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1Academic Journal
المؤلفون: van Kleef, Esmee S.B., van de Camp, Sanne A.J.H., Groothuis, Jan T., Erasmus, Corrie E., Gaytant, Michael A., Vosse, Bettine A.H., de Weerd, Willemien, Verschuuren-Bemelmans, Corien C., Medici-Van den Herik, Evita G., Wallgren-Pettersson, Carina, Küsters, Benno, Schouten, Meyke, van Engelen, Baziel G.M., Ottenheijm, Coen A.C., Doorduin, Jonne, Voermans, Nicol C.
المصدر: van Kleef , E S B , van de Camp , S A J H , Groothuis , J T , Erasmus , C E , Gaytant , M A , Vosse , B A H , de Weerd , W , Verschuuren-Bemelmans , C C , Medici-Van den Herik , E G , Wallgren-Pettersson , C , Küsters , B , Schouten , M , van Engelen , B G M , Ottenheijm , C A C , Doorduin , J & Voermans , N C 2024 , ' A cross-sectional study in 18 patients with typical and ....
مصطلحات موضوعية: Cohort, Mild form, Nemaline myopathy, Trial readiness, Typical form
وصف الملف: application/pdf
الاتاحة: https://hdl.handle.net/11370/05ee99a5-f7db-48c5-9bba-bd8c0290695c
https://research.rug.nl/en/publications/05ee99a5-f7db-48c5-9bba-bd8c0290695c
https://doi.org/10.1016/j.nmd.2024.08.001
https://pure.rug.nl/ws/files/1140546058/1-s2.0-S0960896624009118-main.pdf
http://www.scopus.com/inward/record.url?scp=85201773267&partnerID=8YFLogxK -
2Academic Journal
المؤلفون: Engel, Marijanne, Fahner, Jurrianne C., Hennus, Marije P., Brounen, Marie-José, van Capelle, Carine, de Groot, Marinka A.R., Hermans-Peters, Marion, Hofman, Suzanne C., Joosen, Cindy, Lalbahadoersing-Jharap, Sarmila, Maebe, Sofie, Michiels, Erna M.C., Miedema, Suzanna, Raphael, Martine F, Schieving, Jolanda H., de Weerd, Willemien, Kars, MC
المساهمون: Palliatieve Zorg, Intensive care patientenzorg, Expertisecentrum Alg., Cancer, Child Health
مصطلحات موضوعية: Advance care planning, Communication training, Evaluation study, Healthcare professionals, Implementation, Knowledge, Learning program, Palliative care, Pediatric care, Journal Article
وصف الملف: application/pdf
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3Academic Journal
المؤلفون: van Kleef, Esmee S B, van de Camp, Sanne A J H, Groothuis, Jan T, Erasmus, Corrie E, Gaytant, Michael A, Vosse, Bettine A H, de Weerd, Willemien, Verschuuren-Bemelmans, Corien C, Medici-Van den Herik, Evita G, Wallgren-Pettersson, Carina, Küsters, Benno, Schouten, Meyke, van Engelen, Baziel G M, Ottenheijm, Coen A C, Doorduin, Jonne, Voermans, Nicol C
المساهمون: Longziekten, Other research (not in main researchprogram)
مصطلحات موضوعية: Journal Article
وصف الملف: application/pdf
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4Electronic Resource
المؤلفون: Longziekten, Other research (not in main researchprogram), van Kleef, Esmee S B, van de Camp, Sanne A J H, Groothuis, Jan T, Erasmus, Corrie E, Gaytant, Michael A, Vosse, Bettine A H, de Weerd, Willemien, Verschuuren-Bemelmans, Corien C, Medici-Van den Herik, Evita G, Wallgren-Pettersson, Carina, Küsters, Benno, Schouten, Meyke, van Engelen, Baziel G M, Ottenheijm, Coen A C, Doorduin, Jonne, Voermans, Nicol C
URL:
https://doi.org/10.1016/j.nmd.2024.08.001 http://hdl.handle.net/1874/455539
0960-8966
Neuromuscular Disorders
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29
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5Electronic Resource
المؤلفون: Palliatieve Zorg, Intensive care patientenzorg, Expertisecentrum Alg., Cancer, Child Health, Engel, Marijanne, Fahner, Jurrianne C., Hennus, Marije P., Brounen, Marie-José, van Capelle, Carine, de Groot, Marinka A.R., Hermans-Peters, Marion, Hofman, Suzanne C., Joosen, Cindy, Lalbahadoersing-Jharap, Sarmila, Maebe, Sofie, Michiels, Erna M.C., Miedema, Suzanna, Raphael, Martine F, Schieving, Jolanda H., de Weerd, Willemien, Kars, MC
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6Academic Journal
المؤلفون: van Kleef, Esmee S. B., van Doorn, Jeroen L. M., Gaytant, Michael A., de Weerd, Willemien, Vosse, Bettine A. H., Wallgren-Pettersson, Carina, van Engelen, Baziel G. M., Ottenheijm, Coen A. C., Voermans, Nicol C., Doorduin, Jonne
المصدر: van Kleef , E S B , van Doorn , J L M , Gaytant , M A , de Weerd , W , Vosse , B A H , Wallgren-Pettersson , C , van Engelen , B G M , Ottenheijm , C A C , Voermans , N C & Doorduin , J 2022 , ' Respiratory muscle function in patients with nemaline myopathy ' , Neuromuscular Disorders , vol. 32 , no. 8 , pp. 654-663 . https://doi.org/10.1016/j.nmd.2022.06.009
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7Academic Journal
المؤلفون: van Kleef, Esmee S B, van Doorn, Jeroen L M, Gaytant, Michael A, de Weerd, Willemien, Vosse, Bettine A H, Wallgren-Pettersson, Carina, van Engelen, Baziel G M, Ottenheijm, Coen A C, Voermans, Nicol C, Doorduin, Jonne
المساهمون: Longziekten, Other research (not in main researchprogram)
مصطلحات موضوعية: Diaphragm, Nemaline myopathy, Respiratory muscles, Spirometry, Ultrasound, Clinical Neurology, Neurology, Genetics(clinical), Pediatrics, Perinatology, and Child Health
وصف الملف: application/pdf
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8Academic Journal
المؤلفون: van Kleef, Esmee S.B., van Doorn, Jeroen L.M., Gaytant, Michael A., de Weerd, Willemien, Vosse, Bettine A.H., Wallgren-Pettersson, Carina, van Engelen, Baziel G.M., Ottenheijm, Coen A.C., Voermans, Nicol C., Doorduin, Jonne
المساهمون: University Management, Department of Medical and Clinical Genetics, University of Helsinki
مصطلحات موضوعية: Diaphragm, Nemaline myopathy, Respiratory muscles, Spirometry, Ultrasound, General medicine, internal medicine and other clinical medicine
وصف الملف: application/pdf
Relation: This work was supported by the Princess Beatrix Fund [Grant number W.OR17-08] and A Foundation Building Strength.; van Kleef , E S B , van Doorn , J L M , Gaytant , M A , de Weerd , W , Vosse , B A H , Wallgren-Pettersson , C , van Engelen , B G M , Ottenheijm , C A C , Voermans , N C & Doorduin , J 2022 , ' Respiratory muscle function in patients with nemaline myopathy ' , Neuromuscular Disorders , vol. 32 , no. 8 , pp. 654-663 . https://doi.org/10.1016/j.nmd.2022.06.009; http://hdl.handle.net/10138/348049; fd9d03d4-a250-4ada-a927-6ff06397e0d0; 85133882365; 000931982300006
الاتاحة: http://hdl.handle.net/10138/348049
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9Academic Journal
المؤلفون: Hernandez-Miranda, Luis Rodrigo, Ibrahim, Daniel M., Ruffault, Pierre-Louis, Larrosa, Madeleine, Balueva, Kira, Müller, Thomas, de Weerd, Willemien, Stolte-Dijkstra, Irene, Hostra, Robert M. W., Brunet, Jean-François, Fortin, Gilles, Mundlos, Stefan, Birchmeier, Carmen
المصدر: Proceedings of the National Academy of Sciences of the United States of America, 2018 Dec . 115(51), 13021-13026.
URL الوصول: https://www.jstor.org/stable/26574214
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10Electronic Resource
المؤلفون: Longziekten, Other research (not in main researchprogram), van Kleef, Esmee S B, van Doorn, Jeroen L M, Gaytant, Michael A, de Weerd, Willemien, Vosse, Bettine A H, Wallgren-Pettersson, Carina, van Engelen, Baziel G M, Ottenheijm, Coen A C, Voermans, Nicol C, Doorduin, Jonne
URL:
https://doi.org/10.1016/j.nmd.2022.06.009 http://hdl.handle.net/1874/447950 http://www.scopus.com/inward/record.url?scp=85133882365&partnerID=8YFLogxK
0960-8966
Neuromuscular Disorders
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8
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11Academic Journal
المؤلفون: van Duijkeren, Engeline, ten Horn, Lenny, Wagenaar, Jaap A., de Bruijn, Marco, Laarhoven, Laura, Verstappen, Koen, de Weerd, Willemien, Meessen, Nico, Duim, Birgitta
المصدر: van Duijkeren , E , ten Horn , L , Wagenaar , J A , de Bruijn , M , Laarhoven , L , Verstappen , K , de Weerd , W , Meessen , N & Duim , B 2011 , ' Suspected Horse-to-Human Transmission of MRSA ST398 ' , Emerging Infectious Diseases , vol. 17 , no. 6 , pp. 1137-1139 . https://doi.org/10.3201/eid1706.101330
مصطلحات موضوعية: RESISTANT STAPHYLOCOCCUS-AUREUS, METHICILLIN-RESISTANT
وصف الملف: application/pdf
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12Academic Journal
المصدر: Brouwer , M , Maeckelberghe , E , DE Weerd , W & Verhagen , E 2018 , ' Quality of Living and Dying : Pediatric Palliative Care and End-of-Life Decisions in the Netherlands ' , Cambridge Quarterly of Healthcare Ethics , vol. 27 , no. 3 , pp. 376-384 . https://doi.org/10.1017/S0963180117000767
مصطلحات موضوعية: Pediatric palliative care, end-of-life decision-making, pediatric euthanasia
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13Academic Journal
المصدر: de Weerd , W , van Tol , D , Albers , M , Sauer , P & Verkerk , M 2015 , ' Suffering in children : opinions from parents and health-care professionals ' , European Journal of Pediatrics , vol. 174 , no. 5 , pp. 589-595 . https://doi.org/10.1007/s00431-014-2440-1
مصطلحات موضوعية: Suffering, Pediatric intensive care, Decision-making, Suffering of parents, Physical suffering, Existential suffering, END-OF-LIFE, CANCER, SYMPTOMS, PERSPECTIVES, DECISIONS
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14Academic Journal
المصدر: de Weerd , W , Brouwer , M , Sauer , P & Maeckelberghe , E L M 2014 , ' Is there suffering in children four years after a picu admission? ' , Archives of Disease in Childhood , vol. 99 , no. suppl. 2 , pp. A1–A620 .
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15Academic Journal
المصدر: de Weerd , W , Brouwer , M , Sauer , P & Maeckelberghe , E L M 2014 , ' Suffering of parents four years after picu admission of their child ' , Archives of Disease in Childhood , vol. 99 , no. Suppl 2 , pp. A348 .
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16Academic JournalQuality of Living and Dying: Pediatric Palliative Care and End-of-Life Decisions in the Netherlands.
المصدر: Cambridge Quarterly of Healthcare Ethics; Jul2018, Vol. 27 Issue 3, p376-384, 9p
مصطلحات موضوعية: ASSISTED suicide laws, ASSISTED suicide, MEDICAL protocols, PALLIATIVE treatment, TERMINAL care, DECISION making in clinical medicine, FUTILE medical care
مصطلحات جغرافية: UNITED Kingdom, NETHERLANDS
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17Academic Journal
المؤلفون: Zuurmond-Tromp, Karen A., Klinkenberg, Theo J., Dikkers, Freek G., Koppelman, Gerard H., De Weerd, Willemien
المصدر: Zuurmond-Tromp , K A , Klinkenberg , T J , Dikkers , F G , Koppelman , G H & De Weerd , W 2009 , ' Ernstige dyspneu bij kinderen na een val ' , Nederlands Tijdschrift voor Geneeskunde , vol. 153 , no. 44 , pp. 2162-2165 . < https://www.scopus.com/record/display.uri?eid=2-s2.0-70449412093&origin=inward&txGid=1aeef6dd35cce7b09d485d3544ccc847 >
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18
المؤلفون: Zuurmond-Tromp, Karen A., Klinkenberg, Theo J., Dikkers, Freek G., Koppelman, Gerard H., De Weerd, Willemien
المساهمون: Groningen Research Institute for Asthma and COPD
المصدر: Nederlands Tijdschrift voor Geneeskunde, 153(44), 2162-2165. NLM (Medline)
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19Academic Journal
المؤلفون: Bekhof, Jolita, Norbruis, Obbe, Scheenstra, Rene, Dikkers, Frederik, de Langen, Ries, de Weerd, Willemien
المصدر: The Lancet ; volume 364, issue 9435, page 708 ; ISSN 0140-6736
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20Academic Journal
المؤلفون: De Weerd, Willemien, Nijen Twilhaar, Wim, Kimpen, Jan L.L.
المصدر: Scandinavian Journal of Infectious Diseases. Jun1998, Vol. 30 Issue 1, p77-80. 4p.
مصطلحات موضوعية: *RESPIRATORY syncytial virus, *BRONCHIOLES, *T cells
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