التفاصيل البيبلوغرافية
| العنوان: |
The use of personal health information outside the circle of care: consent preferences of patients from an academic health care institution |
| المؤلفون: |
Sarah Tosoni, Indu Voruganti, Katherine Lajkosz, Flavio Habal, Patricia Murphy, Rebecca K. S. Wong, Donald Willison, Carl Virtanen, Ann Heesters, Fei-Fei Liu |
| المصدر: |
BMC Medical Ethics, Vol 22, Iss 1, Pp 1-14 (2021) |
| بيانات النشر: |
BMC, 2021. |
| سنة النشر: |
2021 |
| المجموعة: |
LCC:Medical philosophy. Medical ethics |
| مصطلحات موضوعية: |
Patient consent preferences, Data sharing, Consent policies, Medical philosophy. Medical ethics, R723-726 |
| الوصف: |
Abstract Background Immense volumes of personal health information (PHI) are required to realize the anticipated benefits of artificial intelligence in clinical medicine. To maintain public trust in medical research, consent policies must evolve to reflect contemporary patient preferences. Methods Patients were invited to complete a 27-item survey focusing on: (a) broad versus specific consent; (b) opt-in versus opt-out approaches; (c) comfort level sharing with different recipients; (d) attitudes towards commercialization; and (e) options to track PHI use and study results. Results 222 participants were included in the analysis; 83% were comfortable sharing PHI with researchers at their own hospital, although younger patients (≤ 49 years) were more uncomfortable than older patients (50 + years; 13% versus 2% uncomfortable, p |
| نوع الوثيقة: |
article |
| وصف الملف: |
electronic resource |
| اللغة: |
English |
| تدمد: |
1472-6939 |
| Relation: |
https://doaj.org/toc/1472-6939 |
| DOI: |
10.1186/s12910-021-00598-3 |
| URL الوصول: |
https://doaj.org/article/7daed1bb3e1545eaa249bbc4a7ece083 |
| رقم الانضمام: |
edsdoj.7daed1bb3e1545eaa249bbc4a7ece083 |
| قاعدة البيانات: |
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