Academic Journal
Family caregiver experiences and needs across health conditions, relationships, and the lifespan: a Qualitative analysis
| العنوان: | Family caregiver experiences and needs across health conditions, relationships, and the lifespan: a Qualitative analysis |
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| المؤلفون: | Sarah A. Neller, Megan Thomas Hebdon, Emily Wickens, Debra L. Scammon, Rebecca L. Utz, Kara B. Dassel, Alexandra L. Terrill, Lee Ellington, Anne V. Kirby |
| المصدر: | International Journal of Qualitative Studies on Health & Well-Being, Vol 19, Iss 1 (2024) |
| بيانات النشر: | Taylor & Francis Group, 2024. |
| سنة النشر: | 2024 |
| المجموعة: | LCC:Medicine (General) |
| مصطلحات موضوعية: | informal caregiving, qualitative, focus group, family, disability, Medicine (General), R5-920 |
| الوصف: | Purpose The purpose of this study was to understand the lived experiences of family caregivers who provide care to individuals across a broad range of ages, caregiving relationships, and health conditions and/or disabilities. Family caregiver research is typically siloed by health condition or by caregiving relationship, leaving gaps in understanding similarities and differences among caregivers. Methods We hosted three virtual focus groups with diverse family caregivers (n = 26) caring for an individual with a long-term disability and/or health condition(s). We conducted a qualitative thematic analysis using an iterative, inductive process. Results Participants primarily expressed shared experiences, despite having unique caregiving situations. We identified themes among a) caregiver experiences: Trying to Do It All, Balancing Complex Emotions, Managing Expectations, and Adjusting to Changes Over Time and b) caregiver needs: Longing for Breaks and Self-Care; Lacking Help, Support and Resources; and Desiring Understanding and Recognition. Conclusions These findings emphasize that many elements of the caregiving experience transcend care recipient age, condition, and relationship and are applicable to clinicians, researchers, and policy makers. The evidence of shared caregiver experiences can guide efficiencies in policy and practice (e.g., pooling of existing resources, expansion of interventions) to meet the needs of a broader population of caregivers. |
| نوع الوثيقة: | article |
| وصف الملف: | electronic resource |
| اللغة: | English |
| تدمد: | 1748-2623 1748-2631 17482631 |
| Relation: | https://doaj.org/toc/1748-2623; https://doaj.org/toc/1748-2631 |
| DOI: | 10.1080/17482631.2023.2296694 |
| URL الوصول: | https://doaj.org/article/6712aa2fbefe43b286930f88ec36c53a |
| رقم الانضمام: | edsdoj.6712aa2fbefe43b286930f88ec36c53a |
| قاعدة البيانات: | Directory of Open Access Journals |
Full Text Finder | تدمد: | 17482623 17482631 |
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| DOI: | 10.1080/17482631.2023.2296694 |