The Undiagnosed Diseases Program Integrated Collaboration System (UDPICS): One Program’s Experience Developing Custom Software to Support Research for Complex-Disease Families
| العنوان: | The Undiagnosed Diseases Program Integrated Collaboration System (UDPICS): One Program’s Experience Developing Custom Software to Support Research for Complex-Disease Families |
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| المؤلفون: | Zaheer M. Valivullah, David W. Draper, Guoyun Yu, Jessica Guzman, William A. Gahl, Murat Sincan, Elizabeth M. J. Lee, David R. Adams |
| المصدر: | Children, Vol 2, Iss 3, Pp 342-357 (2015) Children |
| بيانات النشر: | MDPI AG, 2015. |
| سنة النشر: | 2015 |
| مصطلحات موضوعية: | Collaborative software, Knowledge management, business.industry, Complex disease, UDPICS, lcsh:RJ1-570, rare disease, Translational research, lcsh:Pediatrics, Concept Paper, Workspace, Undiagnosed Diseases Network, Undiagnosed Diseases Program, Design rationale, Informatics, Pediatrics, Perinatology and Child Health, Medicine, Custom software, informatics, Medical diagnosis, business, collaboration software |
| الوصف: | The Undiagnosed Diseases Program (UDP) was started in 2008 with the goals of making diagnoses and facilitating related translational research. The individuals and families seen by the UDP are often unique and medically complex. Approximately 40% of UDP cases are pediatric. The Undiagnosed Diseases Program Integrated Collaboration System (UDPICS) was designed to create a collaborative workspace for researchers, clinicians and families. We describe our progress in developing the system to date, focusing on design rationale, challenges and issues that are likely to be common in the development of similar systems in the future. |
| اللغة: | English |
| تدمد: | 2227-9067 |
| URL الوصول: | https://explore.openaire.eu/search/publication?articleId=doi_dedup___::93ad3072b98b996ee940460bd6dea3fd http://www.mdpi.com/2227-9067/2/3/342 |
| Rights: | OPEN |
| رقم الانضمام: | edsair.doi.dedup.....93ad3072b98b996ee940460bd6dea3fd |
| قاعدة البيانات: | OpenAIRE |
| تدمد: | 22279067 |
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