Academic Journal
Adapting a Preparatory Skills‐Building Programme for Carers of People With Cancer Through Co‐Design: The iCanSupport Project
| العنوان: | Adapting a Preparatory Skills‐Building Programme for Carers of People With Cancer Through Co‐Design: The iCanSupport Project |
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| المؤلفون: | Easpaig, Bróna Nic Giolla, Newman, Bronwyn, Johnson, Judith, Sansom‐Daly, Ursula M., Jones, Lucy, Hofstätter, Lukas, Robertson, Eden G., Harrison, Reema |
| المصدر: | Health Expectations ; volume 27, issue 5 ; ISSN 1369-6513 1369-7625 |
| بيانات النشر: | Wiley |
| سنة النشر: | 2024 |
| المجموعة: | Wiley Online Library (Open Access Articles via Crossref) |
| الوصف: | Introduction Health services rely upon carers to provide care for loved ones with cancer, yet many carers often feel ill‐prepared for this role. Despite a multitude of programmes to support carer mental health, programmes that help carers feel better equipped to support a person with cancer are lacking. This study aimed to address this need by adapting an evidence‐based intervention to be suitable for carers of people with cancer. Methods This study used an exploratory, qualitative design consisting of experienced‐based co‐design and an in‐depth stakeholder engagement strategy. An existing evidence‐based programme to promote resilience in the context of providing care was adapted for relevance to carers for people with cancer via two co‐design workshops with carers and healthcare professionals ( n = 8). The resulting prototype programme was refined based on stakeholder consultations with staff and consumer members of cancer and carer support organisations across Australia ( n = 16). Transcripts of the workshops, meetings and written feedback from carers were thematically analysed. Results Major programme developments were guided by three themes that emerged from the co‐design workshops: ‘creating value for carers’, ‘multiple contributors to carer distress’ and ‘the need for flexible implementation’. Analysis of the stakeholder consultation data showed that the themes of ‘diversity in carer journeys’ and ‘creating impact for carers’ were key to further tailoring the programme for applicability to practice. An adapted programme called ‘iCanSupport’ resulted from the process, with key adaptations being more relevant case study scenarios for carers and greater flexibility in accessing and engaging with the intervention to accommodate a range of carer circumstances. Conclusion Programmes to build skills for becoming a carer for someone with cancer are absent, yet they are desired by carers. Using co‐design provided a user‐centric approach to adapt an existing evidence‐based programme. Programme evaluation is ... |
| نوع الوثيقة: | article in journal/newspaper |
| اللغة: | English |
| DOI: | 10.1111/hex.70061 |
| الاتاحة: | http://dx.doi.org/10.1111/hex.70061 https://onlinelibrary.wiley.com/doi/pdf/10.1111/hex.70061 |
| Rights: | http://creativecommons.org/licenses/by/4.0/ |
| رقم الانضمام: | edsbas.3E84C1EF |
| قاعدة البيانات: | BASE |
| DOI: | 10.1111/hex.70061 |
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