Academic Journal
COVID-19 Lockdown aggravated the Health-Related Quality of Life in Children with Transfusion-Dependent-Thalassemia
| العنوان: | COVID-19 Lockdown aggravated the Health-Related Quality of Life in Children with Transfusion-Dependent-Thalassemia |
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| المؤلفون: | Ilham Youssry, Hend Fawzy, Noha Asem, Dalia Abd Elaziz |
| المصدر: | Pediatric Sciences Journal, Vol 4, Iss 1, Pp 1-9 (2024) |
| بيانات النشر: | Cairo University, Faculty of Medicine, Department of Pediatrics, 2024. |
| سنة النشر: | 2024 |
| المجموعة: | LCC:Pediatrics |
| مصطلحات موضوعية: | health-related quality of life, transfusion-dependent thalassemia, hrqol, covid- 19, pediatric quality of life inventory, pandemic, lockdown, Pediatrics, RJ1-570 |
| الوصف: | Background: Thalassemia is the most prevalent cause of chronic hemolytic anemia and associated with high rates of morbidity and mortality. Its management is demanding, timely and multidisciplinary creating a strain on the patients, their families, and society. Aim of the work: To study the effect of the corona virus disease of 2019 (COVID-19) pandemic lockdown on the health-related quality of life (HRQoL) of the children with transfusion- dependent thalassemia. Subjects and Methods: The HRQoL (child self-report) and (parent proxy-report for those children) questionnaires of the Pediatric Quality of Life Inventory (PedsQL) Measurement Model were used to study the same group of 131 children with transfusion-dependent-thalassemia before and during the-COVID-19 era lockdown and compared them to 200 matched children with their parents as a control group. Results: 67 (51.1%) males and 64 (48.9%) females, transfusion-dependent thalassemia patients were included in our study. The mean age was 8.28 ± SD3.81 (range 5-18) and 8.94 ±SD 3.78 years at initial assessment and during the lockdown respectively (p=0.0001). in the pre-COVID- 19 the score of patients in all the aspects of PedsQL questionnaire was 60.4±22.8 while that of the control group was 97.3±3 (p |
| نوع الوثيقة: | article |
| وصف الملف: | electronic resource |
| اللغة: | English |
| تدمد: | 2805-279X 2682-3985 |
| Relation: | https://cupsj.journals.ekb.eg/article_329414_b61906cb9358159221ce70f44999a664.pdf; https://doaj.org/toc/2805-279X; https://doaj.org/toc/2682-3985 |
| DOI: | 10.21608/cupsj.2023.239453.1107 |
| URL الوصول: | https://doaj.org/article/df156437fb6f430398a64814124aa6cc |
| رقم الانضمام: | edsdoj.f156437fb6f430398a64814124aa6cc |
| قاعدة البيانات: | Directory of Open Access Journals |
| تدمد: | 2805279X 26823985 |
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| DOI: | 10.21608/cupsj.2023.239453.1107 |