Academic Journal
Factors Affecting the Healthcare of Adults with Communication Difficulties due to Autism Spectrum Disorder and/or Intellectual and Developmental Disability
| العنوان: | Factors Affecting the Healthcare of Adults with Communication Difficulties due to Autism Spectrum Disorder and/or Intellectual and Developmental Disability |
|---|---|
| المؤلفون: | Shady, Kathryn L |
| المصدر: | MUSC Theses and Dissertations |
| بيانات النشر: | MEDICA |
| سنة النشر: | 2023 |
| مصطلحات موضوعية: | barriers and facilitators to healthcare, adapted FRAME framework, communication disorder or difficulties, ASD or autism spectrum disorder, IDD or intellectual and developmental disability, inpatient healthcare for adults with disabilities, Communication Sciences and Disorders, Disability Studies, Health Communication, Interprofessional Education, Other Nursing |
| الوصف: | Purpose: This dissertation explores the healthcare barriers and facilitators experienced by autistic adults and adults with intellectual and developmental disabilities (IDD) who have communication difficulties (CD). Problem: Approximately 5-10% of Americans have CD, including difficulties such as stuttering, aphasia, apraxia, and other forms of language impairment(1,2). Communication difficulties are present in about 25-30% of autistic individuals and 57.9% of those with IDD, which accounts for a large and poorly studied portion of those with CD(3,4). Individuals with CD report negative healthcare experiences and decreased levels of satisfaction with healthcare providers secondary to practices such as communication solely with a patient’s supporter that disregards the patient, and/or failing to accommodate a patient’s need for alternative and augmentative communication (AAC)(5–9). This decreased satisfaction and more frequent experience of negative healthcare interactions leads to poorer perceptions of healthcare(?), less frequent use and access to primary care services, and increased use of emergency departments for non-emergent situations(5,7,8,10–13). Healthcare providers, particularly those caring for adults, similarly note an inability to accommodate AAC needs of patients with CD, as well as a lack of knowledge about these disorders(5,13,14). Objective: The overall objective of this dissertation was to investigate and develop a better understanding of the factors influencing healthcare access and effective communication in the inpatient healthcare setting for adults with IDDs/CDs. The specific aims were: Aim 1: To analyze and synthesize current knowledge about the barriers to and facilitators of access to care in adults with IDDs/CDs through the lens of Levesque et al.’s conceptual framework of access to healthcare(15). Aim 2: To examine and appraise the research literature on interventions designed to improve health communication for patients with IDDs/CDs through the lens of the FR2A4ME2 framework(13). ... |
| نوع الوثيقة: | text |
| وصف الملف: | application/pdf |
| اللغة: | unknown |
| Relation: | https://medica-musc.researchcommons.org/theses/817; https://medica-musc.researchcommons.org/context/theses/article/1821/viewcontent/auto_convert.pdf |
| الاتاحة: | https://medica-musc.researchcommons.org/theses/817 https://medica-musc.researchcommons.org/context/theses/article/1821/viewcontent/auto_convert.pdf |
| Rights: | Copyright is held by the author. All rights reserved. |
| رقم الانضمام: | edsbas.F4C90F15 |
| قاعدة البيانات: | BASE |
| الوصف غير متاح. |