المؤلفون: Gudrun Salamon, Sophie Strobl, Marie-Stephanie Matschnig, Anja Diem

المصدر: Orphanet Journal of Rare Diseases, Vol 20, Iss 1, Pp 1-11 (2025)

مصطلحات موضوعية: Medicine

وصف الملف: electronic resource

Relation: https://doaj.org/toc/1750-1172

URL الوصول: https://doaj.org/article/ac02d338efe9496b9fea78d0c7d05e73

المؤلفون: Gudrun Salamon, Ursula Field-Werners, Sophie Strobl, Vinzenz Hübl, Anja Diem

المصدر: Orphanet Journal of Rare Diseases, Vol 19, Iss 1, Pp 1-14 (2024)

مصطلحات موضوعية: Epidermolysis bullosa, Quality of life, Burden, Resources, Healthcare system, Medicine

وصف الملف: electronic resource

Relation: https://doaj.org/toc/1750-1172

URL الوصول: https://doaj.org/article/4a457685fa9a471ab02224e91c064ffc

المؤلفون: Gudrun Salamon, Sophie Strobl, Ursula Field-Werners, Tobias Welponer, Dédée F Murrell, Anja Diem

مصطلحات موضوعية: Psychiatry (incl. Psychotherapy), Public Health and Health Services not elsewhere classified, Psychology not elsewhere classified, epidermolysis bullosa, patient-reported outcome measures, QOLEB, Quality of life, quality of life measures, skin disorders, test validity, validation study

Relation: https://figshare.com/articles/journal_contribution/sj-docx-1-hpq-10_1177_13591053231221369_Supplemental_material_for_Translation_cultural_adaptation_and_validation_of_the_German_Quality_of_life_in_Epidermolysis_Bullosa_QOLEB_questionnaire/25250508

الاتاحة: https://doi.org/10.25384/sage.25250508.v1
https://figshare.com/articles/journal_contribution/sj-docx-1-hpq-10_1177_13591053231221369_Supplemental_material_for_Translation_cultural_adaptation_and_validation_of_the_German_Quality_of_life_in_Epidermolysis_Bullosa_QOLEB_questionnaire/25250508

المؤلفون: Gudrun Salamon, Sophie Strobl, Ursula Field-Werners, Tobias Welponer, Dédée F Murrell, Anja Diem

مصطلحات موضوعية: Psychiatry (incl. Psychotherapy), Public Health and Health Services not elsewhere classified, Psychology not elsewhere classified, epidermolysis bullosa, patient-reported outcome measures, QOLEB, Quality of life, quality of life measures, skin disorders, test validity, validation study

Relation: https://figshare.com/articles/journal_contribution/sj-docx-2-hpq-10_1177_13591053231221369_Supplemental_material_for_Translation_cultural_adaptation_and_validation_of_the_German_Quality_of_life_in_Epidermolysis_Bullosa_QOLEB_questionnaire/25250511

الاتاحة: https://doi.org/10.25384/sage.25250511.v1
https://figshare.com/articles/journal_contribution/sj-docx-2-hpq-10_1177_13591053231221369_Supplemental_material_for_Translation_cultural_adaptation_and_validation_of_the_German_Quality_of_life_in_Epidermolysis_Bullosa_QOLEB_questionnaire/25250511

المؤلفون: Gudrun Salamon, Sophie Strobl, Ursula Field-Werners, Tobias Welponer, Dédée F Murrell, Anja Diem

مصطلحات موضوعية: Psychiatry (incl. Psychotherapy), Public Health and Health Services not elsewhere classified, Psychology not elsewhere classified, epidermolysis bullosa, patient-reported outcome measures, QOLEB, Quality of life, quality of life measures, skin disorders, test validity, validation study

Relation: https://figshare.com/articles/journal_contribution/sj-docx-2-hpq-10_1177_13591053231221369_Supplemental_material_for_Translation_cultural_adaptation_and_validation_of_the_German_Quality_of_life_in_Epidermolysis_Bullosa_QOLEB_questionnaire/25250511

الاتاحة: https://doi.org/10.25384/sage.25250511.v2

المؤلفون: Udo Wagner, Sophie Strobl

المصدر: Corporate Responsibility, Sustainability and Markets ISBN: 9783030796594

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_________::06ef85f86cda799528d661df058e9297
https://doi.org/10.1007/978-3-030-79660-0_2