Academic Journal
CAREGIVERS’ EXPERIENCE IN MEETING SELF-CARE NEEDS OF ADOLESCENTS WITH AUTISM SPECTRUM DISORDER: A QUALITATIVE STUDY
| العنوان: | CAREGIVERS’ EXPERIENCE IN MEETING SELF-CARE NEEDS OF ADOLESCENTS WITH AUTISM SPECTRUM DISORDER: A QUALITATIVE STUDY |
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| المؤلفون: | Lestari, Lilis, Herini, Elisabeth Siti, Gamayanti, Indria Laksmi |
| المصدر: | Belitung Nursing Journal; Vol. 3 No. 4 (2017): July - August; 316-328 ; 2477-4073 ; 10.33546/bnj.v3i4 |
| بيانات النشر: | Department of Publication, Belitung Raya Foundation, Indonesia |
| سنة النشر: | 2017 |
| مصطلحات موضوعية: | caregiver experience, main caregiver, adolescent, autism spectrum disorder, self-care, basic needs |
| الوصف: | Background: Autism spectrum disorder is a complex developmental disorder, which increased rapidly than other developmental disorders in the world. This complex disorder affects a child’s self-autonomy, which has become a challenge for their parents or caregivers. Objective: This study is to explore main caregivers’ experience to meet self-care needs of adolescents with autism spectrum disorder in Pontianak, West Borneo, Indonesia. Methods: This study employed a qualitative design with semi-structured in-depth interviews. Seven main caregivers who are living together and taking care of the adolescents with autism spectrum were selected using a purposive sampling. Triangulation was conducted to ensure the trustworthiness of this study, including interviews, observations of self-care activities, documents such as photos, learning reports, and field notes. Participants’ statements were recorded using a voice recorder, and then transcribed, coded, interpreted, and categorized to form main themes and sub-themes. Results: The study identified three main themes: 1) autonomy in self-care, 2) care effort, 3) feelings, supports, and expectations. These findings emphasize the potentials of the children with autism to be autonomous in their daily self-care. Conclusions: Adolescents with autism spectrum disorder can potentially meet the needs of their daily care independently. This article has been corrected with a separate erratum: https://doi.org/10.33546/bnj.1146 |
| نوع الوثيقة: | article in journal/newspaper |
| وصف الملف: | application/pdf |
| اللغة: | English |
| Relation: | https://www.belitungraya.org/BRP/index.php/bnj/article/view/123/pdf; https://www.belitungraya.org/BRP/index.php/bnj/article/view/123 |
| DOI: | 10.33546/bnj.123 |
| الاتاحة: | https://www.belitungraya.org/BRP/index.php/bnj/article/view/123 https://doi.org/10.33546/bnj.123 |
| Rights: | Copyright (c) 2017 Lilis Lestari, Elisabeth. S. Herini, Indria Laksmi Gamayanti ; https://creativecommons.org/licenses/by/4.0 |
| رقم الانضمام: | edsbas.32AE6DBC |
| قاعدة البيانات: | BASE |
| DOI: | 10.33546/bnj.123 |
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