Academic Journal
N05 Empowerment of patients with Inflammatory Bowel Disease: Effect on quality of life and disease control
العنوان: | N05 Empowerment of patients with Inflammatory Bowel Disease: Effect on quality of life and disease control |
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المؤلفون: | Lavín Expósito, C, Bouhmidi Assakali, A, Sánchez Pardo, A M, Rodriguez Romero, V, Castellanos Ramirez, C, Cofrade Delgado, A M, Vozmediano Sánchez, P, Velasco del Burgo, M, Teno Félix, M D G, Mozos Muñoz, C, Jurado Monroy, R M, Sánchez Pinilla, J, Bonillo Merino, C, Barreto Suarez, E, Sánchez Alonso, M, Salueña Salueña, I |
المصدر: | Journal of Crohn's and Colitis ; volume 19, issue Supplement_1, page i2452-i2452 ; ISSN 1873-9946 1876-4479 |
بيانات النشر: | Oxford University Press (OUP) |
سنة النشر: | 2025 |
الوصف: | Background Inflammatory bowel disease (IBD) is a chronic condition. The increasing number of cases and the diversity of treatments, significantly raises healthcare costs, making IBD a high-impact disease and a priority for healthcare systems. IBD deeply affects patients’ quality of life, impacting their physical, emotional, and social well-being. A crucial factor in improving this situation for both patients and healthcare systems is promoting self-care. Nurses play a vital role in educating patients and implementing self-care strategies. Enhancing patients’ knowledge of their disease and their ability to identify and manage symptoms is essential for effective control. Self-care activities are complex, requiring patients to become experts in various health-related aspects, including treatment adherence, adopting healthy lifestyle habits, and the ability to detect and respond to warning signs. The primary objective of this study is to analyse whether a higher degree of empowerment in IBD patients is associated with more effective disease control and improvements in their quality of life and emotional well-being. Methods A descriptive observational cross-sectional study was conducted with consecutive sampling, including a total of 75 patients. Various measurement instruments were used for data collection, including the Harvey Bradshaw Index (HBI) and the Partial Mayo Score (PMS) for assessing disease activity; the Chronic Disease Patient Empowerment Questionnaire (CEPEC); the IBDQ-9 questionnaire to evaluate IBD-related quality of life; and the IBD-Control questionnaire to measure perceived disease control. Results A total of 75 patients diagnosed with inflammatory bowel disease (IBD) were analyzed, of whom 62% were male and 38% female. The mean age of participants was 48 years. A notable finding was that 62% of patients exhibited a high degree of empowerment. Among these highly empowered patients, 62% scored above 12 points on the IBD-Control questionnaire, indicating greater perceived control over their ... |
نوع الوثيقة: | article in journal/newspaper |
اللغة: | English |
DOI: | 10.1093/ecco-jcc/jjae190.1537 |
الاتاحة: | https://doi.org/10.1093/ecco-jcc/jjae190.1537 https://academic.oup.com/ecco-jcc/article-pdf/19/Supplement_1/i2452/61548963/jjae190.1537.pdf |
Rights: | https://academic.oup.com/pages/standard-publication-reuse-rights |
رقم الانضمام: | edsbas.2CDFD380 |
قاعدة البيانات: | BASE |
DOI: | 10.1093/ecco-jcc/jjae190.1537 |
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