Academic Journal
Fears and Beliefs in Rheumatoid Arthritis and Spondyloarthritis: A Qualitative Study
| العنوان: | Fears and Beliefs in Rheumatoid Arthritis and Spondyloarthritis: A Qualitative Study |
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| المؤلفون: | Berenbaum, Francis, Chauvin, Pierre, Hudry, Christophe, Mathoret-Philibert, Florence, Poussiere, Maud, de Chalus, Thibault, Dreuillet, Caroline, Russo-Marie, Françoise, Joubert, Jean-Michel, Saraux, Alain |
| المساهمون: | CHU Saint-Antoine AP-HP, Assistance publique - Hôpitaux de Paris (AP-HP) (AP-HP)-Sorbonne Université (SU), Institut Pierre Louis d'Epidémiologie et de Santé Publique (iPLESP), Université Pierre et Marie Curie - Paris 6 (UPMC)-Institut National de la Santé et de la Recherche Médicale (INSERM), CHU Pitié-Salpêtrière AP-HP, Hôpital Cochin AP-HP, Assistance publique - Hôpitaux de Paris (AP-HP) (AP-HP), Chercheur indépendant, UCB Laboratoire, UCB Laboratoires, Arthritis Fondation Courtin, Service de Rhumatologie CHU de la Cavale-Blanche, Hôpital de la Cavale Blanche - CHRU Brest (CHU - BREST ) |
| المصدر: | ISSN: 1932-6203. |
| بيانات النشر: | HAL CCSD Public Library of Science |
| سنة النشر: | 2014 |
| مصطلحات موضوعية: | [SDV.MHEP]Life Sciences [q-bio]/Human health and pathology |
| الوصف: | International audience ; Objectives: To explore beliefs and apprehensions about disease and its treatment in patients with rheumatoid arthritis and spondyloarthritis. Methods: 25 patients with rheumatoid arthritis and 25 with spondyloarthritis participated in semi-structured interviews about their disease and its treatment. The interviews were performed by trained interviewers in participants' homes. The interviews were recorded and the main themes identified by content analysis. Results: Patients differentiated between the underlying cause of the disease, which was most frequently identified as a hereditary or individual predisposition. In patients with rheumatoid arthritis, the most frequently cited triggering factor for disease onset was a psychological factor or life-event, whereas patients with spondyloarthritis tended to focus more on an intrinsic vulnerability to disease. Stress and overexertion were considered important triggering factors for exacerbations, and relaxation techniques were frequently cited strategies to manage exacerbations. The unpredictability of the disease course was a common source of anxiety. Beliefs about the disease and apprehensions about the future tended to evolve over the course of the disease, as did treatment expectations. Conclusions: Patients with rheumatoid arthritis and spondyloarthritis hold a core set of beliefs and apprehensions that reflect their level of information about their disease and are not necessarily appropriate. The physician can initiate discussion of these beliefs in order to dispel misconceptions, align treatment expectations, provide reassurance to the patient and readjust disease management. Such a dialogue would help improve standards of care in these chronic and incapacitating diseases. |
| نوع الوثيقة: | article in journal/newspaper |
| اللغة: | English |
| Relation: | hal-01344720; https://hal.sorbonne-universite.fr/hal-01344720; https://hal.sorbonne-universite.fr/hal-01344720/document; https://hal.sorbonne-universite.fr/hal-01344720/file/journal.pone.0114350.PDF |
| DOI: | 10.1371/journal.pone.0114350 |
| الاتاحة: | https://hal.sorbonne-universite.fr/hal-01344720 https://hal.sorbonne-universite.fr/hal-01344720/document https://hal.sorbonne-universite.fr/hal-01344720/file/journal.pone.0114350.PDF https://doi.org/10.1371/journal.pone.0114350 |
| Rights: | http://creativecommons.org/licenses/by/ ; info:eu-repo/semantics/OpenAccess |
| رقم الانضمام: | edsbas.5D903791 |
| قاعدة البيانات: | BASE |
| DOI: | 10.1371/journal.pone.0114350 |
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