Academic Journal

Comparing models of delivery for cancer genetics services among patients receiving primary care who meet criteria for genetic evaluation in two healthcare systems: BRIDGE randomized controlled trial

التفاصيل البيبلوغرافية
العنوان: Comparing models of delivery for cancer genetics services among patients receiving primary care who meet criteria for genetic evaluation in two healthcare systems: BRIDGE randomized controlled trial
المؤلفون: Kaphingst, Kimberly A., Kohlmann, Wendy, Chambers, Rachelle Lorenz, Goodman, Melody S., Bradshaw, Richard, Chan, Priscilla A., Chavez-Yenter, Daniel, Colonna, Sarah V., Espinel, Whitney F., Everett, Jessica N., Gammon, Amanda, Goldberg, Eric R., Gonzalez, Javier, Hagerty, Kelsi J., Hess, Rachel, Kehoe, Kelsey, Kessler, Cecilia, Kimball, Kadyn E., Loomis, Shane, Martinez, Tiffany R., Monahan, Rachel, Schiffman, Joshua D., Temares, Dani, Tobik, Katie, Wetter, David W., Mann, Devin M., Kawamoto, Kensaku, Del Fiol, Guilherme, Buys, Saundra S., Ginsburg, Ophira
المساهمون: National Cancer Institute
المصدر: BMC Health Services Research ; volume 21, issue 1 ; ISSN 1472-6963
بيانات النشر: Springer Science and Business Media LLC
سنة النشر: 2021
الوصف: Background Advances in genetics and sequencing technologies are enabling the identification of more individuals with inherited cancer susceptibility who could benefit from tailored screening and prevention recommendations. While cancer family history information is used in primary care settings to identify unaffected patients who could benefit from a cancer genetics evaluation, this information is underutilized. System-level population health management strategies are needed to assist health care systems in identifying patients who may benefit from genetic services. In addition, because of the limited number of trained genetics specialists and increasing patient volume, the development of innovative and sustainable approaches to delivering cancer genetic services is essential. Methods We are conducting a randomized controlled trial, entitled Broadening the Reach, Impact, and Delivery of Genetic Services (BRIDGE), to address these needs. The trial is comparing uptake of genetic counseling, uptake of genetic testing, and patient adherence to management recommendations for automated, patient-directed versus enhanced standard of care cancer genetics services delivery models. An algorithm-based system that utilizes structured cancer family history data available in the electronic health record (EHR) is used to identify unaffected patients who receive primary care at the study sites and meet current guidelines for cancer genetic testing. We are enrolling eligible patients at two healthcare systems (University of Utah Health and New York University Langone Health) through outreach to a randomly selected sample of 2780 eligible patients in the two sites, with 1:1 randomization to the genetic services delivery arms within sites. Study outcomes are assessed through genetics clinic records, EHR, and two follow-up questionnaires at 4 weeks and 12 months after last genetic counseling contactpre-test genetic counseling. Discussion BRIDGE is being conducted in two healthcare systems with different clinical structures ...
نوع الوثيقة: article in journal/newspaper
اللغة: English
DOI: 10.1186/s12913-021-06489-y
DOI: 10.1186/s12913-021-06489-y.pdf
DOI: 10.1186/s12913-021-06489-y/fulltext.html
الاتاحة: http://dx.doi.org/10.1186/s12913-021-06489-y
https://link.springer.com/content/pdf/10.1186/s12913-021-06489-y.pdf
https://link.springer.com/article/10.1186/s12913-021-06489-y/fulltext.html
Rights: https://creativecommons.org/licenses/by/4.0 ; https://creativecommons.org/licenses/by/4.0
رقم الانضمام: edsbas.92E6ABC8
قاعدة البيانات: BASE
الوصف
DOI:10.1186/s12913-021-06489-y