Caregivers’ voices: The experiences of caregivers of children who sustained serious accidental and non-accidental head injury in early childhood
| العنوان: | Caregivers’ voices: The experiences of caregivers of children who sustained serious accidental and non-accidental head injury in early childhood |
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| المؤلفون: | Bridget Kool, Erana Cooper, Susana Pereira, Patrick J. Kelly, Julie Wharewera-Mika |
| المصدر: | Clinical Child Psychology and Psychiatry. 21:268-286 |
| بيانات النشر: | SAGE Publications, 2015. |
| سنة النشر: | 2015 |
| مصطلحات موضوعية: | Adult, Male, Parents, Pediatrics, medicine.medical_specialty, Adolescent, Poison control, Suicide prevention, Occupational safety and health, 03 medical and health sciences, 0302 clinical medicine, 030225 pediatrics, Injury prevention, medicine, Craniocerebral Trauma, Humans, Early childhood, Child, Qualitative Research, Aged, business.industry, Head injury, Human factors and ergonomics, General Medicine, Middle Aged, medicine.disease, Psychiatry and Mental health, Clinical Psychology, Caregivers, Child, Preschool, Accidental, Pediatrics, Perinatology and Child Health, Female, business, 030217 neurology & neurosurgery |
| الوصف: | Head injury is a leading cause of mortality and acquired neurological impairment in children. Head-injured children may have neurobehavioural deficits that persist for years following injury. Head injury can result in significant and persistent caregiver burden, including mental health issues, family stress and disorganisation, and unmet social and healthcare service needs. Few studies have examined the healthcare and social service needs of children and their families following head injury sustained at an early age. This qualitative study aims to describe the experiences of caregivers of children who sustained a serious head injury (particularly non-accidental head injury) before the age of 2 years. Caregivers were interviewed up to 15 years following the initial injury. Semi-structured interviews with 21 caregivers of 15 children (aged 3–15 years at the time of interview) were completed. Thematic analysis of interview data generated three key themes: impact, support and information. The study’s findings reveal the broad impact of serious childhood head injury on caregivers, specifically the significant distress and burden brought about through lack of information, challenges in accessing support and inconsistent care. Recommendations for developing a quality ‘model of care’ and improving ease of access to supports for caregivers are provided. |
| تدمد: | 1461-7021 1359-1045 |
| DOI: | 10.1177/1359104515589636 |
| URL الوصول: | https://explore.openaire.eu/search/publication?articleId=doi_dedup___::ef552b14e00f5761e941a9cd71d4d2d6 https://doi.org/10.1177/1359104515589636 |
| Rights: | CLOSED |
| رقم الانضمام: | edsair.doi.dedup.....ef552b14e00f5761e941a9cd71d4d2d6 |
| قاعدة البيانات: | OpenAIRE |
| تدمد: | 14617021 13591045 |
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| DOI: | 10.1177/1359104515589636 |