Academic Journal
Choice set example.
| العنوان: | Choice set example. |
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| المؤلفون: | Richard J. Varhol, Richard Norman, Sean Randall, Crystal Man Ying Lee, Luke Trevenen, James H. Boyd, Suzanne Robinson |
| سنة النشر: | 2023 |
| مصطلحات موضوعية: | Medicine, Biotechnology, Cancer, Science Policy, Infectious Diseases, Virology, public healthcare provider, least preferred option, fluctuating risk tolerance, australian consumers prefer, government organisations manage, personal health records, stated preference approach, anonymised health data, investigate public willingness, integrated health system, address stakeholder concerns, sharing health data, consumers risk, health data, public preference, health policy, insurance records, individuals preferred, government staff, government oversight, health research, data linkage, data collection, data collected |
| الوصف: | Objective To investigate public willingness to share sensitive health information for research, health policy and clinical practice. Methods A total of 1,003 Australian respondents answered an online, attribute-driven, survey in which participants were asked to accept or reject hypothetical choice sets based on a willingness to share their health data for research and frontline-medical support as part of an integrated health system. The survey consisted of 5 attributes: Stakeholder access for analysis (Analysing group); Type of information collected; Purpose of data collection; Information governance; and Anticipated benefit; the results of which were analysed using logistic regression. Results When asked about their preference for sharing their health data, respondents had no preference between data collection for the purposes of clinical practice, health policy or research, with a slight preference for having government organisations manage, govern and curate the integrated datasets from which the analysis was being conducted. The least preferred option was for personal health records to be integrated with insurance records or for their data collected by privately owned corporate organisations. Individuals preferred their data to be analysed by a public healthcare provider or government staff and expressed a dislike for any private company involvement. Conclusions The findings from this study suggest that Australian consumers prefer to share their health data when there is government oversight, and have concerns about sharing their anonymised health data for clinical practice, health policy or research purposes unless clarity is provided pertaining to its intended purpose, limitations of use and restrictions to access. Similar findings have been observed in the limited set of existing international studies utilising a stated preference approach. Evident from this study, and supported by national and international research, is that the establishment and preservation of a social license for data linkage in ... |
| نوع الوثيقة: | article in journal/newspaper |
| اللغة: | unknown |
| Relation: | https://figshare.com/articles/journal_contribution/Choice_set_example_/24578509 |
| DOI: | 10.1371/journal.pone.0290528.s003 |
| الاتاحة: | https://doi.org/10.1371/journal.pone.0290528.s003 https://figshare.com/articles/journal_contribution/Choice_set_example_/24578509 |
| Rights: | CC BY 4.0 |
| رقم الانضمام: | edsbas.24C49AF7 |
| قاعدة البيانات: | BASE |
| DOI: | 10.1371/journal.pone.0290528.s003 |
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