Academic Journal
Involvement of relatives in chronic non-malignant pain rehabilitation at multidisciplinary pain centres:part one – the patient perspective
| العنوان: | Involvement of relatives in chronic non-malignant pain rehabilitation at multidisciplinary pain centres:part one – the patient perspective |
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| المؤلفون: | Rønne, Pernille Friis, Horn, Nadija Schwartz, Hansen, Carrinna |
| المصدر: | Rønne , P F , Horn , N S & Hansen , C 2021 , ' Involvement of relatives in chronic non-malignant pain rehabilitation at multidisciplinary pain centres : part one – the patient perspective ' , Scandinavian Journal of Pain , vol. 21 , no. 1 , pp. 81-94 . https://doi.org/10.1515/sjpain-2019-0162 |
| سنة النشر: | 2021 |
| المجموعة: | University of Southern Denmark: Research Output / Syddansk Universitet |
| مصطلحات موضوعية: | chronic non-malignant pain, involvement, pain rehabilitation, patient perspective, qualitative research, relatives, Pain Clinics, Pain, Humans, Family, Hermeneutics, Child |
| الوصف: | Objectives: Chronic non-malignant pain (CNP) is a significant healthcare problem with considerable consequences for patients, relatives and society. CNP is a lifelong condition that calls for acceptance and self-management. Existing research indicates that the involvement of relatives improves patients' and relatives' management of CNP, but the area is, at present, scarcely described. Research is required to obtain knowledge about the patients' experiences, needs and preferences concerning the involvement of their relatives within the frame of CNP rehabilitation, which is the aim of this study. Methods: The study applied a qualitative phenomenological-hermeneutic design conducting individual interviews with 10 patients with CNP from three selected Multidisciplinary Pain Centres (MPC). The analysis was guided by Paul Ricoeur's philosophy of interpretation of the text. Results: The findings illuminated the patients' perspectives on the involvement of relatives within three key themes, each having two or three sub-themes. The analysis revealed that patients in CNP rehabilitation had various interpretations of the substance of involving relatives, reflecting their sparse experiences. It seemed arbitrary, who during the rehabilitation actually experienced the involvement of their relatives, leaving the impression of an area short of structure. This shortage was troublesome, due to a heartrending impact of CNP. Patients' reduced functional level, combined with their surroundings difficulties in grasping the magnitude of CNP led to a loss of relationships and a risk of social isolation. Patients' close relationships became essential but were under pressure as well. Patients living with a spouse/cohabitant experienced that the relationship was affected by a disrupted balance and pain-related emotional outbursts. The patients experienced a profound need for being understood, but the text also revealed a need for mutual understanding to acknowledge the relatives' strain as well. Particular patients with children living at ... |
| نوع الوثيقة: | article in journal/newspaper |
| وصف الملف: | application/pdf |
| اللغة: | English |
| Relation: | https://portal.findresearcher.sdu.dk/da/publications/204cdaf2-ef72-443c-bcb5-eb06de67ad94 |
| DOI: | 10.1515/sjpain-2019-0162 |
| الاتاحة: | https://portal.findresearcher.sdu.dk/da/publications/204cdaf2-ef72-443c-bcb5-eb06de67ad94 https://doi.org/10.1515/sjpain-2019-0162 https://findresearcher.sdu.dk/ws/files/216028534/10.1515_sjpain_2019_0162.pdf |
| Rights: | info:eu-repo/semantics/openAccess |
| رقم الانضمام: | edsbas.504A311D |
| قاعدة البيانات: | BASE |
| DOI: | 10.1515/sjpain-2019-0162 |
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