المؤلفون: Mayhew, Anna G, Moat, Dionne, McDermott, Michael P., Eagle, Michelle, Griggs, Robert C., King, Wendy M., James, Meredith K., Muni-Lofra, Robert, Shillington, Alison, Gregson, Sarah, Pallant, Lindsey, Skura, Christy, Staudt, Loretta A., Eichinger, Katy, McMurchie, Heather, Rabb, Rosanna, Di Marco, Marina, Brown, Sarah, Zanin, Riccardo, Arnoldi, Maria Teresa, McIntyre, Melissa, Wilson, Amelia, Alfano, Lindsay N., Lowes, Linda P., Blomgren, Colleen, Milev, Evelin, Iodice, Mario, Pasternak, Amy, Chiu, Angela, Lehnert, Ilka, Claus, Nicole, Dieruf, Kathy A., Rolle, Enrica, Nicorici, Alina, Andres, Barbara, Hobbiebrunken, Elke, Roetmann, Gerda, Kern, Victoria, Civitello, Matthew, Vogt, Sibylle, Hayes, Melissa J., Scholtes, Cheryl, Lacroix, Catherine, Gunn, Tara, Warner, Sinead, Newman, Jennifer, Barp, Andrea, Kundrat, Katherine, Kovelman, Staci, Powers, Penny J.

المساهمون: Parent Project Muscular Dystrophy, PTC Therapeutics Inc, Sarepta Therapeutics, Muscular Dystrophy Association, Fondazione Telethon, Foundation for the National Institutes of Health

المصدر: Neuromuscular Disorders ; volume 32, issue 6, page 460-467 ; ISSN 0960-8966

الاتاحة: http://dx.doi.org/10.1016/j.nmd.2022.02.012
https://api.elsevier.com/content/article/PII:S0960896622000645?httpAccept=text/xml
https://api.elsevier.com/content/article/PII:S0960896622000645?httpAccept=text/plain

المؤلفون: Mah, Jean K., Clemens, Paula R., Guglieri, Michela, Smith, Edward C., Finkel, Richard S., Tulinius, Mar, Nevo, Yoram, Ryan, Monique M., Webster, Richard, Castro, Diana, Kuntz, Nancy L., McDonald, Craig M., Damsker, Jesse M., Schwartz, Benjamin D., Mengle-Gaw, Laurel J., Jackowski, Stefan, Stimpson, Georgia, Ridout, Deborah A., Ayyar-Gupta, Vandana, Baranello, Giovanni, Manzur, Adnan Y., Muntoni, Francesco, Gordish-Dressman, Heather, Leinonen, Mika, Ward, Leanne M., Hoffman, Eric P., Dang, Utkarsh J., Manzur, Adnan, Robb, Stephanie, Quinlivan, Ros, Sarkozy, Anna, Munot, Pinki, Main, Marion, Abbot, Lianne, Straub, Volker, Bertolli, Chiara, Mayhew, Anna, Muni-Lofra, Robert, James, Meredith, Sodhi, Jassi, Parasuraman, Deepak, Alhaswani, Zoya, McMurchie, Heather, Rabb, Rosanna, Childs, Anne-Marie, Pysden, Karen, Pallant, Lindsey

المصدر: JAMA Network Open ; volume 5, issue 1, page e2144178 ; ISSN 2574-3805

الاتاحة: http://dx.doi.org/10.1001/jamanetworkopen.2021.44178
https://jamanetwork.com/journals/jamanetworkopen/articlepdf/2788382/mah_2022_oi_211221_1642537152.18735.pdf

المؤلفون: Zambon, Alberto A., Ayyar Gupta, Vandana, Ridout, Deborah, Manzur, Adnan Y., Baranello, Giovanni, Trucco, Federica, Muntoni, Francesco, Tirupath, Sandya, Douglas, Melanie, McFetridge, Jaci, Parasuraman, Deepak, Alhaswani, Zoya, McMurchie, Heather, Rabb, Rosanna, Majumdar, Anirban, Vijayakumar, Kayal, Amin, Sam, Mason, Faye, Frimpong‐Ansah, Claire, Gibbon, Frances

المصدر: Developmental Medicine & Child Neurology; Aug2022, Vol. 64 Issue 8, p979-988, 10p

مصطلحات موضوعية: DUCHENNE muscular dystrophy, PROPORTIONAL hazards models, ACTIVITIES of daily living, FAMILY counseling