التفاصيل البيبلوغرافية
| العنوان: |
Co-creation of a digital tool for the empowerment of parents of children with physical disabilities |
| المؤلفون: |
Alsem, M W, van Meeteren, K M, Verhoef, M, Schmitz, M J W M, Jongmans, M J, Visser-Meily, Johanna M.A., Ketelaar, M |
| المساهمون: |
RF&S Team 1 Medisch, Brain, MS Neonatologie |
| سنة النشر: |
2017 |
| مصطلحات موضوعية: |
Co-creation, Empowerment, Health literacy, Information, Internet, Parents |
| الوصف: |
Background Parents of children with physical disabilities do much to support their child in daily life. In doing so, they are faced with many challenges. These parents have a wide range of unmet needs, especially for information, on various topics. Getting timely and reliable information is very difficult for parents, whereas being informed is a major requirement for the process of empowerment and shared decision-making. This paper describes the development of a digital tool to support parents in this process. During its development, working together with parents was crucial to address relevant topics and design a user-centred intervention. Methods In co-creation with parents, healthcare professionals, IT-professionals and researchers, a digital tool was developed, the ‘WWW-roadmap’ [‘WWW-wijzer’ in Dutch]. This digital tool aims to enable parents to explore their questions (What do I want to know?), help in their search for information (Where can I find the information I need), and refer to appropriate professionals (Who can assist me further?). During the process, we got extensive feedback from a parent panel consisting of parents of children with physical disabilities, enabling us to create the tool ‘with’ rather than ‘for’ them. This led to a user-friendly and problem-driven tool. Discussion The WWW-roadmap can function as a tool to help parents formulate their questions, search for information and thus prepare for consultations with healthcare professionals, and to facilitate parental empowerment and shared-decision making by parent and professional. Effects of using the WWW-roadmap on consultations with professionals will be studied in the future. |
| نوع الوثيقة: |
article in journal/newspaper |
| وصف الملف: |
image/pdf |
| اللغة: |
English |
| تدمد: |
2056-7529 |
| Relation: |
https://dspace.library.uu.nl/handle/1874/360241 |
| الاتاحة: |
https://dspace.library.uu.nl/handle/1874/360241 |
| Rights: |
info:eu-repo/semantics/OpenAccess |
| رقم الانضمام: |
edsbas.BBE38886 |
| قاعدة البيانات: |
BASE |
Full Text Finder