital, Nottingham, United Kingdom (Hamiwka) Division of Pediatric Nephrology, Alberta Children's Hospital, University of Calgary, Calgary, AB, Canada (Ryan) Department of Nephrology, Monash Medical Centre, Melbourne, VIC, Australia (Sinha) Division of Nephrology, Department of Pediatrics, All India Institute of Medical Sciences, New Delhi, India (Craig) College of Medicine and Public Health, Flinders University, Adelaide, SA, Australia Kerklaan J.; j.kerklaan@amsterdamumc.nl 1305132810 |
| المصدر المساهم: | MONASH HEALTH LIBRS From OAIster®, provided by the OCLC Cooperative. |
| رقم الانضمام: | edsoai.on1305132810 |
| قاعدة البيانات: | OAIster |
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