Outcomes of Paradoxical Vocal Cord Motion Diagnosed in Childhood
| العنوان: | Outcomes of Paradoxical Vocal Cord Motion Diagnosed in Childhood |
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| المؤلفون: | Pamela A. Mudd, Sohel Rana, Bianca Georgakopoulos, Nancy M. Bauman, Betel Yibrehu |
| المصدر: | Annals of Otology, Rhinology & Laryngology. 129:1195-1209 |
| بيانات النشر: | SAGE Publications, 2020. |
| سنة النشر: | 2020 |
| مصطلحات موضوعية: | Male, medicine.medical_specialty, Pediatrics, Cord, Adolescent, Relaxation Therapy, Breathing Exercises, Motion (physics), 030507 speech-language pathology & audiology, 03 medical and health sciences, 0302 clinical medicine, Symptom duration, Respiratory Hypersensitivity, Vocal cord dysfunction, Humans, Medicine, Patient Reported Outcome Measures, Diagnostic Errors, Child, 030223 otorhinolaryngology, Respiratory Sounds, business.industry, Biofeedback, Psychology, General Medicine, medicine.disease, Asthma, Dyspnea, Vocal Cord Dysfunction, Otorhinolaryngology, Globus Sensation, Gastroesophageal Reflux, Female, Patient-reported outcome, 0305 other medical science, business, Stress, Psychological |
| الوصف: | Objectives:To explore long-term patient reported outcome (PRO) measures of pediatric paradoxical vocal cord motion (PVCM) including ease of diagnosis, management, symptom duration and effect on quality of life.Methods:All children >8 years of age diagnosed with PVCM at a tertiary pediatric hospital between 2006 and 2017 were invited to complete a survey addressing study objectives.Results:21/47 eligible participants could be contacted and 18/21 (86%) participated. 78% were female with a mean age at diagnosis of 11.6 and 15.0 years at survey completion. Common PVCM symptoms reported were dyspnea (89%), globus sensation (56%), and stridor (50%). The median time to diagnosis was 3 months (IQR 2-5 months). Nearly all reported being misdiagnosed with another condition, usually asthma, until being correctly diagnosed usually by an otolaryngologist. Participants reported undergoing 3.7 diagnostic studies (range 0-8); pulmonary function testing was most common. Of numerous treatments acknowledged, breathing exercises were common (89%) but only reported helpful by 56%. Use of biofeedback was recalled in 1/3 of subjects but reported helpful in only 14% of them. Anti-reflux, allergy, anticholinergics, inhalers and steroids were each used in >50%, but rarely reported effective. PVCM was reportedly a significant stressor when initially diagnosed but despite 2/3 of participants still reporting ongoing PVCM symptoms, the perceived stress significantly decreased over time (Z = 3.26, P = 0.001).Conclusions:This first PVCM PRO study endorses that diagnosis is often delayed and prescribed treatments often viewed as ineffective. While biofeedback and breathing exercises may be critical for short-term control of PVCM episodes, lifestyle changes and stress reduction are likely necessary for long-term management. Increased awareness and improvements in management are needed for this condition. |
| تدمد: | 1943-572X 0003-4894 |
| DOI: | 10.1177/0003489420931894 |
| URL الوصول: | https://explore.openaire.eu/search/publication?articleId=doi_dedup___::8796c9178cab916e83997c4f445d0349 https://doi.org/10.1177/0003489420931894 |
| Rights: | CLOSED |
| رقم الانضمام: | edsair.doi.dedup.....8796c9178cab916e83997c4f445d0349 |
| قاعدة البيانات: | OpenAIRE |
| تدمد: | 1943572X 00034894 |
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| DOI: | 10.1177/0003489420931894 |