المؤلفون: Ingrid Nielssen, Maria Santana, Surakshya Pokharel, Kimberly Strain, Veronika Kiryanova, Sandra Zelinsky, Zoha Khawaja, Prachi Khanna, Anni Rychtera, Anshula Ambasta

المصدر: Health Expectations, Vol 27, Iss 1, Pp n/a-n/a (2024)

مصطلحات موضوعية: co‐design, patient engagement, Patient Engagement Framework, patient research partner, Medicine (General), R5-920, Public aspects of medicine, RA1-1270

وصف الملف: electronic resource

Relation: https://doaj.org/toc/1369-6513; https://doaj.org/toc/1369-7625

URL الوصول: https://doaj.org/article/870cf24947f845c2bcd8c386ff129414

المؤلفون: Ashokan Arumugam, Lawrence Rick Phillips, Ann Moore, Senthil D. Kumaran, Kesava Kovanur Sampath, Filippo Migliorini, Nicola Maffulli, Bathri Narayanan Ranganadhababu, Fatma Hegazy, Angie Botto-van Bemden

المصدر: BMC Rheumatology, Vol 7, Iss 1, Pp 1-14 (2023)

مصطلحات موضوعية: Patient and public involvement, Patient engagement, Patient experience, Patient research partner, Guidance, How-to guide, Diseases of the musculoskeletal system, RC925-935

وصف الملف: electronic resource

Relation: https://doaj.org/toc/2520-1026

URL الوصول: https://doaj.org/article/af6c9b8897564949b1864ecee019af30

المؤلفون: Maarten P. T. de Wit, M. I. Koenders, Y. Neijland, F. H. J. van den Hoogen, P. M. van der Kraan, F. A. J. van de Loo, H. Berkers, M. Lieon, A. van Caam, C. van den Ende

المصدر: BMC Rheumatology, Vol 6, Iss 1, Pp 1-12 (2022)

مصطلحات موضوعية: Basic research, Patient involvement, Patient research partner, Preclinical research, Responsive evaluation, Rheumatology, Diseases of the musculoskeletal system, RC925-935

وصف الملف: electronic resource

Relation: https://doaj.org/toc/2520-1026

URL الوصول: https://doaj.org/article/3651b2259dac4643a7c46697d05bcdbd

المؤلفون: Dawn P. Richards, Kelly D. Cobey, Laurie Proulx, Shoba Dawson, Maarten de Wit, Karine Toupin-April

المصدر: Research Involvement and Engagement, Vol 8, Iss 1, Pp 1-11 (2022)

مصطلحات موضوعية: Patient engagement, Patient and public involvement, Patient partner, Patient research partner, Payment, Compensation, Medicine, Medicine (General), R5-920

وصف الملف: electronic resource

Relation: https://doaj.org/toc/2056-7529

URL الوصول: https://doaj.org/article/88240febabee45a1b6933df56de9520d

المؤلفون: Dawn P. Richards, Kelly Denise Cobey, Laurie Proulx, Shoba Dawson, Maarten de Wit, Karine Toupin April

المصدر: Richards, D, Cobey, K, Proulx, L, Dawson, S, de Wit, M & Toupin-April, K 2022, ' Identifying potential barriers and solutions to patient partner compensation (payment) in research ', Research Involvement and Engagement, vol. 8, no. 1, 7 (2022) . https://doi.org/10.1186/s40900-022-00341-1

مصطلحات موضوعية: Patient partner, Health (social science), Patient and public involvement, General Health Professions, Patient engagement, Institutional barriers, Patient research partner, Payment, Compensation, Barriers

وصف الملف: application/pdf

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::464691937e8941fffc5fc3f4240176e6
https://doi.org/10.31219/osf.io/kdpwv

المؤلفون: Schipper, Karen, Abma, Tineke A, van Zadelhoff, Ezra, van de Griendt, Joos, Nierse, Christi, Widdershoven, Guy A. M.

المصدر: Schipper , K , Abma , T A , van Zadelhoff , E , van de Griendt , J , Nierse , C & Widdershoven , G A M 2010 , ' What Does It Mean to Be a Patient Research Partner? An Ethnodrama ' , Qualitative Inquiry , vol. 16 , no. 6 , pp. 501-510 . https://doi.org/10.1177/1077800410364351

مصطلحات موضوعية: patient research partner, experiential knowledge, emotions, empowerment, dialogue, kidney disease, participatory research, responsive research

Relation: https://cris.maastrichtuniversity.nl/en/publications/eb843a47-92c9-40e1-83c8-d1b6a18c1c1a

الاتاحة: https://cris.maastrichtuniversity.nl/en/publications/eb843a47-92c9-40e1-83c8-d1b6a18c1c1a
https://doi.org/10.1177/1077800410364351

المؤلفون: Gutman, T., Tong, A., Howell, M., Dansie, K., Hawley, C.M., Craig, J.C., Jesudason, S., Chapman, J.R., Johnson, D.W., Murphy, L., Reidlinger, D., Crowe, S., Duncanson, E., Muthuramalingam, S., Scholes-Robertson, N., Williamson, A., McDonald, S., Better Evidence and Translation in Chronic Kidney Disease (BEAT-CKD) Workshop Investigators

المصدر: http://dx.doi.org/10.1093/ndt/gfz076.

مصطلحات موضوعية: Consumer engagement, consumer involvement, patient engagement, patient involvement, patient research partner

Relation: http://purl.org/au-research/grants/nhmrc/1092957; http://purl.org/au-research/grants/nhmrc/1106716; Nephrology Dialysis Transplantation, 2020; 35(9):1585-1594; http://hdl.handle.net/2440/129838; Jesudason, S. [0000-0001-9695-0761]; Duncanson, E. [0000-0001-9244-9638]; Muthuramalingam, S. [0000-0003-2171-7177]; McDonald, S. [0000-0001-6103-1386]

الاتاحة: http://hdl.handle.net/2440/129838
https://doi.org/10.1093/ndt/gfz076

المؤلفون: Gutman, Talia, Tong, Allison, Howell, Martin, Dansie, Kathryn, Hawley, Carmel M., Craig, Jonathan C., Jesudason, Shilpanjali, Chapman, Jeremy R., Johnson, David W., Murphy, Lisa, Reidlinger, Donna, Crowe, Sally, Duncanson, Emily, Muthuramalingam, Shyamsundar, Scholes-Robertson, Nicole, Williamson, Amber, McDonald, Stephen, Better Evidence and Translation in Chronic Kidney Disease (BEAT-CKD) Workshop Investigators

مصطلحات موضوعية: consumer engagement, consumer involvement, patient engagement, patient involvement, patient research partner, 2727 Nephrology, 2747 Transplantation

Relation: orcid:0000-0002-1392-5649; orcid:0000-0001-5491-3460; APP1092957; APP1106716

الاتاحة: https://espace.library.uq.edu.au/view/UQ:ce1339d

المؤلفون: Carmel M. Hawley, Amber Williamson, David W. Johnson, Shyamsundar Muthuramalingam, Allison Tong, Martin Howell, Shilpanjali Jesudason, Stephen P. McDonald, Jonathan C. Craig, Talia Gutman, Kathryn Dansie, Sally Crowe, Emily Duncanson, Lisa Murphy, Donna Reidlinger, Nicole Scholes-Robertson, Jeremy R. Chapman

المساهمون: Gutman, Talia, Tong, Allison, Howell, Martin, Dansie, Kathryn, Hawley, Carmel M, Craig, Jonathan C, Jesudason, Shilpanjali, Chapman, Jeremy R, Johnson, David W, Murphy, Lisa, Reidlinger, Donna, Crowe, Sally, Duncanson, Emily, Muthuramalingam, Shyamsundar, Scholes-Robertson, Nicole, Williamson, Amber, McDonald, Stephen, Paget, Tamara, White, Richard, Better Evidence and Translation in Chronic Kidney Disease (BEAT-CKD)

المصدر: Nephrology, dialysis, transplantation : official publication of the European Dialysis and Transplant Association - European Renal Association. 35(9)

مصطلحات موضوعية: Male, Biomedical Research, Best practice, 030232 urology & nephrology, consumer involvement, Context (language use), Experiential learning, 03 medical and health sciences, 0302 clinical medicine, Experiential knowledge, Medicine, Humans, 030212 general & internal medicine, Renal Insufficiency, Chronic, consumer engagement, patient research partner, patient involvement, Transplantation, patient engagement, business.industry, Australia, Public relations, Transparency (behavior), Preference, Trustworthiness, Nephrology, Research Design, Female, Patient Participation, business, Inclusion (education)

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::b2b5e75171e68b90274dfec53d895446
https://pubmed.ncbi.nlm.nih.gov/31093667

المؤلفون: Anselm Sánchez Lombarte, Andrew Parkinson, Juergen Braun, Josef S Smolen, Rossana Scrivo, Alina Dinte, L. Carton, Imre Sooäär, Gabor Békés, Kati Otsa, Laure Gossec, Douglas J. Veale, Tanja Stamm, Umut Kalyoncu, Philip S. Helliwell, Tore K Kvien, Heidi Bertheussen, Uta Kiltz, Andra Balanescu, Turid Heiberg, Thomas A. Luger, Kurt de Vlam, Maarten de Wit, Juan D. Cañete, Dora Niedermayer, Mara Maccarone

المساهمون: İç Hastalıkları

المصدر: Annals of the Rheumatic Diseases. 73:1012-1019

مصطلحات موضوعية: Adult, Male, medicine.medical_specialty, Psychometrics, Intraclass correlation, Immunology, Disease, Severity of Illness Index, General Biochemistry, Genetics and Molecular Biology, Young Adult, Psoriatic arthritis, Rheumatology, Quality of life, Surveys and Questionnaires, Outcome Assessment, Health Care, Numeric Rating Scale, medicine, Humans, Psoriasis, Immunology and Allergy, Longitudinal Studies, Fatigue, Reliability (statistics), Aged, Pain Measurement, Aged, 80 and over, business.industry, Arthritis, Psoriatic, Reproducibility of Results, Focus Groups, Middle Aged, composite criteria, fatigue, outcome measure, pain, patient perspective, patient research partner, quality of life, questionnaire, response criteria, medicine.disease, Clinical trial, Cross-Sectional Studies, Physical therapy, Female, Patient-reported outcome, Self Report, business

وصف الملف: text/plain; application/pdf

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::2dcb40d7e0867568ca788b98d19a214f
https://doi.org/10.1136/annrheumdis-2014-205207

المؤلفون: Gossec, Laure, Kirwan, John, De Wit, Maarten

المصدر: Gossec , L , Kirwan , J & De Wit , M 2013 , ' Patient perspective in outcome measures developed by OMERACT ' , Indian Journal of Rheumatology , vol. 8 , no. Suppl 1 . https://doi.org/10.1016/j.injr.2013.11.004

مصطلحات موضوعية: Conferences, Health consumer, OMERACT, Patient research partner

الاتاحة: https://hdl.handle.net/1983/6f5ae2fb-1ae0-473f-9e05-0caf25c51a2c
https://research-information.bris.ac.uk/en/publications/6f5ae2fb-1ae0-473f-9e05-0caf25c51a2c
https://doi.org/10.1016/j.injr.2013.11.004
http://www.scopus.com/inward/record.url?scp=84992290254&partnerID=8YFLogxK

المؤلفون: Sanderson, Tessa, Calnan, Michael, Morris, Marianne, Richards, Pam, Hewlett, Sarah

مصطلحات موضوعية: rheumatoid arthritis, patient research partner

Relation: https://uwe-repository.worktribe.com/output/992703

الاتاحة: https://uwe-repository.worktribe.com/output/992703