Conference
Drawing as a Facilitator of Critical Data Discourse: Reflecting on Problems with Digital Health Data Through Expressive Visualizations of the Unseen Body Landscape
| العنوان: | Drawing as a Facilitator of Critical Data Discourse: Reflecting on Problems with Digital Health Data Through Expressive Visualizations of the Unseen Body Landscape |
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| المؤلفون: | Kuksenok, Kit, De Maeyer, Christel, Lee, Minha |
| المساهمون: | Herlo, Bianca, Irrgang, Daniel, Weizenbaum Institute for the Networked Society - The German Internet Institute |
| المصدر: | Proceedings of the Weizenbaum Conference 2022: Practicing Sovereignty - Interventions for Open Digital Futures, 131-141, Weizenbaum Conference "Practicing Sovereignty: Interventions for Open Digital Futures", 4 |
| بيانات النشر: | DEU, Berlin, 2023. |
| سنة النشر: | 2023 |
| مصطلحات موضوعية: | Technik, Technologie, Technology (Applied sciences), digital health, data visualization, data ethics, self-tracking, Technikfolgenabschätzung, Technology Assessment, Gesundheitswesen, Visualisierung, Datenerfassung, Datenschutz, health care delivery system, visualization, data acquisition, data protection, 20800 |
| الوصف: | In a 1.5-hour workshop, we used drawing and self-reflection prompts to facilitate a value-driven discussion of personal and institutional data practices. Activities included mark-making in time with one's heartbeat, creating an inventory of one's personal data, and creating a qualitative personal health visualization. This article details the workshop structure and exercises and includes a summary of the discussion, which constructively encompassed both the empowering and the uncomfortable aspects of digital health data collection in a constructive manner. The workshop's design used the format of hands-on, expressive drawing activities to enable participants to achieve depth and breadth in a relatively short discussion about personal health, data autonomy, institutional trust, and consent. Critical discourse about data, especially health data, is a valuable experience for every person whose health data has been or is being collected; and approaches that take personal data as a starting point can support the practice of digital/data sovereignty more broadly. |
| نوع الوثيقة: | Konferenzbeitrag conference paper |
| تدمد: | 2510-7666 |
| Relation: | 86018 |
| DOI: | 10.34669/wi.cp/4.13 |
| URL الوصول: | https://www.ssoar.info/ssoar/handle/document/86109 |
| Rights: | Creative Commons - Namensnennung 4.0 Creative Commons - Attribution 4.0 |
| رقم الانضمام: | edsgso.86109 |
| قاعدة البيانات: | SSOAR – Social Science Open Access Repository |
| تدمد: | 25107666 |
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| DOI: | 10.34669/wi.cp/4.13 |