التفاصيل البيبلوغرافية
| العنوان: |
Systematic review and content analysis of Australian health care substitute decision making online resources |
| المؤلفون: |
Tran, Julien, Sellars, Marcus, Nolte, Linda, White, Ben, Sinclair, Craig, Fetherstonhaugh, Deirdre, Detering, Karen |
| المصدر: |
Australian Health Review |
| بيانات النشر: |
CSIRO Publishing |
| سنة النشر: |
2021 |
| المجموعة: |
Queensland University of Technology: QUT ePrints |
| الوصف: |
Objective: Substitute decision makers (SDMs) can be required to make difficult health care decisions on behalf of individuals lacking decision-making capacity. Online resources may be helpful in preparing and supporting SDMs. This study systematically explored the frequency, content and usability of Australian online resources containing health care substitute decision-making content written for consumers. Methods: In April 2019, Google searches were conducted to identify online resources containing health care substitute decision-making content for consumers. Analysis comprised mapping resource characteristics, including target audience (individual-specific, SDM-specific, mixed) and thematic analysis of content. Usability was assessed using the Patient Education Materials Assessment Tool (PEMAT). Results: Of the 61 resources identified, the most frequent were webpages (57%), individual-specific (43%) and those produced by government organisations (31%). Only 15 resources (24%) were written for SDMs. Content themes identified were: defining the scope of the SDM role (93%); recommended traits or characteristics of SDMs (80%); instructions or principles regarding standards for decision making (75%); duties of SDMs (70%); and supports (46%), rights (16%), barriers (8%) and benefits (5%) for SDMs. The median (interquartile range) PEMAT scores (out of 100) were 66 (27) for understandability and 60 (55) for actionability. Conclusions: SDMs have a vital role in making decisions for people lacking decision-making capacity. Online resources are a potential source of information and support for SDMs in Australia. This study identified key gaps in availability, content and usability of existing SDM resources, highlighting the need for the further development of such resources. We suggest that future resource development include SDMs in the design and evaluation processes. What is known about the topic?: An aging population and a greater need for decisions to be made on behalf of others who lack capacity means that health ... |
| نوع الوثيقة: |
article in journal/newspaper |
| وصف الملف: |
application/pdf |
| اللغة: |
unknown |
| Relation: |
https://eprints.qut.edu.au/210091/1/83017562.pdf; Tran, Julien, Sellars, Marcus, Nolte, Linda, White, Ben, Sinclair, Craig, Fetherstonhaugh, Deirdre, & Detering, Karen (2021) Systematic review and content analysis of Australian health care substitute decision making online resources. Australian Health Review, 45(3), pp. 317-327.; https://eprints.qut.edu.au/210091/; Australian Centre for Health Law Research; Centre for Healthcare Transformation; Faculty of Business & Law; School of Law; Faculty of Health |
| الاتاحة: |
https://eprints.qut.edu.au/210091/ |
| Rights: |
free_to_read ; http://creativecommons.org/licenses/by-nc/4.0/ ; AHHA 2021 ; This work is covered by copyright. Unless the document is being made available under a Creative Commons Licence, you must assume that re-use is limited to personal use and that permission from the copyright owner must be obtained for all other uses. If the document is available under a Creative Commons License (or other specified license) then refer to the Licence for details of permitted re-use. It is a condition of access that users recognise and abide by the legal requirements associated with these rights. If you believe that this work infringes copyright please provide details by email to qut.copyright@qut.edu.au |
| رقم الانضمام: |
edsbas.C3FFC1A5 |
| قاعدة البيانات: |
BASE |