Academic Journal

Health related quality of life in patients with idiopathic pulmonary fibrosis in clinical practice: insights-IPF registry

التفاصيل البيبلوغرافية
العنوان: Health related quality of life in patients with idiopathic pulmonary fibrosis in clinical practice: insights-IPF registry
المؤلفون: Michael Kreuter, Jeff Swigris, David Pittrow, Silke Geier, Jens Klotsche, Antje Prasse, Hubert Wirtz, Dirk Koschel, Stefan Andreas, Martin Claussen, Christian Grohé, Henrike Wilkens, Lars Hagmeyer, Dirk Skowasch, Joachim F Meyer, Joachim Kirschner, Sven Gläser, Felix J. F. Herth, Tobias Welte, Claus Neurohr, Martin Schwaiblmair, Matthias Held, Thomas Bahmer, Marion Frankenberger, Jürgen Behr
المصدر: Respiratory Research, Vol 18, Iss 1, Pp 1-10 (2017)
بيانات النشر: BMC, 2017.
سنة النشر: 2017
المجموعة: LCC:Diseases of the respiratory system
مصطلحات موضوعية: Patient related outcomes, Psychometrics, Idiopathic pulmonary fibrosis, Cohort study, Diseases of the respiratory system, RC705-779
الوصف: Abstract Background The INSIGHTS-IPF registry provides one of the largest data sets of clinical data and self-reported patient related outcomes including health related quality of life (QoL) on patients with idiopathic pulmonary fibrosis (IPF). We aimed to describe associations of various QoL instruments between each other and with patient characteristics at baseline. Methods Six hundred twenty-three IPF patients with available QoL data (St George’s Respiratory Questionnaire SGRQ, UCSD Shortness-of-Breath Questionnaire SoB, EuroQol visual analogue scale and index EQ-5D, Well-being Index WHO-5) were analysed. Mean age was 69.6 ± 8.7 years, 77% were males, mean disease duration 2.0 ± 3.3 years, FVC pred was 67.5 ± 17.8%, DLCO pred 35.6 ± 17%. Results Mean points were SGRQ total 48.3, UCSD SoB 47.8, EQ-5D VAS 66.8, and WHO-5 13.9. These instruments had a high or very high correlation (exception WHO-5 to EQ-5D VAS with moderate correlation). On bivariate analysis, QoL by SGRQ total was statistically significantly associated with clinical symptoms (NYHA; p
نوع الوثيقة: article
وصف الملف: electronic resource
اللغة: English
تدمد: 1465-993X
Relation: http://link.springer.com/article/10.1186/s12931-017-0621-y; https://doaj.org/toc/1465-993X
DOI: 10.1186/s12931-017-0621-y
URL الوصول: https://doaj.org/article/bf287af930e44ffe885da34ac821137a
رقم الانضمام: edsdoj.bf287af930e44ffe885da34ac821137a
قاعدة البيانات: Directory of Open Access Journals
الوصف
تدمد:1465993X
DOI:10.1186/s12931-017-0621-y