Academic Journal
‘We had conversations we wouldn't have had otherwise’:Exploring home-dwelling people with dementia and family members' experiences of deliberating on ethical issues in a literature-based intervention
| العنوان: | ‘We had conversations we wouldn't have had otherwise’:Exploring home-dwelling people with dementia and family members' experiences of deliberating on ethical issues in a literature-based intervention |
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| المؤلفون: | Skov, Sofie Smedegaard, Berg, Marie Eva, Andersen, Josefine Ranfelt, Schou-Juul, Frederik, Jensen, Anja M.B., Folker, Anna Paldam, Lauridsen, Sigurd |
| المصدر: | Skov , S S , Berg , M E , Andersen , J R , Schou-Juul , F , Jensen , A M B , Folker , A P & Lauridsen , S 2024 , ' ‘We had conversations we wouldn't have had otherwise’ : Exploring home-dwelling people with dementia and family members' experiences of deliberating on ethical issues in a literature-based intervention ' , Journal of Clinical Nursing , vol. 33 , no. 7 , pp. 2719-2731 . https://doi.org/10.1111/jocn.17138 |
| سنة النشر: | 2024 |
| المجموعة: | University of Southern Denmark: Research Output / Syddansk Universitet |
| مصطلحات موضوعية: | Arts/Literature, Caring Intervention, Dementia, Dementia Care, Ethics, Family Health, Health Promotion, Interviews, Qualitative Descriptive, Humans, Middle Aged, Family/psychology, Independent Living, Male, Caregivers/psychology, Aged, 80 and over, Dementia/nursing, Female, Qualitative Research, Communication |
| الوصف: | Aim: To explore home-dwelling people with dementia and family members' perceptions of the feasibility and acceptability of an intervention using dementia-related literature excerpts to facilitate conversations on ethical issues related to living with dementia. Background: Ethical issues in dementia care emerge throughout the illness. In the early stages, they may involve decisions about disclosing the illness to the family, shifting roles and responsibilities, and considerations of transitioning to a nursing home. Addressing ethical issues and providing adequate support to home-dwelling people with dementia and their families are often lacking. Design: An exploratory-descriptive qualitative study. Methods: We conducted eight interviews with 14 home-dwelling persons with dementia and their family caregivers. Six were dyadic interviews, and two were individual interviews with family caregivers. We analysed the interview data using template analysis. We adhered to the COREQ checklist in reporting this study. Results: Using excerpts from dementia-related literature was a feasible and acceptable way of initiating discussions on ethical issues among home-dwelling persons with dementia and family caregivers. However, engaging the families of newly diagnosed individuals was challenging due to emotional distress. The intervention provided peer support, including identifying with others and sharing experiences. Moreover, participating couples found intimacy and relational attunement through shared reflections. Conclusion: Based on the findings, it appears that the participants in this study felt that using excerpts from dementia-related literature to deliberate on ethical issues was feasible and acceptable. Deliberating on ethical issues with peers and family caregivers offers valuable social support and opportunities for strengthening relationships. Implications for patient care: This study makes an important contribution by providing valuable insights into how ethical issues related to living with dementia can be ... |
| نوع الوثيقة: | article in journal/newspaper |
| وصف الملف: | application/pdf |
| اللغة: | English |
| Relation: | https://portal.findresearcher.sdu.dk/da/publications/053adafb-8876-4b3b-8596-9da6edeb5caa |
| DOI: | 10.1111/jocn.17138 |
| الاتاحة: | https://portal.findresearcher.sdu.dk/da/publications/053adafb-8876-4b3b-8596-9da6edeb5caa https://doi.org/10.1111/jocn.17138 https://findresearcher.sdu.dk/ws/files/265744381/Journal_of_Clinical_Nursing_-_2024_-_Skov_-_We_had_conversations_we_wouldn_t_have_had_otherwise_Exploring_home_dwelling.pdf |
| Rights: | info:eu-repo/semantics/openAccess |
| رقم الانضمام: | edsbas.366CC98E |
| قاعدة البيانات: | BASE |
| DOI: | 10.1111/jocn.17138 |
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