Academic Journal
The 'Survivorship Passport' for childhood cancer survivors
| العنوان: | The 'Survivorship Passport' for childhood cancer survivors |
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| المؤلفون: | Riccardo Haupt, Samira Essiaf, Chiara Dellacasa, Cecile M. Ronckers, Silvia Caruso, Elaine Sugden, Lorna Zadravec Zaletel, Monica Muraca, Vera Morsellino, Anita Kienesberger, Anne Blondeel, Davide Saraceno, Maurizio Ortali, Leontien C.M. Kremer, Roderick Skinner, Jelena Roganovic, Francesca Bagnasco, Gill A. Levitt, Marisa De Rosa, Martin Schrappe, Lars Hjorth, Ruth Ladenstein, Stefania Menoni, Christophe Bergeron, Jaap den Hartogh, Sabine Karner, Brice Fresneau, Kathy Pritchard Jones, Gilles Vassal, Gerlind Bode, Eva Frey, Ulrike Hennewig, Maia Iris, Zsuzsanna Jakab, Helen Kosmidis, Izolda Kriviene, Catalina Marquez, Dalit Modan-Moses, Anna Panasiuk, Janine Vetsch |
| سنة النشر: | 2018 |
| المجموعة: | Istituto Nazionale di Fisica Nucleare (INFN): Open Access Repository |
| الوصف: | Background: Currently, there are between 300,000 and 500,000 childhood cancer survivors (CCSs) in Europe. A significant proportion is at high risk, and at least 60% of them develop adverse health-related outcomes that can appear several years after treatment completion. Many survivors are unaware of their personal risk, and there seems to be a general lack of information among healthcare providers about pathophysiology and natural history of treatment-related complications. This can generate incorrect or delayed diagnosis and treatments. Method: The Survivorship Passport (SurPass) consists of electronic documents, which summarise the clinical history of the childhood or adolescent cancer survivor. It was developed by paediatric oncologists of the PanCare and SIOPE networks and IT experts of Cineca, together with parents, patients, and survivors' organisations within the European Union–funded European Network for Cancer research in Children and Adolescents. It consists of a template of a web-based, simply written document, translatable in all European languages, to be given to each CCS. The SurPass provides a summary of each survivor's clinical history, with detailed information about the original cancer and of treatments received, together with personalised follow-up and screening recommendations based on guidelines published by the International Guidelines Harmonization Group and PanCareSurFup. Results: The SurPass data schema contains a maximum of 168 variables and uses internationally approved nomenclature, except for radiotherapy fields, where a new classification was defined by radiotherapy experts. The survivor-specific screening recommendations are mainly based on treatment received and are automatically suggested, thanks to built-in algorithms. These may be adapted and further individualised by the treating physician in case of special disease and survivor circumstances. The SurPass was tested at the Istituto Giannina Gaslini, Italy, and received positive feedback. It is now being integrated at the ... |
| نوع الوثيقة: | article in journal/newspaper |
| اللغة: | English |
| Relation: | url:https://www.openaccessrepository.it/communities/itmirror; https://www.openaccessrepository.it/record/35502 |
| DOI: | 10.1016/j.ejca.2018.07.006 |
| الاتاحة: | https://www.openaccessrepository.it/record/35502 https://doi.org/10.1016/j.ejca.2018.07.006 |
| Rights: | info:eu-repo/semantics/openAccess ; https://creativecommons.org/licenses/by-nc-nd/4.0/ |
| رقم الانضمام: | edsbas.1338D77F |
| قاعدة البيانات: | BASE |
| DOI: | 10.1016/j.ejca.2018.07.006 |
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