Academic Journal
Development of a Patient Journey Map for Improving Patient Experience and Quality of Atopic Dermatitis Care
| العنوان: | Development of a Patient Journey Map for Improving Patient Experience and Quality of Atopic Dermatitis Care |
|---|---|
| المؤلفون: | Gastón Roustán, Marta Loro, Ángel Rosell, Belén Menchen, Olga Vicente, Marta Elosua-González, Juan L. Castaño, Catalina Peña, Olga Isidoro |
| المصدر: | Dermatology and Therapy, Vol 14, Iss 2, Pp 505-519 (2024) |
| بيانات النشر: | Adis, Springer Healthcare |
| سنة النشر: | 2024 |
| المجموعة: | Directory of Open Access Journals: DOAJ Articles |
| مصطلحات موضوعية: | Atopic dermatitis, Eczema, Patient perspective, Patient centered, Patient journey map, Dermatology, RL1-803 |
| الوصف: | Introduction Atopic dermatitis (AD) is a chronic inflammatory skin condition that affects both children and adults. AD increases the risk of developing comorbidities like asthma, allergic rhinitis and food allergies. AD patients face difficulties, including itching, lack of effective treatments, lack of funding and discomfort in seeking a diagnosis or treatment. This study aims to identify the main barriers and opportunities to improve the experience of patients with AD and provide high-quality care. Methods Patients, caregivers and healthcare professionals were recruited from the Dermatology Department at Puerta de Hierro Majadahonda University Hospital (Madrid, Spain). Interviews with patients, caregivers and professionals were performed. Participants used storyboards to depict their preferred scenarios for improving healthcare interactions and create a Patient Journey Map. Results A total of 15 participants were included in the study. Early symptoms of AD were commonly described as undefined stages. As symptoms worsened, patients and caregivers expressed uncertainty and frustration. Patients became concerned about AD after their first serious flare and started experiencing intense itching, eczema, wounds, shedding or asthma. Topical corticosteroids were used to manage flares, but their effectiveness diminished over time, causing further frustration. Because of the ineffectiveness of their initial treatments, dermatologists observed that patients tended to downplay symptoms and how they affected their quality of life. The specialized treatment of severe AD significantly changed patients' emotional states. Despite AD's chronic nature, patients strived to enjoy remission periods and cope with flares. Psychological and emotional support was crucial for patients and caregivers, a need addressed by the Patients' School initiative at HUPHM hospital. Conclusion The severity of AD has a profound impact on patients' lives. Patient and caregiver emotional and social needs can be met by adequate communication, ... |
| نوع الوثيقة: | article in journal/newspaper |
| اللغة: | English |
| تدمد: | 2193-8210 2190-9172 |
| Relation: | https://doi.org/10.1007/s13555-024-01100-8; https://doaj.org/toc/2193-8210; https://doaj.org/toc/2190-9172; https://doaj.org/article/f6d91269c3934aca8204328991ad8387 |
| DOI: | 10.1007/s13555-024-01100-8 |
| الاتاحة: | https://doi.org/10.1007/s13555-024-01100-8 https://doaj.org/article/f6d91269c3934aca8204328991ad8387 |
| رقم الانضمام: | edsbas.606D10D0 |
| قاعدة البيانات: | BASE |
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