Adolescents and Young Adults with Cancer: Barriers in Access to Psychosocial Support

التفاصيل البيبلوغرافية
العنوان: Adolescents and Young Adults with Cancer: Barriers in Access to Psychosocial Support
المؤلفون: Natalie Bradford, Christine Cashion, Lucy Holland, Richard Walker, Roslyn Henney
المصدر: Journal of adolescent and young adult oncology. 10(1)
سنة النشر: 2020
مصطلحات موضوعية: Gerontology, Referral, Adolescent, Disease, Survivorship, Psychiatric Rehabilitation, 03 medical and health sciences, Young Adult, 0302 clinical medicine, Multidisciplinary approach, Survivorship curve, Neoplasms, Medicine, Humans, 030212 general & internal medicine, Young adult, Referral and Consultation, Service (business), business.industry, Psychosocial Support Systems, Oncology, Content analysis, 030220 oncology & carcinogenesis, Pediatrics, Perinatology and Child Health, business, Psychosocial
الوصف: Purpose: Adolescents and young adults (AYAs) experience cancer at a time of significant developmental transition. Both disease and treatment impact psychosocial well-being in significant, persistent ways. While the impacts are now described, and the need for psychosocial care is increasingly well recognized, to date, the barriers in access to care have not been well delineated. This is essential to understand to facilitate access to appropriate care and improve outcomes. Methods: This study explored the barriers in access to psychosocial care for young people. Semistructured, audio-recorded interviews were undertaken with 16 AYAs aged 15-25 years. Eligible participants were diagnosed within the previous 24 months and recruited through the Queensland Youth Cancer Service (QYCS). Transcribed interviews were analyzed using content analysis. Results: Barriers in access to support were related to person-centered, service-related, and systemic factors. Barriers experienced at diagnosis and during treatment were less common compared with barriers after treatment; these were significant and largely related to a lack of holistic, multidisciplinary survivorship care. Conclusion: Barriers in access to psychosocial care are multifactorial, although most can be addressed through health-service responses. Ensuring standardized referral and repeated introduction of psychosocial care for young people is imperative, regardless of location of treatment. Flexible services are especially important for patients treated across different facilities. The development of comprehensive post-treatment survivorship models of care is also essential. Continued evaluation of the experience of young people and the barriers they face is also crucial to ensure responsive service development and promote optimal care.
تدمد: 2156-535X
URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::7eb957bd92a3720f43806be4f841cea3
https://pubmed.ncbi.nlm.nih.gov/32486879
Rights: OPEN
رقم الانضمام: edsair.doi.dedup.....7eb957bd92a3720f43806be4f841cea3
قاعدة البيانات: OpenAIRE