Academic Journal
Transition from pediatric to adult care in patients with Turner syndrome in Italy: a consensus statement by the TRAMITI project
| العنوان: | Transition from pediatric to adult care in patients with Turner syndrome in Italy: a consensus statement by the TRAMITI project |
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| المؤلفون: | Aversa, T., De Sanctis, L., Faienza, M. F., Gambineri, A., Balducci, A., D'Aprile, R., Di Somma, C., Giavoli, C., Grossi, A., Meriggiola, M. C., Profka, E., Salerno, M., Stagi, S., Scarano, E., Zatelli, M. C., Wasniewska, M. |
| المساهمون: | T. Aversa, L. De Sancti, M.F. Faienza, A. Gambineri, A. Balducci, R. D'Aprile, C. Di Somma, C. Giavoli, A. Grossi, M.C. Meriggiola, E. Profka, M. Salerno, S. Stagi, E. Scarano, M.C. Zatelli, M. Wasniewska |
| بيانات النشر: | Springer |
| سنة النشر: | 2024 |
| المجموعة: | The University of Milan: Archivio Istituzionale della Ricerca (AIR) |
| مصطلحات موضوعية: | Delphi consensu, Multidisciplinary care, Patient-centered approach, Transition management, Turner syndrome, Settore MEDS-08/A - Endocrinologia |
| الوصف: | PurposeTransition from pediatric to adult care is associated with significant challenges in patients with Turner syndrome (TS). The objective of the TRansition Age Management In Turner syndrome in Italy (TRAMITI) project was to improve the care provided to patients with TS by harnessing the knowledge and expertise of various Italian centers through a Delphi-like consensus process.MethodsA panel of 15 physicians and 1 psychologist discussed 4 key domains: transition and referral, sexual and bone health and oncological risks, social and psychological aspects and systemic and metabolic disorders.ResultsA total of 41 consensus statements were drafted. The transition from pediatric to adult care is a critical period for patients with TS, necessitating tailored approaches and early disclosure of the diagnosis to promote self-reliance and healthcare autonomy. Fertility preservation and bone health strategies are recommended to mitigate long-term complications, and psychiatric evaluations are recommended to address the increased prevalence of anxiety and depression. The consensus also addresses the heightened risk of metabolic, cardiovascular and autoimmune disorders in patients with TS; regular screenings and interventions are advised to manage these conditions effectively. In addition, cardiac abnormalities, including aortic dissections, require regular monitoring and early surgical intervention if certain criteria are met.ConclusionsThe TRAMITI consensus statement provides valuable insights and evidence-based recommendations to guide healthcare practitioners in delivering comprehensive and patient-centered care for patients with TS. By addressing the complex medical and psychosocial aspects of the condition, this consensus aims to enhance TS management and improve the overall well-being and long-term outcomes of these individuals.The TRansition Age Management in Turner syndrome in Italy (TRAMITI) project aims to improve care for individuals with Turner Syndrome (TS) during their transition from pediatric to adult ... |
| نوع الوثيقة: | article in journal/newspaper |
| اللغة: | English |
| Relation: | info:eu-repo/semantics/altIdentifier/pmid/38376731; info:eu-repo/semantics/altIdentifier/wos/WOS:001168958200001; volume:47; issue:7; firstpage:1585; lastpage:1598; numberofpages:14; journal:JOURNAL OF ENDOCRINOLOGICAL INVESTIGATION; https://hdl.handle.net/2434/1114808 |
| DOI: | 10.1007/s40618-024-02315-4 |
| الاتاحة: | https://hdl.handle.net/2434/1114808 https://doi.org/10.1007/s40618-024-02315-4 |
| Rights: | info:eu-repo/semantics/openAccess |
| رقم الانضمام: | edsbas.729CEFEF |
| قاعدة البيانات: | BASE |
| DOI: | 10.1007/s40618-024-02315-4 |
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