Academic Journal
Understanding the outcomes of specialist nursing: the continuing importance of relationships for carers of people with dementia
| العنوان: | Understanding the outcomes of specialist nursing: the continuing importance of relationships for carers of people with dementia |
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| المؤلفون: | Gridley, Kate |
| المصدر: | International Journal of Integrated Care; Vol. 18: Annual Conference Supplement 2018; 69 ; 1568-4156 |
| بيانات النشر: | Ubiquity Press |
| سنة النشر: | 2018 |
| المجموعة: | International Journal of Integrated Care (IJIC) |
| مصطلحات موضوعية: | dementia, case-management, specialist nursing, outcomes, qualitative |
| الوصف: | Introduction: Unpaid carers are the most valuable resource we have in dementia care, yet little is known about how best to support them.[1] Recent systematic reviews have highlighted a dearth of evidence on the impact of community based case-management services as a means of integrating support for carers of people with dementia1,2. Admiral Nursing is the only specialist nursing dementia service in the UK with a specific focus on carers. In addition to providing emotional support and helping people to live positively with the condition, Admiral Nurses seek to join up different parts of the health and social care system so that needs can be addressed in a coordinated way.Theory/Methods: We report here the qualitative findings of a study of support for carers of people with dementia which had Admiral Nursing as an exemplar. A limitation of some previous research on interventions for carers has been the choice of outcomes, which have been poorly aligned to the priorities of carers or the aims of the services evaluated.[2] We interviewed and conducted focus groups with 35 carers of people with dementia (half with and half without an Admiral Nurse) to ascertain from their perspectives which outcomes might be influenced by services like Admiral Nursing.Results: Three key outcome areas were identified by carers that could be influenced by Admiral Nursing: confidence in caring; carer quality of life; and carer physical and mental health. We selected and tested measurement tools aligned to these outcomes.Discussions: Our findings highlighted the value that carers place on continuity and ‘feeling supported’ as dementia progresses. Having an ongoing relationship with a specialist in dementia who knew them and their situation well gave them the confidence to continue caring in spite of the difficulties and uncertainties they faced. These findings resonate with the author’s previous research into support for people with complex needs and long-tem neurological conditions.Conclusions: Confidence (or self-efficacy) and how ... |
| نوع الوثيقة: | article in journal/newspaper |
| وصف الملف: | application/pdf |
| اللغة: | English |
| Relation: | https://account.ijic.org/index.php/up-j-ijic/article/view/4295/5106; https://account.ijic.org/index.php/up-j-ijic/article/view/4295 |
| DOI: | 10.5334/ijic.s2069 |
| الاتاحة: | https://account.ijic.org/index.php/up-j-ijic/article/view/4295 https://doi.org/10.5334/ijic.s2069 |
| Rights: | Copyright (c) 2018 The Author(s) ; https://creativecommons.org/licenses/by/4.0 |
| رقم الانضمام: | edsbas.36069A60 |
| قاعدة البيانات: | BASE |
| DOI: | 10.5334/ijic.s2069 |
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