المؤلفون: Oluwatunmise A. Fawole, Michelle V. Reed, Julia G. Harris, Aimee Hersh, Martha Rodriguez, Karen Onel, Erica Lawson, Tamar Rubinstein, Kaveh Ardalan, Esi Morgan, Anne Paul, Judy Barlin, R. Paola Daly, Mitali Dave, Shannon Malloy, Shari Hume, Suzanne Schrandt, Laura Marrow, Angela Chapson, Donna Napoli, Michael Napoli, Miranda Moyer, Vincent Delgaizo, Ashley Danguecan, Emily von Scheven, Andrea Knight, for the CARRA Investigators

المصدر: Pediatric Rheumatology Online Journal, Vol 22, Iss 1, Pp 1-1 (2024)

مصطلحات موضوعية: Pediatrics, RJ1-570, Diseases of the musculoskeletal system, RC925-935

وصف الملف: electronic resource

Relation: https://doaj.org/toc/1546-0096

URL الوصول: https://doaj.org/article/a95034ed47704edeaf6e18d8b2f456a6

المؤلفون: R. Paola Daly, Jessica J. Jalbert, Shannon Keith, Tara Symonds, Jamile Shammo

المصدر: Journal of Patient-Reported Outcomes, Vol 5, Iss 1, Pp 1-11 (2021)

مصطلحات موضوعية: PNH, PRO, QoL, Symptom, Public aspects of medicine, RA1-1270

وصف الملف: electronic resource

Relation: https://doaj.org/toc/2509-8020

URL الوصول: https://doaj.org/article/7ce2941555864e249b8bac1780ce9e71

المؤلفون: Oluwatunmise A. Fawole, Michelle V. Reed, Julia G. Harris, Aimee Hersh, Martha Rodriguez, Karen Onel, Erica Lawson, Tamar Rubinstein, Kaveh Ardalan, Esi Morgan, Anne Paul, Judy Barlin, R. Paola Daly, Mitali Dave, Shannon Malloy, Shari Hume, Suzanne Schrandt, Laura Marrow, Angela Chapson, Donna Napoli, Michael Napoli, Miranda Moyer, Vincent Delgaizo, Ashley Danguecan, Emily von Scheven, Andrea Knight, for the CARRA Investigators

المصدر: Pediatric Rheumatology Online Journal, Vol 19, Iss 1, Pp 1-14 (2021)

مصطلحات موضوعية: Children, Mental health, Patient-engaged approach, Rheumatology, Mental health interventions, Survey, Pediatrics, RJ1-570, Diseases of the musculoskeletal system, RC925-935

وصف الملف: electronic resource

Relation: https://doaj.org/toc/1546-0096

URL الوصول: https://doaj.org/article/6357f91eb59e45ed84383bc3f223548d

المؤلفون: Anca D. Askanase, R. Paola Daly, Miya Okado, Kayla Neville, Avery Pong, Leslie M. Hanrahan, Joan T. Merrill

المصدر: Health and Quality of Life Outcomes, Vol 17, Iss 1, Pp 1-13 (2019)

مصطلحات موضوعية: Lupus, SLE, Disease activity, Measure, Experience, PRO, Computer applications to medicine. Medical informatics, R858-859.7

وصف الملف: electronic resource

Relation: http://link.springer.com/article/10.1186/s12955-019-1151-8; https://doaj.org/toc/1477-7525

URL الوصول: https://doaj.org/article/73459e03deda4ce0a134cdf123ebfdce

المؤلفون: Stacy P. Ardoin, R Paola Daly, Lyna Merzoug, Karin Tse, Kaveh Ardalan, Lisa Arkin, Andrea Knight, Tamar Rubinstein, Natasha Ruth, Scott E. Wenderfer, Aimee O. Hersh

المصدر: Pediatric Rheumatology Online Journal, Vol 17, Iss 1, Pp 1-7 (2019)

مصطلحات موضوعية: Lupus, Pediatric, Research, Nephritis, Neuropsychiatric, Cutaneous, Pediatrics, RJ1-570, Diseases of the musculoskeletal system, RC925-935

Relation: http://link.springer.com/article/10.1186/s12969-019-0327-4; https://doaj.org/toc/1546-0096; https://doaj.org/article/0e5f9be9578e44a5b5422299012180f6

الاتاحة: https://doi.org/10.1186/s12969-019-0327-4
https://doaj.org/article/0e5f9be9578e44a5b5422299012180f6

المؤلفون: Anne Paul, Angela Chapson, Michelle V Reed, Donna Napoli, Michael Napoli, Shannon Malloy, Ashley N Danguecan, R Paola Daly, Karen Onel, Kaveh Ardalan, Mitali Dave, Shari Hume, Aimee O. Hersh, Miranda Moyer, Laura Marrow, Oluwatunmise A. Fawole, Emily von Scheven, Martha Rodriguez, Esi M. Morgan, Tamar B. Rubinstein, Vincent Delgaizo, Suzanne Schrandt, Erica F. Lawson, Andrea M. Knight, Julia G. Harris, Judy Barlin, Carra registry investigators

المصدر: Pediatric Rheumatology Online Journal
Pediatric Rheumatology Online Journal, Vol 19, Iss 1, Pp 1-14 (2021)

مصطلحات موضوعية: Male, Parents, lcsh:Diseases of the musculoskeletal system, Disease, Anxiety, Health Services Accessibility, Mental health interventions, 0302 clinical medicine, Immunology and Allergy, Lupus Erythematosus, Systemic, 030212 general & internal medicine, Survey, Children, Juvenile dermatomyositis, Depression (differential diagnoses), education.field_of_study, Depression, lcsh:RJ1-570, Mental Health, Female, medicine.symptom, Internet-Based Intervention, Research Article, Adult, Mental Health Services, medicine.medical_specialty, Patient-engaged approach, Adolescent, Visual analogue scale, Population, Dermatomyositis, 03 medical and health sciences, Rheumatology, Intervention (counseling), medicine, Humans, education, 030203 arthritis & rheumatology, business.industry, lcsh:Pediatrics, Patient Acceptance of Health Care, medicine.disease, Mental health, Arthritis, Juvenile, Cross-Sectional Studies, Family medicine, Pediatrics, Perinatology and Child Health, lcsh:RC925-935, Patient Participation, business

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::73da171e4ad0b767fd184425f0a27c89
https://pubmed.ncbi.nlm.nih.gov/33622346

المؤلفون: Winnie W Nelson, Michael L Reed, Patricia P. Katz, R Paola Daly, Erin Connolly-Strong, Lauren Topf

المصدر: Journal of managed carespecialty pharmacy. 26(3)

مصطلحات موضوعية: Adult, Employment, Male, Pediatrics, medicine.medical_specialty, Cross-sectional study, MEDLINE, Pharmaceutical Science, Pharmacy, 03 medical and health sciences, 0302 clinical medicine, Cost of Illness, Surveys and Questionnaires, Absenteeism, medicine, Humans, Lupus Erythematosus, Systemic, 030212 general & internal medicine, Patient Reported Outcome Measures, skin and connective tissue diseases, Self report, Lupus erythematosus, Systemic lupus erythematosus, Lupus Flare, business.industry, 030503 health policy & services, Health Policy, Health resource, Health Care Costs, Middle Aged, Presenteeism, medicine.disease, Hospitalization, Cross-Sectional Studies, Female, Self Report, 0305 other medical science, business, Emergency Service, Hospital

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::d13d2428422cbfe80b932ec4e4a59ada
https://pubmed.ncbi.nlm.nih.gov/32105178

المؤلفون: R Paola Daly, Patricia B Davidson

المصدر: Clinical Trials.

مصطلحات موضوعية: medicine.medical_specialty, education.field_of_study, Systemic lupus erythematosus, business.industry, media_common.quotation_subject, Population, Participatory action research, medicine.disease, Faith, Clinical trial, Outreach, Conceptual framework, General partnership, Family medicine, medicine, education, business, media_common

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_________::0180fe45d1e673de510a51843a989660
https://doi.org/10.1136/lupus-2018-lsm.79

المؤلفون: Jamile M. Shammo, Tara Symonds, Shannon Keith, Jessica J. Jalbert, R. Paola Daly

المصدر: Blood. 134:385-385

مصطلحات موضوعية: Abdominal pain, medicine.medical_specialty, business.industry, Immunology, Cell Biology, Hematology, Chest pain, Biochemistry, Clinical trial, Quality of life, hemic and lymphatic diseases, Patient experience, medicine, Content validity, Physical therapy, Back pain, Patient-reported outcome, medicine.symptom, business

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_________::04db0232e9971d8b310bdae6bceb13d7
https://doi.org/10.1182/blood-2019-125844

المؤلفون: Raymond Fang, Roderick S. Hooker, R. Paola Daly, Christal Ramos

المصدر: JAAPA : official journal of the American Academy of Physician Assistants. 25(1)

مصطلحات موضوعية: Gerontology, Male, business.industry, Specialty, Rural setting, Age Factors, Censuses, Primary care, Middle Aged, United States, Nurse Assisting, Physician Assistants, Workforce, Medicine, Humans, Female, Physician assistants, business, Graduation, Aged

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::33ae919cee7830c1a9ebc1c146755c7f
https://pubmed.ncbi.nlm.nih.gov/22384757