Academic Journal
Future of global regulation of human genome editing: a South African perspective on the WHO Draft Governance Framework on Human Genome Editing
| العنوان: | Future of global regulation of human genome editing: a South African perspective on the WHO Draft Governance Framework on Human Genome Editing |
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| المؤلفون: | Shozi, Bonginkosi, Kamwendo, Tamanda, Kinderlerer, Julian, Thaldar, Donrich W, Townsend, Beverley, Botes, Marietjie |
| المساهمون: | African Health Research Flagship of the University of KwaZulu-Natal, South Africa, National Research Foundation of South Africa |
| المصدر: | Journal of Medical Ethics ; volume 48, issue 3, page 165-168 ; ISSN 0306-6800 1473-4257 |
| بيانات النشر: | BMJ |
| سنة النشر: | 2021 |
| الوصف: | WHO in 2019 established the Advisory Committee on Developing Global Standards for Governance and Oversight of Human Genome Editing, which has recently published a Draft Governance Framework on Human Genome Editing. Although the Draft Framework is a good point of departure, there are four areas of concern: first, it does not sufficiently address issues related to establishing safety and efficacy. Second, issues that are a source of tension between global standard setting and state sovereignty need to be addressed in a more nuanced fashion. Third, it fails to meaningfully engage with the extent to which the conceptualisation of human dignity may justifiably vary between jurisdictions. Fourth, the meaning of harm to the interests of a future person requires clarity. Provided these four areas of concern can be addressed, the future of the global governance of human genome editing may hold promise. |
| نوع الوثيقة: | article in journal/newspaper |
| اللغة: | English |
| DOI: | 10.1136/medethics-2020-106863 |
| الاتاحة: | http://dx.doi.org/10.1136/medethics-2020-106863 https://syndication.highwire.org/content/doi/10.1136/medethics-2020-106863 |
| Rights: | http://creativecommons.org/licenses/by-nc/4.0/ |
| رقم الانضمام: | edsbas.A278771B |
| قاعدة البيانات: | BASE |
| DOI: | 10.1136/medethics-2020-106863 |
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