Academic Journal
A bad time to die? Exploring bereaved families/wha-nau experiences of end-of-life care under COVID-19 restrictions: a qualitative interview study
| العنوان: | A bad time to die? Exploring bereaved families/wha-nau experiences of end-of-life care under COVID-19 restrictions: a qualitative interview study |
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| المؤلفون: | Tessa Morgan, Merryn Gott, Lisa Williams, Joe Naden, Yingmin Wang, Brianna Smith, Elizabeth Fanueli, Martyarini Budi Setyawati, Kathryn Morgan, Jackie Robinson, Natalie Anderson, Melissa Carey, Tess Moeke-Maxwell |
| المصدر: | Palliative Care and Social Practice, Vol 17 (2023) |
| بيانات النشر: | SAGE Publishing |
| سنة النشر: | 2023 |
| المجموعة: | Directory of Open Access Journals: DOAJ Articles |
| مصطلحات موضوعية: | Medicine (General), R5-920 |
| الوصف: | Background: There have been international concerns raised that, during the COVID-19 pandemic, there was an absence of good palliative care resulting in poor end-of-life care experiences. To date, there have been few studies considering the pandemic’s impact on people dying from non-COVID-19 causes and their families and friends. In particular, there has been very less empirical research in relation to end-of-life care for Indigenous, migrant and minoritised ethnic communities. Objectives: To explore bereaved next-of-kin’s views and experiences of end-of-life care under COVID-19 pandemic regulations. Design: This qualitative study involved in-depth one-off interviews with 30 ethnically diverse next-of-kin who had a family member die in the first year of the pandemic in Aotearoa, New Zealand. Methods: Interviews were conducted by ethnically matched interviewers/interviewees. A reflexive thematic analysis was used to explore and conceptualise their accounts. Results: A key finding was that dying alone and contracting COVID-19 were seen as equally significant risks by bereaved families. Through this analysis, we identified five key themes: (1) compromised connection; (2) uncertain communication; (3) cultural safety; (4) supported grieving and (5) silver linings. Conclusion: This article emphasises the importance of enabling safe and supported access for family/whanau to be with their family/wha-nau member at end-of-life. We identify a need for wider provision of bereavement support. We recommend that policy makers increase resourcing of palliative care services to ensure that patients and their families receive high-quality end-of-life care, both during and post this pandemic. Policy makers could also promote a culturally-diverse end-of-life care work force and the embedding of culturally-safety practices across a range of institutions where people die. |
| نوع الوثيقة: | article in journal/newspaper |
| اللغة: | English |
| تدمد: | 2632-3524 |
| Relation: | https://doi.org/10.1177/26323524231189525; https://doaj.org/toc/2632-3524; https://doaj.org/article/af5ab4a5b7ef4330be78e35dd6babd18 |
| DOI: | 10.1177/26323524231189525 |
| الاتاحة: | https://doi.org/10.1177/26323524231189525 https://doaj.org/article/af5ab4a5b7ef4330be78e35dd6babd18 |
| رقم الانضمام: | edsbas.A7A96304 |
| قاعدة البيانات: | BASE |
Full Text Finder | تدمد: | 26323524 |
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| DOI: | 10.1177/26323524231189525 |