المؤلفون: Penning, Louis C, Berenguer, Marina, Czlonkowska, Anna, Double, Kay L, Dusek, Petr, Espinós, Carmen, Lutsenko, Svetlana, Medici, Valentina, Papenthin, Wiebke, Stremmel, Wolfgang, Willemse, Jose, Weiskirchen, Ralf

المصدر: Biomedicines. 11(2)

مصطلحات موضوعية: Biological Sciences, Biomedical and Clinical Sciences, Clinical Sciences, Liver Disease, Neurodegenerative, Digestive Diseases, Prevention, Genetics, Neurosciences, Brain Disorders, Chronic Liver Disease and Cirrhosis, 4.2 Evaluation of markers and technologies, 4.1 Discovery and preclinical testing of markers and technologies, Detection, screening and diagnosis, Wilson disease, copper accumulation, hepatic disfunction, neurological disfunction, psychiatric disorders, patients' involvement, patients’ involvement, Biochemistry and cell biology, Pharmacology and pharmaceutical sciences, Medicinal and biomolecular chemistry

وصف الملف: application/pdf

URL الوصول: https://escholarship.org/uc/item/27z4n2cb
https://escholarship.org/content/qt27z4n2cb/qt27z4n2cb.pdf

المؤلفون: Mariangela Pellegrini, Subarna Chakravorty, Maria del Mar Manu Pereira, Beatrice Gulbis, Catriona Gilmour-Hamilton, Sandy Hayes, Mariane de Montalembert, Baba Psalm Duniya Inusa, Raffaella Colombatti, Noémi BA Roy

المصدر: Orphanet Journal of Rare Diseases, Vol 18, Iss 1, Pp 1-10 (2023)

مصطلحات موضوعية: Sickle cell disease, Patient education, Patient therapeutic education, Public patients involvement in Research, Patients workshop, International congress, Medicine

وصف الملف: electronic resource

Relation: https://doaj.org/toc/1750-1172

URL الوصول: https://doaj.org/article/26a1efa6098940dfb7ea70b347f35ede

المؤلفون: Pellegrini, Mariangela, Chakravorty, Subarna, del Mar Manu Pereira, Maria, Gulbis, Béatrice, Gilmour-Hamilton, Catriona, Hayes, Sandy, De Montalembert, Mariane, Inusa, Baba Psalm Duniya, Colombatti, Raffaella, Roy, Noémi Ba

المصدر: Orphanet journal of rare diseases, 18 (1

مصطلحات موضوعية: Génétique clinique, Pharmacologie, Sciences bio-médicales et agricoles, International congress, Patient education, Patient therapeutic education, Patients workshop, Public patients involvement in Research, Sickle cell disease

وصف الملف: 1 full-text file(s): application/pdf

Relation: uri/info:doi/10.1186/s13023-023-02951-8; uri/info:pmid/37908000; uri/info:scp/85175677295; https://dipot.ulb.ac.be/dspace/bitstream/2013/370600/1/doi_354244.pdf; http://hdl.handle.net/2013/ULB-DIPOT:oai:dipot.ulb.ac.be:2013/370600

الاتاحة: http://hdl.handle.net/2013/ULB-DIPOT:oai:dipot.ulb.ac.be:2013/370600
https://dipot.ulb.ac.be/dspace/bitstream/2013/370600/1/doi_354244.pdf

المؤلفون: Louis C. Penning, Marina Berenguer, Anna Czlonkowska, Kay L. Double, Petr Dusek, Carmen Espinós, Svetlana Lutsenko, Valentina Medici, Wiebke Papenthin, Wolfgang Stremmel, Jose Willemse, Ralf Weiskirchen

المصدر: Biomedicines; Volume 11; Issue 2; Pages: 420

مصطلحات موضوعية: Wilson disease, copper accumulation, hepatic disfunction, neurological disfunction, psychiatric disorders, patients’ involvement

وصف الملف: application/pdf

Relation: Molecular and Translational Medicine; https://dx.doi.org/10.3390/biomedicines11020420

الاتاحة: https://doi.org/10.3390/biomedicines11020420

المؤلفون: María M. Hurtado, Casta Quemada, José María García‐Herrera, José Miguel Morales‐Asencio

المصدر: Health Expectations, Vol 24, Iss 2, Pp 516-524 (2021)

مصطلحات موضوعية: ADAPTE methodology, clinical guidelines, patients involvement, psychoses, schizophrenia, Medicine (General), R5-920, Public aspects of medicine, RA1-1270

وصف الملف: electronic resource

Relation: https://doaj.org/toc/1369-6513; https://doaj.org/toc/1369-7625

URL الوصول: https://doaj.org/article/ef9a65d17ce54bd78fe145875da089e0

المؤلفون: Talarico Rosaria, Cannizzo Sara, Lorenzoni Valentina, Marinello Diana, Palla Ilaria, Pirri Salvatore, Ticciati Simone, Trieste Leopoldo, Triulzi Isotta, Terol Enrique, Bucher Anna, Turchetti Giuseppe

المصدر: Orphanet Journal of Rare Diseases, Vol 15, Iss 1, Pp 1-10 (2020)

مصطلحات موضوعية: Rare diseases, Patients’ care pathways, European Reference Networks, Complex diseases, Patients involvement, Method, Medicine

وصف الملف: electronic resource

Relation: https://doaj.org/toc/1750-1172

URL الوصول: https://doaj.org/article/77d74abf531640ae92c90a2d084ec428

المؤلفون: Ragazzi, Elisa, Saiani, Luisa, Randon, Giulia

المساهمون: Ragazzi, Elisa, Saiani, Luisa, Randon, Giulia

مصطلحات موضوعية: Valutazione degli studenti infermieri, tirocinio, coinvolgimento dei pazienti, Assessment of nursing students, practical training, patients’ involvement

Relation: info:eu-repo/semantics/altIdentifier/pmid/38873714; volume:43; issue:2; firstpage:61; lastpage:70; numberofpages:10; journal:ASSISTENZA INFERMIERISTICA E RICERCA; https://hdl.handle.net/11562/1129467; info:eu-repo/semantics/altIdentifier/scopus/2-s2.0-85196137901

الاتاحة: https://hdl.handle.net/11562/1129467
https://doi.org/10.1702/4280.42611

المؤلفون: Ali Akbar Pourfathollah, Gharib Karimi, Mehdi Tabrizi Namini, Sakineh Yousefi Darestani, Mahmoud Hadipour Dehshal

المصدر: Global Journal of Transfusion Medicine, Vol 4, Iss 1, Pp 65-68 (2019)

مصطلحات موضوعية: Patient blood management, patients' right, patients' involvement, appropriate use of blood, Diseases of the blood and blood-forming organs, RC633-647.5

وصف الملف: electronic resource

Relation: http://www.gjtmonline.com/article.asp?issn=2468-8398;year=2019;volume=4;issue=1;spage=65;epage=68;aulast=Pourfathollah; https://doaj.org/toc/2468-8398; https://doaj.org/toc/2455-8893

URL الوصول: https://doaj.org/article/e5480bfbbf99461c9a616a4e2e9f6753

المؤلفون: Valente, Martina, Brenner, Rachel, Cesuroglu, Tomris, Bunders-Aelen, Joske, Syurina, Elena V.

المصدر: Valente , M , Brenner , R , Cesuroglu , T , Bunders-Aelen , J & Syurina , E V 2020 , ' “And it snowballed from there” : The development of orthorexia nervosa from the perspective of people who self-diagnose ' , Appetite , vol. 155 , 104840 . https://doi.org/10.1016/j.appet.2020.104840

مصطلحات موضوعية: Biopsychosocial model, Development, Mixed methods, Orthorexia nervosa, Patients' involvement

الاتاحة: https://research.vu.nl/en/publications/6a133fc0-bdac-4996-b5dc-ba21846c95ed
https://doi.org/10.1016/j.appet.2020.104840
https://hdl.handle.net/1871.1/6a133fc0-bdac-4996-b5dc-ba21846c95ed
http://www.scopus.com/inward/record.url?scp=85089737542&partnerID=8YFLogxK
http://www.scopus.com/inward/citedby.url?scp=85089737542&partnerID=8YFLogxK

المؤلفون: Scotti, Valeria, De Silvestri, Annalisa, Scudeller, Luigia, Rebuffi, Chiara, Topuz, Funda, Curti, Moreno

المصدر: Journal of Altmetrics; Vol. 3 No. 1 (2020); 1 ; 2577-5685

مصطلحات موضوعية: research impact, altmetrics, bibliometrics, institutional impact, public and patients’ involvement

وصف الملف: application/pdf; application/xml

Relation: https://account.journalofaltmetrics.org/index.php/ll-j-ja/article/view/23/25; https://account.journalofaltmetrics.org/index.php/ll-j-ja/article/view/23/26; https://account.journalofaltmetrics.org/index.php/ll-j-ja/article/view/23

الاتاحة: https://account.journalofaltmetrics.org/index.php/ll-j-ja/article/view/23
https://doi.org/10.29024/joa.23

المؤلفون: Moreno Curti, Chiara Rebuffi, Funda Topuz, Valeria Scotti, Luigia Scudeller, Annalisa De Silvestri

المصدر: The Journal of Altmetrics, Vol 3, Iss 1 (2020)
Journal of Altmetrics; Vol 3, No 1 (2020); 1

مصطلحات موضوعية: Measure (data warehouse), Impact factor, Computer science, media_common.quotation_subject, research impact, altmetrics, bibliometrics, institutional impact, public and patients’ involvement, Bibliometrics and statistic analysis, Bibliometrics, Data science, lcsh:Z, lcsh:Bibliography. Library science. Information resources, Multidimensional model, Social media, Altmetrics, Function (engineering), Citation, media_common

وصف الملف: application/pdf; application/xml

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::628e6a592dc4394e51d97525f92babd7
https://www.journalofaltmetrics.org/articles/23

المؤلفون: Hausheer, Andrea Claudia, Suter, Larissa Carolina, Kool, Jan

المصدر: ISSN:2167-9169 ; ISSN:2167-9177 ; European Journal of Physiotherapy.

مصطلحات موضوعية: Communication model patients’ involvement, Education level, Musculoskeletal, Diseases therapy setting, Evidence-based medicine, Clinical reasoning, info:eu-repo/classification/ddc/615.82

Relation: https://doi.org/10.1080/21679169.2020.1772869; https://hdl.handle.net/11475/31292; https://digitalcollection.zhaw.ch/handle/11475/31292

الاتاحة: https://hdl.handle.net/11475/31292
https://doi.org/10.1080/21679169.2020.1772869
https://digitalcollection.zhaw.ch/handle/11475/31292

المؤلفون: Valentina Lorenzoni, Anna Bucher, L Trieste, Isotta Triulzi, Ilaria Palla, Giuseppe Turchetti, Rosaria Talarico, Salvatore Pirri, Enrique Terol, Simone Ticciati, Sara Cannizzo, Diana Marinello

المصدر: BASE-Bielefeld Academic Search Engine
Orphanet Journal of Rare Diseases
Orphanet Journal of Rare Diseases, Vol 15, Iss 1, Pp 1-10 (2020)

مصطلحات موضوعية: Process management, genetic structures, Patients involvement, Computer science, Health Personnel, lcsh:Medicine, Method, Phase (combat), behavioral disciplines and activities, Complex diseases, European Reference Networks, Health economics, Health technology assessment, Organisation of care, Patients’ care pathways, Rare diseases, 03 medical and health sciences, 0302 clinical medicine, Humans, Pharmacology (medical), In patient, 030212 general & internal medicine, education, Genetics (clinical), 030203 arthritis & rheumatology, Narrative medicine, education.field_of_study, Research, lcsh:R, Correction, General Medicine, Europe, Action (philosophy), Path (graph theory), Performance indicator, Delivery of Health Care, Healthcare providers

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::1f2605884cffa627dbc17797431bcad5
http://hdl.handle.net/11382/537303

المؤلفون: K.N. van Munster, Cyriel Y. Ponsioen, R. Safer, J. van Mil, P.T. Nieuwkerk

المساهمون: Medical Psychology, APH - Mental Health, APH - Personalized Medicine, Gastroenterology and Hepatology, AGEM - Digestive immunity, AGEM - Endocrinology, metabolism and nutrition

المصدر: Patient education and counseling, 103(5), 960-964. Elsevier Ireland Ltd

مصطلحات موضوعية: Adult, Male, medicine.medical_specialty, Health Knowledge, Attitudes, Practice, Patients involvement, medicine.medical_treatment, Cholangitis, Sclerosing, Video Recording, Satisfaction, Health literacy, Disease, Liver transplantation, Primary sclerosing cholangitis, 03 medical and health sciences, Liver disease, 0302 clinical medicine, Knowledge improvement, PSC, Patient Education as Topic, Internal medicine, Anxiety score, medicine, 3 Dimensional, Humans, 030212 general & internal medicine, Prospective Studies, Education video, Aged, business.industry, 030503 health policy & services, General Medicine, Middle Aged, medicine.disease, Health Literacy, Anxiety, Female, medicine.symptom, Patient Participation, 0305 other medical science, business, Patient education

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::de709c4ab38366f821a356e4303b2d40
https://pubmed.ncbi.nlm.nih.gov/32005555

المؤلفون: Manojlović, Aleksandra

المساهمون: Kvas, Andreja

مصطلحات موضوعية: dolgotrajna bolezen, sodelovanje bolnika, upoštevanje predpisanih navodil, farmakološko zdravljenje, zdravstveno stanje, health status, long-term disease, patients' involvement, pharmacological therapy, following the recommendations

وصف الملف: application/pdf

URL الوصول: https://explore.openaire.eu/search/publication?articleId=od______3505::421174e310dcf5ebf03a6a6aa2908d94
https://repozitorij.uni-lj.si/Dokument.php?id=112197&dn=

المؤلفون: Manojlović, Aleksandra

المساهمون: Kvas, Andreja

مصطلحات موضوعية: farmakološko zdravljenje, sodelovanje bolnika, upoštevanje predpisanih navodil, dolgotrajna bolezen, zdravstveno stanje, pharmacological therapy, patients' involvement, following the recommendations, long-term disease, health status

وصف الملف: application/pdf

Relation: https://repozitorij.uni-lj.si/IzpisGradiva.php?id=101927; https://repozitorij.uni-lj.si/Dokument.php?id=112197&dn=; https://plus.si.cobiss.net/opac7/bib/5461355?lang=sl

الاتاحة: https://repozitorij.uni-lj.si/IzpisGradiva.php?id=101927
https://repozitorij.uni-lj.si/Dokument.php?id=112197&dn=
https://plus.si.cobiss.net/opac7/bib/5461355?lang=sl

المؤلفون: Vaičekauskaitė, Rita, Skirutienė, Gitana, Sąlyga, Jonas

المصدر: Sveikatos mokslai, Vilnius, 2015, t. 25, Nr. 6, p. 94-97 ; ISSN 1392-6373

مصطلحات موضوعية: Patients’ involvement, Innovations, Support groups, Health care

Relation: http://ku.lvb.lt/KU:ELABAPDB15029898&prefLang=en_US

الاتاحة: http://ku.lvb.lt/KU:ELABAPDB15029898&prefLang=en_US

المؤلفون: Silvia Traversa, Sophie Hill, Paola Mosconi, Nadia Oprandi, Anneliese Synnot, Cinzia Colombo, Graziella Filippini, Isabella Baroni, P. Confalonieri

المصدر: Interactive Journal of Medical Research
Interactive Journal of Medical Research, Vol 3, Iss 3, p e12 (2014)

مصطلحات موضوعية: information needs, media_common.quotation_subject, Computer applications to medicine. Medical informatics, R858-859.7, Information needs, multiple sclerosis, World Wide Web, Resource (project management), Health care, Credibility, Medical technology, Medicine, R855-855.5, patients’ involvement, Empowerment, evidence-based information, media_common, Medical education, Original Paper, Internet, Point (typography), business.industry, Focus group, The Internet, Web search behavior, business

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::f63d74d9895452cc55f2e0634ec38fc4
http://europepmc.org/articles/PMC4150054

المؤلفون: Casati, Sara, Monti, Paolo, Bonino, F

المساهمون: Casati, S, Monti, P, Bonino, F

مصطلحات موضوعية: deliberative approach, informed consent, participation, patients' involvement, shared decision-making

وصف الملف: STAMPA

Relation: info:eu-repo/semantics/altIdentifier/pmid/20539150; volume:33; issue:3; firstpage:231; lastpage:240; numberofpages:10; journal:THE JOURNAL OF AMBULATORY CARE MANAGEMENT; https://hdl.handle.net/10281/467840; info:eu-repo/semantics/altIdentifier/scopus/2-s2.0-77953848849

الاتاحة: https://hdl.handle.net/10281/467840
https://doi.org/10.1097/JAC.0b013e3181e5630d

المؤلفون: Paolo Monti, Ferruccio Bonino, Sara Casati

مصطلحات موضوعية: Process (engineering), media_common.quotation_subject, Translational research, Patients' involvement, Translational Research, Biomedical, Informed consent, Multidisciplinary approach, Surveys and Questionnaires, Political science, Institution, Deliberative approach, Humans, Program Development, Shared decision-making, media_common, Hospitals, Public, business.industry, Health Policy, Corporate governance, Participation, Citizen journalism, Public relations, Settore M-FIL/03 - FILOSOFIA MORALE, Italy, Action (philosophy), Patient Satisfaction, business

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::55670bb60d2e716a92e8cf2764233a3d
http://hdl.handle.net/10807/56149