Academic Journal
Exploring the health‐related decision‐making experiences of people with chronic kidney disease and their caregivers: A qualitative study
| العنوان: | Exploring the health‐related decision‐making experiences of people with chronic kidney disease and their caregivers: A qualitative study |
|---|---|
| المؤلفون: | Shena Gazaway, Orlando Gutierrez, Rachel Wells, Tamara Nix‐Parker, Claretha Lyas, Shawona Daniel, Katina Lang‐Lindsey, Tara Bryant, Richard Knight, James N. Odom |
| المصدر: | Health Expectations, Vol 27, Iss 1, Pp n/a-n/a (2024) |
| بيانات النشر: | Wiley |
| سنة النشر: | 2024 |
| المجموعة: | Directory of Open Access Journals: DOAJ Articles |
| مصطلحات موضوعية: | community‐involved methods, decision‐making, qualitative methods, Medicine (General), R5-920, Public aspects of medicine, RA1-1270 |
| الوصف: | Background This study aimed to explore the decision‐making experience of patients with chronic kidney disease (CKD) and their caregivers. Methods This was a qualitative descriptive study of the decision‐making experiences of individuals with stage 3—end‐stage CKD and their family caregivers. One‐on‐one, semistructured interviews were conducted using a guide developed and approved by a community advisory group. Data were analyzed using thematic analysis. Results Three themes were identified: (1) decisions triggered by declining health and broad in scope, (2) challenges to decision‐making and (3) factors influencing decision‐making. Participants' experiences with health‐related decision‐making demonstrated that decisions were triggered when health declined. Yet, decisions that impact disease progression were being made in stage 3. Decision‐making was made difficult due to lack of information, complex co‐morbidities, and poor resource utilization. However, the structure and nature of the medical appointment, supportive caregivers, and resources served to remove challenges. Conclusion Decision‐support interventions must train patients and caregivers to be empowered participants in answer‐seeking behaviours upstream of advanced illness. Public Contributions This work was conducted in full collaboration with a community advisory board consisting of patients with CKD, caregivers and clinicians. These members are noted in the acknowledgement section, and those who worked with the team to develop the interview guide, study protocols, and manuscript preparation are included as authors. As part of their role, advisory members met monthly, providing input on recruitment, study progress, inclusion of diverse voices and added relevance to study findings. |
| نوع الوثيقة: | article in journal/newspaper |
| اللغة: | English |
| تدمد: | 1369-7625 1369-6513 |
| Relation: | https://doi.org/10.1111/hex.13907; https://doaj.org/toc/1369-6513; https://doaj.org/toc/1369-7625; https://doaj.org/article/13f306026450460daf0699a947634a2e |
| DOI: | 10.1111/hex.13907 |
| الاتاحة: | https://doi.org/10.1111/hex.13907 https://doaj.org/article/13f306026450460daf0699a947634a2e |
| رقم الانضمام: | edsbas.D0447564 |
| قاعدة البيانات: | BASE |
Full Text Finder | تدمد: | 13697625 13696513 |
|---|---|
| DOI: | 10.1111/hex.13907 |