Academic Journal
Clarifying the mechanisms and resources that enable the reciprocal involvement of seldom heard groups in health and social care research: A collaborative rapid realist review process
العنوان: | Clarifying the mechanisms and resources that enable the reciprocal involvement of seldom heard groups in health and social care research: A collaborative rapid realist review process |
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المؤلفون: | Éidín Ní Shé, Sarah Morton, Veronica Lambert, Cliona Ní Cheallaigh, Vanessa Lacey, Eleanor Dunn, Cliona Loughnane, Joan O'Connor, Amanda McCann, Maura Adshead, Thilo Kroll |
المصدر: | Health Expectations, Vol 22, Iss 3, Pp 298-306 (2019) |
بيانات النشر: | Wiley, 2019. |
سنة النشر: | 2019 |
المجموعة: | LCC:Medicine (General) LCC:Public aspects of medicine |
مصطلحات موضوعية: | behaviour change wheel, co‐design, health and social care research, public and patient involvement, rapid realist review, seldom heard, Medicine (General), R5-920, Public aspects of medicine, RA1-1270 |
الوصف: | Abstract Objective Public and patient involvement is increasingly embedded as a core activity in research funding calls and best practice guidelines. However, there is recognition of the challenges that prevail to achieve genuine and equitable forms of engagement. Our objective was to identify the mechanisms and resources that enable the reciprocal involvement of seldom heard groups in health and social care research. Methods A rapid realist review of the literature that included: (a) a systematic search of CINAHL, PsycINFO, PubMed and Open Grey (2007‐2017); (b) documents provided by expert panel members of relevant journals and grey literature. Six reference panels were undertaken with homeless, women's, transgender, disability and Traveller and Roma organizations to capture local insights. Data were extracted into a theory‐based grid linking context to behaviour change policy categories. Main results From the review, 20 documents were identified and combined with the reference panel summaries. The expert panel reached consensus about 33 programme theories. These relate to environmental and social planning (7); service provision (6); guidelines (4); fiscal measures (6); communication and marketing (4); and regulation and legislation (6). Conclusions While there is growing evidence of the merits of undertaking PPI, this rarely extends to the meaningful involvement of seldom heard groups. The 33 programme theories agreed by the expert panel point to a variety of mechanisms and resources that need to be considered. Many of the programme theories identified point to the need for a radical shift in current practice to enable the reciprocal involvement of seldom heard groups. |
نوع الوثيقة: | article |
وصف الملف: | electronic resource |
اللغة: | English |
تدمد: | 1369-7625 1369-6513 08435251 |
Relation: | https://doaj.org/toc/1369-6513; https://doaj.org/toc/1369-7625 |
DOI: | 10.1111/hex.12865 |
URL الوصول: | https://doaj.org/article/084352518a9643bfaeaa4234c436d6c4 |
رقم الانضمام: | edsdoj.084352518a9643bfaeaa4234c436d6c4 |
قاعدة البيانات: | Directory of Open Access Journals |
تدمد: | 13697625 13696513 08435251 |
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DOI: | 10.1111/hex.12865 |