Academic Journal
“We Aren’t Meant to Go Through the Hardest Parts of Our Lives Alone”: Family Experience With Restricted PICU Presence During the COVID-19 Pandemic
| العنوان: | “We Aren’t Meant to Go Through the Hardest Parts of Our Lives Alone”: Family Experience With Restricted PICU Presence During the COVID-19 Pandemic |
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| المؤلفون: | Lee, Laurie A., Foster, Jennifer R., Nikitovic, Dejana, Garros, Daniel, Ryan, Molly J., Moghadam, Neda, Slumkoski, Corey, Walls, Martha, Curran, Janet A., Seabrook, Jamie A., Burgess, Stacy, Betts, Laura, Barclay, Amanda, Choong, Karen, Fontela, Patricia, Murthy, Srinivas, Nicoll, Jessica, O’Hearn, Katie, Sehgal, Anupam, Tijssen, Janice |
| المساهمون: | IWK Health, CIHR |
| المصدر: | Critical Care Explorations ; volume 5, issue 11, page e0989 ; ISSN 2639-8028 |
| بيانات النشر: | Ovid Technologies (Wolters Kluwer Health) |
| سنة النشر: | 2023 |
| الوصف: | CONTEXT: PICUs across Canada restricted family presence (RFP) in response to the COVID-19 pandemic from allowing two or more family members to often only one family member at the bedside. The objective of this study was to describe the experiences and impact of RFP on families of critically ill children to inform future policy and practice. HYPOTHESIS: RFP policies negatively impacted families of PICU patients and caused moral distress. METHODS AND MODELS: National, cross-sectional, online, self-administered survey. Family members of children admitted to a Canadian PICU between March 2020 and February 2021 were invited to complete the survey. RFP-attributable distress was measured with a modified distress thermometer (0–10). Closed-ended questions were reported with descriptive statistics and multivariable linear regression assessed factors associated with RFP-attributable distress. Open-ended questions were analyzed using inductive content analysis. RESULTS: Of 250 respondents who experienced RFP, 124 (49.6%) were restricted to one family member at the bedside. The median amount of distress that families attributed to RFP policies was 6 (range: 0–10). Families described isolation, removal of supports, and perception of trauma related to RFP. Most families (183, 73.2%) felt that policies were enforced in a way that made them feel valued by PICU clinicians, which was associated with less RFP-attributable distress. Differential impact was seen where families with lower household income indicated higher RFP-attributable distress score (2.35; 95% CI, 0.53–4.17; p = 0.03). Most respondents suggested that future policies should allow at least two family members at the bedside. INTERPRETATIONS AND CONCLUSIONS: Families of children admitted to PICUs during the COVID-19 pandemic described increased distress, trauma, and removal of supports due to RFP policies. Vulnerable families showed an increased odds of higher distress. Healthcare professionals played an important role in mitigating distress. Allowance of at least ... |
| نوع الوثيقة: | article in journal/newspaper |
| اللغة: | English |
| DOI: | 10.1097/cce.0000000000000989 |
| DOI: | 10.1097/CCE.0000000000000989 |
| الاتاحة: | http://dx.doi.org/10.1097/cce.0000000000000989 https://journals.lww.com/10.1097/CCE.0000000000000989 |
| Rights: | http://creativecommons.org/licenses/by-nc-nd/4.0/ |
| رقم الانضمام: | edsbas.7988D111 |
| قاعدة البيانات: | BASE |
| DOI: | 10.1097/cce.0000000000000989 |
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