التفاصيل البيبلوغرافية
| العنوان: |
Ethical aspects in the care of a child with infantile spinal muscular atrophy (SMA) |
| المؤلفون: |
B. Chabrol, Isabelle Desguerre |
| المصدر: |
Archives de Pédiatrie. 27:7S50-7S53 |
| بيانات النشر: |
Elsevier BV, 2020. |
| سنة النشر: |
2020 |
| مصطلحات موضوعية: |
Palliative care, Adolescent, media_common.quotation_subject, education, Spinal Muscular Atrophies of Childhood, Truth Disclosure, Pediatrics, Infantile spinal muscular atrophy, Patient Education as Topic, Nursing, Professional-Family Relations, Humans, Medicine, Child, media_common, Physician-Patient Relations, Terminal Care, Informed Consent, business.industry, Therapies, Investigational, Palliative Care, Beneficence, Infant, SMA, Innovative Therapies, Child, Preschool, Ethics of care, Personal Autonomy, Pediatrics, Perinatology and Child Health, business, Autonomy |
| الوصف: |
The pediatrician has a privileged relationship with a child with infantile spinal muscular atrophy (SMA). At all times, he/she must be the child's mentor, promoting a comprehensive approach and support in order to ensure the best possible solution for the patient's autonomy. In all circumstances, an ethical stance is essential. After a reminder on the notions of ethics of care, we will address various ethical questions encountered through three critical situations during the care of a child with infantile spinal muscular atrophy: the announcement of the diagnosis, the transmission of information on innovative therapies, and palliative care and end-of-life support. © 2020 French Society of Pediatrics. Published by Elsevier Masson SAS. All rights reserved. |
| تدمد: |
0929-693X |
| DOI: |
10.1016/s0929-693x(20)30278-5 |
| URL الوصول: |
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::42cd2d196a7c7ec9840bf785ee12885e
https://doi.org/10.1016/s0929-693x(20)30278-5 |
| Rights: |
CLOSED |
| رقم الانضمام: |
edsair.doi.dedup.....42cd2d196a7c7ec9840bf785ee12885e |
| قاعدة البيانات: |
OpenAIRE |