Academic Journal
Contextual predictors of self‐management and independence trajectories in adolescents and young adults with spina bifida
| العنوان: | Contextual predictors of self‐management and independence trajectories in adolescents and young adults with spina bifida |
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| المؤلفون: | Ridosh, Monique M., Adams, William, Payne, Allison D., Hilderbrand, Taylor L., Magaña, Fabiola, Sawin, Kathleen J., Holmbeck, Grayson N. |
| المساهمون: | National Institute of Nursing Research, March of Dimes Foundation, Eunice Kennedy Shriver National Institute of Child Health and Human Development |
| المصدر: | Developmental Medicine & Child Neurology ; volume 66, issue 10, page 1329-1339 ; ISSN 0012-1622 1469-8749 |
| بيانات النشر: | Wiley |
| سنة النشر: | 2024 |
| المجموعة: | Wiley Online Library (Open Access Articles via Crossref) |
| الوصف: | Aim To examine socioeconomic, condition‐related, and neuropsychological predictors of self‐management trajectories in adolescents and young adults with spina bifida. Method In this longitudinal study, participants completed the Adolescent/Young Adult Self‐Management and Independence Scale interview. Socioeconomic status (SES), shunt status, lesion level, and executive functioning were assessed. Growth in self‐management was estimated using linear mixed‐effects models. Results Participants ( n = 99) were aged 18 to 27 years. Approximately half (52.5%) were female and White; 15.2% were Black; and 32.3% Hispanic or Latino. Although none of the predictors were associated with growth in self‐management from ages 18 to 27 years ( p > 0.05), several factors were associated with the intercept at age 18 years for total self‐management. Higher SES at baseline predicted a higher total self‐management score at age 18 years ( b = 0.03, standard error [SE] = 0.01; p < 0.001). On average, participants at age 18 years with a shunt scored lower than those without a shunt ( b = −0.90, SE = 0.32; p = 0.01); those with a thoracic lesion scored lower than those with lower lesion levels (lumbar: b = −1.22, SE = 0.34; sacral: b = −1.20, SE = 0.36; p = 0.001 for both). Better parent‐reported and teacher‐reported executive functions predicted higher total self‐management (metacognitive: b = −0.03, SE = 0.01; behavioral regulation: b = −0.04, SE = 0.01; p < 0.05 for both). Interpretation On average, all participants improved in self‐management over time. Additionally, baseline superiority in self‐management for adolescents and young adults without a shunt, less severe lesions, better executive functions, and higher SES persisted over time. What this paper adds Higher socioeconomic status at baseline predicted higher self‐management scores at age 18 years. Participants with a shunt scored lower than those without a shunt. Participants with a thoracic lesion scored lower than those with other, less severe lesions. Better ... |
| نوع الوثيقة: | article in journal/newspaper |
| اللغة: | English |
| DOI: | 10.1111/dmcn.15900 |
| الاتاحة: | https://doi.org/10.1111/dmcn.15900 https://onlinelibrary.wiley.com/doi/pdf/10.1111/dmcn.15900 |
| Rights: | http://creativecommons.org/licenses/by-nc-nd/4.0/ |
| رقم الانضمام: | edsbas.3C4E4236 |
| قاعدة البيانات: | BASE |
| DOI: | 10.1111/dmcn.15900 |
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