التفاصيل البيبلوغرافية
| العنوان: |
Real-world experiences in autistic adult diagnostic services and post-diagnostic support and alignment with services guidelines:results from the ASDEU study |
| المؤلفون: |
Scattoni, M. L. (Maria Luisa), Micai, M. (Martina), Ciaramella, A. (Antonio), Salvitti, T. (Tommaso), Fulceri, F. (Francesca), Fatta, L. M. (Laura Maria), Poustka, L. (Luise), Diehm, R. (Robert), Iskrov, G. (Georgi), Stefanov, R. (Rumen), Guillon, Q. (Quentin), Rogé, B. (Bernadette), Staines, A. (Anthony), Sweeney, M. R. (Mary Rose), Boilson, A. M. (Andrew Martin), Leósdóttir, T. (Thora), Saemundsen, E. (Evald), Moilanen, I. (Irma), Ebeling, H. (Hanna), Yliherva, A. (Anneli), Gissler, M. (Mika), Parviainen, T. (Tarja), Tani, P. (Pekka), Kawa, R. (Rafal), Vicente, A. (Astrid), Rasga, C. (Célia), Budişteanu, M. (Magdalena), Dale, I. (Ian), Povey, C. (Carol), Flores, N. (Noelia), Jenaro, C. (Cristina), Monroy, M. L. (Maria Luisa), Primo, P. G. (Patricia García), Charman, T. (Tony), Cramer, S. (Susanne), Warberg, C. K. (Christine Kloster), Canal-Bedia, R. (Ricardo), Posada, M. (Manuel), Schendel, D. (Diana) |
| بيانات النشر: |
Springer Nature |
| سنة النشر: |
2021 |
| المجموعة: |
Jultika - University of Oulu repository / Oulun yliopiston julkaisuarkisto |
| مصطلحات موضوعية: |
Adults, Autism spectrum disorder, Diagnosis, Services |
| الوصف: |
Research providing an evidence-base for autistic adult services is sparse. The Autism Spectrum Disorders in the European Union (ASDEU) network implemented an on-line survey to determine gaps in autistic adult diagnostic evaluation and post-diagnostic support services. More than 55% in all groups experienced most of the recommended features for diagnostic evaluation for autistic adults. In contrast, < 2% of adults or carers, and < 21% of professionals experienced each of the recommended features for post-diagnostic support. In contrast to 61% of professionals, only about 30% of autistic adults and carers had knowledge of good local services models for autism diagnosis in adulthood. There are major differences between good practice guidelines for diagnostic and post-diagnostic care for autistic adults, and what is actually experienced by services users and professionals. |
| نوع الوثيقة: |
article in journal/newspaper |
| وصف الملف: |
application/pdf |
| اللغة: |
English |
| الاتاحة: |
http://urn.fi/urn:nbn:fi-fe202201178814 |
| Rights: |
info:eu-repo/semantics/openAccess ; © The Author(s) 2021. This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/. ; https://creativecommons.org/licenses/by/4.0/ |
| رقم الانضمام: |
edsbas.242E015A |
| قاعدة البيانات: |
BASE |