المؤلفون: Curtis R, Manco-Johnson M, Konkle BA, Kulkarni R, Wu J, Baker JR, Ullman M, Tran DQ Jr, Nichol MB

المصدر: Journal of Blood Medicine, Vol Volume 13, Pp 229-241 (2022)

مصطلحات موضوعية: hemophilia a, hemophilia b, burden of hemophilia, aging in hemophilia, Diseases of the blood and blood-forming organs, RC633-647.5

وصف الملف: electronic resource

Relation: https://www.dovepress.com/comorbidities-health-related-quality-of-life-health-care-utilization-i-peer-reviewed-fulltext-article-JBM; https://doaj.org/toc/1179-2736

URL الوصول: https://doaj.org/article/96eab6b8ff254463872f244b68907f78

المؤلفون: Manco-Johnson, M., Thompson, V., Thornhill, D., Nederveld, C., Smith, J., Smith, T., Stence, N., Bernard, T.

المصدر: Research and Practice in Thrombosis and Haemostasis ; volume 7, page 101433 ; ISSN 2475-0379

الاتاحة: http://dx.doi.org/10.1016/j.rpth.2023.101433
https://api.elsevier.com/content/article/PII:S2475037923045661?httpAccept=text/xml
https://api.elsevier.com/content/article/PII:S2475037923045661?httpAccept=text/plain

المؤلفون: Christopherson, Pamela A., Haberichter, Sandra L., Flood, Veronica H., Perry, Crystal L., Sadler, Brooke E., Bellissimo, Daniel B., Di Paola, Jorge, Montgomery, Robert R., Abshire, T, Weiler, H, Lillicrap, D, James, P, O’Donnell, J, Ng, C, Bennett, C, Sidonio, R, Manco‐Johnson, M, Journeycake, J, Zia, A, Lusher, J, Rajpurkar, M, Shapiro, A, Lentz, S, Gill, J, Leissinger, C, Ragni, M, Tarantino, M, Roberts, J, Hord, J, Strouse, J, Ma, A, Valentino, L, Boggio, L, Sharathkumar, A, Gruppo, R, Kerlin, B, Kulkarni, R, Green, D, Hoots, K, Brown, D, Mahoney, D, Mathias, L, Bedros, A, Diamond, C, Neff, A, DiMichele, D, Giardina, P, Cohen, A, Paidas, M, Werner, E

المساهمون: National Heart, Lung, and Blood Institute

المصدر: Journal of Thrombosis and Haemostasis ; volume 20, issue 7, page 1576-1588 ; ISSN 1538-7836

الاتاحة: http://dx.doi.org/10.1111/jth.15713
https://onlinelibrary.wiley.com/doi/pdf/10.1111/jth.15713
https://onlinelibrary.wiley.com/doi/full-xml/10.1111/jth.15713
https://api.elsevier.com/content/article/PII:S1538783622019122?httpAccept=text/xml
https://api.elsevier.com/content/article/PII:S1538783622019122?httpAccept=text/plain

المؤلفون: Christopherson, Pamela A., Haberichter, Sandra L., Flood, Veronica H., Sicking, Ursula O., Abshire, Thomas C., Montgomery, Robert R., Weiler, H., Lillicrap, D., James, P., O’Donnell, J., Ng, C., Di Paola, J., Sadler, B., Bennett, C., Sidonio, R., Manco‐Johnson, M., Journeycake, J., Zia, A., Lusher, J., Rajpurkar, M., Shapiro, A., Lentz, S., Gill, J., Leissinger, C., Ragni, M., Tarantino, M., Roberts, J.

المساهمون: National Heart, Lung, and Blood Institute

المصدر: Research and Practice in Thrombosis and Haemostasis ; volume 6, issue 7, page e12807 ; ISSN 2475-0379

الاتاحة: http://dx.doi.org/10.1002/rth2.12807
https://onlinelibrary.wiley.com/doi/pdf/10.1002/rth2.12807
https://onlinelibrary.wiley.com/doi/full-xml/10.1002/rth2.12807
https://api.elsevier.com/content/article/PII:S2475037922024463?httpAccept=text/xml
https://api.elsevier.com/content/article/PII:S2475037922024463?httpAccept=text/plain

المؤلفون: DiGiandomenico, Stefanie, Christopherson, Pamela A., Haberichter, Sandra L., Abshire, Thomas C., Montgomery, Robert R., Flood, Veronica H., Valentino, L., Abshire, T., Dunn, A., Bennett, C., Lusher, J., Rajpurkar, M., Hoots, W.K., Brown, D., Shapiro, A., Paola, J. Di, Lentz, S., Gill, J., Leissinger, C., Ragni, M., Hord, J., Manco‐Johnson, M., Ma, A., Boggio, L., Sharathkumar, A., Gruppo, R., Kerlin, B., Journeycake, J., Kulkarni, R., Mahoney, D, Mathias, L., Bedros, A., Diamond, C., Neff, A., Paroskie, A., DiMichele, D., Giardina, P., Cohen, A., Paidas, M., Werner, E., Matsunaga, A., Singer, T., Tarantino, M., Roberts, J., Shafer, F., Konkle, B., Cuker, A., Kouides, P., Stein, D.

المساهمون: U.S. Department of Health and Human Services, National Heart, Lung, and Blood Institute, Midwest Athletes Against Childhood Cancer

المصدر: Journal of Thrombosis and Haemostasis ; volume 19, issue 1, page 131-138 ; ISSN 1538-7836

الاتاحة: http://dx.doi.org/10.1111/jth.15129
https://onlinelibrary.wiley.com/doi/pdf/10.1111/jth.15129
https://onlinelibrary.wiley.com/doi/full-xml/10.1111/jth.15129
https://api.elsevier.com/content/article/PII:S1538783622004408?httpAccept=text/xml
https://api.elsevier.com/content/article/PII:S1538783622004408?httpAccept=text/plain

المؤلفون: Ross, C., Rangarajan, S., Karimi, M., Toogeh, G., Apte, S., Lissitchkov, T., Acharya, S., Manco-johnson, M. J., Srivastava, A., Brand, B., Schwartz, B. A., Knaub, S., Peyvandi, F.

وصف الملف: text

Relation: https://eprints.soton.ac.uk/442852/1/jth.13923.pdf; Ross, C., Rangarajan, S., Karimi, M., Toogeh, G., Apte, S., Lissitchkov, T., Acharya, S., Manco-johnson, M. J., Srivastava, A., Brand, B., Schwartz, B. A., Knaub, S. and Peyvandi, F. (2018) Pharmacokinetics, clot strength and safety of a new fibrinogen concentrate: randomized comparison with active control in congenital fibrinogen deficiency. Journal of Thrombosis and Haemostasis, 16 (2), 253-261. (doi:10.1111/jth.13923 ).

الاتاحة: https://eprints.soton.ac.uk/442852/
https://eprints.soton.ac.uk/442852/1/jth.13923.pdf

المؤلفون: Peyvandi, F., Cannavò, A., Garagiola, I., Palla, R., Mannucci, P. M., Rosendaal, F. R., El-Beshlawy, A., Elalfy, M., Ramanan, V., Eshghi, P., Hanagavadi, S., Varadarajan, R., Karimi, M., Manglani, M. V., Ross, C., Young, G., Seth, T., Apte, S., Nayak, D. M., Santagostino, E., Elisa Mancuso, M., Sandoval Gonzalez, A. C., Mahlangu, J. N., Bonanad Boix, S., Cerqueira, M., Ewing, N. P., Male, C., Owaidah, T., Soto Arellano, V., Kobrinsky, N. L., Majumdar, S., Perez Garrido, R., Sachdeva, A., Simpson, M., Thomas, M., Zanon, E., Antmen, B., Kavakl, K., Manco-Johnson, M. J., Martinez, M., Marzouka, E., Mazzucconi, M. G., Neme, D., Palomo Bravo, A., Paredes Aguilera, R., Prezotti, A., Schmitt, K., Wicklund, B. M., Zulfikar, B.

المساهمون: F. Peyvandi, A. Cannavò, I. Garagiola, R. Palla, P.M. Mannucci, F.R. Rosendaal, A. El-Beshlawy, M. Elalfy, V. Ramanan, P. Eshghi, S. Hanagavadi, R. Varadarajan, M. Karimi, M.V. Manglani, C. Ro, G. Young, T. Seth, S. Apte, D.M. Nayak, E. Santagostino, M. Elisa Mancuso, A.C. Sandoval Gonzalez, J.N. Mahlangu, S. Bonanad Boix, M. Cerqueira, N.P. Ewing, C. Male, T. Owaidah, V. Soto Arellano, N.L. Kobrinsky, S. Majumdar, R. Perez Garrido, A. Sachdeva, M. Simpson, M. Thoma, E. Zanon, B. Antmen, K. Kavakl, M.J. Manco-Johnson, M. Martinez, E. Marzouka, M.G. Mazzucconi, D. Neme, A. Palomo Bravo, R. Paredes Aguilera, A. Prezotti, K. Schmitt, B.M. Wicklund, B. Zulfikar

مصطلحات موضوعية: antibodie, factor VIII, hemophilia A, inhibitor, plasma, Hematology, Settore MED/09 - Medicina Interna

Relation: info:eu-repo/semantics/altIdentifier/pmid/29080391; info:eu-repo/semantics/altIdentifier/wos/WOS:000419402000007; volume:16; issue:1; firstpage:39; lastpage:43; numberofpages:5; journal:JOURNAL OF THROMBOSIS AND HAEMOSTASIS; http://hdl.handle.net/2434/557188; info:eu-repo/semantics/altIdentifier/scopus/2-s2.0-85034265899

الاتاحة: http://hdl.handle.net/2434/557188
https://doi.org/10.1111/jth.13888

المؤلفون: Lehmann, M., Ashworth, K., Manco‐Johnson, M., Di Paola, J., Neeves, K.B., Ng, C.J.

المساهمون: Hemostasis and Thrombosis Research Society, Novo Nordisk, National Institutes of Health, National Science Foundation, American Heart Association, Health Resources and Services Administration

المصدر: Journal of Thrombosis and Haemostasis ; volume 16, issue 1, page 104-115 ; ISSN 1538-7836

الاتاحة: http://dx.doi.org/10.1111/jth.13881
https://api.wiley.com/onlinelibrary/tdm/v1/articles/10.1111%2Fjth.13881
https://onlinelibrary.wiley.com/doi/pdf/10.1111/jth.13881
https://onlinelibrary.wiley.com/doi/full-xml/10.1111/jth.13881
https://api.elsevier.com/content/article/PII:S153878362203639X?httpAccept=text/xml
https://api.elsevier.com/content/article/PII:S153878362203639X?httpAccept=text/plain
https://onlinelibrary.wiley.com/doi/am-pdf/10.1111/jth.13881

المؤلفون: Fischer, K., Poonnoose, P., Dunn, A. L., Babyn, P., Manco-Johnson, M. J., David, J. A., van der Net, J., Feldman, B., Berger, K., Carcao, M., de Kleijn, P., Silva, M., Hilliard, P., Doria, A., Srivastava, A., Blanchette, V.

المساهمون: Poli Van Creveldkliniek Medisch, Circulatory Health, Cluster Ontwikkelingsgerichte zorg, Child Health, Kinderbewegingszorg patientenzorg, Revalidatie/Sportgeneeskunde Medisch

مصطلحات موضوعية: Activity, Arthropathy, Evaluation instruments, Haemophilia, Outcomes research, Participation, General Medicine, Hematology, Genetics(clinical), Journal Article, Review

وصف الملف: image/pdf

Relation: https://dspace.library.uu.nl/handle/1874/353328

الاتاحة: https://dspace.library.uu.nl/handle/1874/353328

المؤلفون: Mannucci, P. M., Peyvandi, F., Garagiola, I., El-Beshlawy, A., Elalfy, M., Ramanan, V., Eshghi, P., Hanagavadi, S., Varadarajan, R., Karimi, M., Manglani, M. V., Ross, C., Young, G., Seth, T., Apte, S., Nayak, D. M., Santagostino, E., Mancuso, M. E., Sandoval Gonzalez, A. C., Mahlangu, J. N., Bonanad Boix, S., Cerqueira, M., Ewing, N. P., Male, C., Owaidah, T., Soto Arellano, V., Kobrinsky, N. L., Majumdar, S., Perez Garrido, R., Sachdeva, A., Simpson, M., Thomas, M., Zanon, E., Antmen, B., Kavakli, K., Manco-Johnson, M. J., Martinez, M., Marzouka, E., Mazzucconi, M. G., Neme, D., Palomo Bravo, A., Paredes Aguilera, R., Prezotti, A., Schmitt, K., Wicklund, B. M., Zulfikar, B., Rosendaal, F. R.

Relation: Makale - Uluslararası Hakemli Dergi - Kurum Öğretim Elemanı; New England Journal of Medicine; https://hdl.handle.net/11454/52759; https://doi.org/10.1056/NEJMoa1516437; 374; 21; 2054; 2064

الاتاحة: https://hdl.handle.net/11454/52759
https://doi.org/10.1056/NEJMoa1516437

المؤلفون: Fischer, K., Poonnoose, P., Dunn, A. L., Babyn, P., Manco‐Johnson, M. J., David, J. A., van der Net, J., Feldman, B., Berger, K., Carcao, M., de Kleijn, P., Silva, M., Hilliard, P., Doria, A., Srivastava, A., Blanchette, V.

المساهمون: Novo Nordisk

المصدر: Haemophilia ; volume 23, issue 1, page 11-24 ; ISSN 1351-8216 1365-2516

الاتاحة: http://dx.doi.org/10.1111/hae.13088
https://api.wiley.com/onlinelibrary/tdm/v1/articles/10.1111%2Fhae.13088
https://onlinelibrary.wiley.com/doi/pdf/10.1111/hae.13088

المؤلفون: Andersson, Nadine G., Wu, Runhui, Carcao, Manuel, Claeyssens-Donadel, Ségolène, Kobelt, Rainer, Liesner, Ri, Mäkipernaa, Anne, Ranta, Susanna, Ljung, Rolf, Auerswald, G., Barnes, C., Chalmers, E., Chambost, H., Clausen, N., Dunn, A. L., Escuriola Ettinghausen, C., Fischer, K., Fijnvandraat, K., van Geet, C., Hoffmann, M., Kavakli, K., Kenet, G., Königs, C., Kurnik, K., Manco-Johnson, M., Mancuso, M. E., Molinari, C., Muntean, W., Nolan, B., Perez Garrido, R., Platokouki, E., Rafowicz, A., Santagostino, E., Shapiro, A., Thomas, A., Williams, M.

المساهمون: Poli Van Creveldkliniek Medisch, Child Health, Circulatory Health

مصطلحات موضوعية: children, haemophilia, intracranial haemorrhage, neonatal haematology, \sequelae, Hematology

وصف الملف: application/pdf

Relation: https://dspace.library.uu.nl/handle/1874/441497

الاتاحة: https://dspace.library.uu.nl/handle/1874/441497

المؤلفون: Bakeer, N. Dover, S. Babyn, P. Feldman, B.M. von Drygalski, A. Doria, A.S. Ignas, D.M. Abad, A. Bailey, C. Beggs, I. Chang, E.Y. Dunn, A. Funk, S. Gibikote, S. Goddard, N. Hilliard, P. Keshava, S.N. Kruse-Jarres, R. Li, Y. Lobet, S. Manco-Johnson, M. Martinoli, C. O’Donnell, J.S. Papakonstantinou, O. Pergantou, H. Poonnoose, P. Querol, F. Srivastava, A. Steiner, B. Strike, K. Timmer, M. Tyrrell, P.N. Vidarsson, L. Blanchette, V.S.

URL الوصول: https://explore.openaire.eu/search/publication?articleId=od______2127::50c763c4116a86c8e0c4da89aee686a3
https://pergamos.lib.uoa.gr/uoa/dl/object/uoadl:3102166

المؤلفون: Lane, J., McLaren, P.J., Dorrell, L., Shianna, K.V., Stemke, A., Pelak, K., Moore, S., Oldenburg, J., Alvarez-Roman, M.T., Angelillo-Scherrer, A., Boehlen, F., Bolton-Maggs, P.H., Brand, B., Brown, D., Chiang, E., Cid-Haro, A.R., Clotet, B., Collins, P., Colombo, S., Dalmau, J., Fogarty, P., Giangrande, P., Gringeri, A., Iyer, R., Katsarou, O., Kempton, C., Kuriakose, P., Lin, J., Makris, M., Manco-Johnson, M., Tsakiris, D.A., Martinez-Picado, J., Mauser-Bunschoten, E., Neff, A., Oka, S., Oyesiku, L., Parra, R., Peter-Salonen, K., Powell, J., Recht, M., Shapiro, A., Stine, K., Talks, K., Telenti, A., Wilde, J., Yee, T.T., Wolinsky, S.M., Martinson, J., Hussain, S.K., Bream, J.H., Jacobson, L.P., Carrington, M., Goedert, J.J., Haynes, B.F., McMichael, A.J., Goldstein, D.B., Fellay, J.

المساهمون: NIAID Center for HIV/AIDS Vaccine Immunology (CHAVI)

المصدر: Human Molecular Genetics, vol. 22, no. 9, pp. 1903-1910

وصف الملف: application/pdf

Relation: info:eu-repo/semantics/altIdentifier/pmid/23372042; info:eu-repo/semantics/altIdentifier/eissn/1460-2083; info:eu-repo/semantics/altIdentifier/urn/urn:nbn:ch:serval-BIB_274A16CCE4105; https://serval.unil.ch/notice/serval:BIB_274A16CCE410; https://serval.unil.ch/resource/serval:BIB_274A16CCE410.P001/REF.pdf

الاتاحة: https://serval.unil.ch/notice/serval:BIB_274A16CCE410
https://doi.org/10.1093/hmg/ddt033
https://serval.unil.ch/resource/serval:BIB_274A16CCE410.P001/REF.pdf
http://nbn-resolving.org/urn/resolver.pl?urn=urn:nbn:ch:serval-BIB_274A16CCE4105

المؤلفون: Li, C, Narkbunnam, N, Samulski, R J, Asokan, A, Hu, G, Jacobson, L J, Manco-Johnson, M J, Monahan, P E

المصدر: Gene Therapy ; volume 19, issue 3, page 288-294 ; ISSN 0969-7128 1476-5462

الاتاحة: http://dx.doi.org/10.1038/gt.2011.90
https://www.nature.com/articles/gt201190.pdf
https://www.nature.com/articles/gt201190

المؤلفون: KURTH, M., PUETZ, J., KOUIDES, P., SANDERS, J., SEXAUER, C., BERNSTEIN, J., GRUPPO, R., MANCO‐JOHNSON, M., NEUFELD, E.J., RODRIGUEZ, N., WICKLUND, B., QUON, D., ALEDORT, L.

المصدر: Journal of Thrombosis and Haemostasis ; volume 9, issue 11, page 2229-2234 ; ISSN 1538-7836

الاتاحة: http://dx.doi.org/10.1111/j.1538-7836.2011.04493.x
https://api.wiley.com/onlinelibrary/tdm/v1/articles/10.1111%2Fj.1538-7836.2011.04493.x
https://api.elsevier.com/content/article/PII:S1538783622074426?httpAccept=text/xml
https://api.elsevier.com/content/article/PII:S1538783622074426?httpAccept=text/plain
http://onlinelibrary.wiley.com/wol1/doi/10.1111/j.1538-7836.2011.04493.x/fullpdf

المؤلفون: LLINáS, A., SILVA, M., PASTA, G., LUCK, J. V., ASENCIO, J.G., FERNANDEZ PALAZZI, F., CAVIGLIA, H., MANCO‐JOHNSON, M., SEUSER, A.

المصدر: Haemophilia ; volume 16, issue s5, page 132-135 ; ISSN 1351-8216 1365-2516

الاتاحة: http://dx.doi.org/10.1111/j.1365-2516.2010.02311.x
https://api.wiley.com/onlinelibrary/tdm/v1/articles/10.1111%2Fj.1365-2516.2010.02311.x
https://onlinelibrary.wiley.com/doi/pdf/10.1111/j.1365-2516.2010.02311.x

المؤلفون: Ng C.J. (10722897), Spomer N. (10722900), Shearer R. (10722903), LeBlanc A. (10722906), Funk S. (4407172), Manco-Johnson M. (10722909), Branchford B. (10722912), Warren B. (10722915), Buckner T.W. (10722918), Cowell A. (10722921), Moyer G. (10722924), Wang M. (3632518), Gibson E. (10722927), Mashburn C. (10722930)

مصطلحات موضوعية: Medicine, Hemophilia, Quality improvement, Patient-centered care

Relation: https://figshare.com/articles/dataset/Supplementary_Material_for_Improvements_in_Communication_and_Coordination_of_Care_in_a_Hemophilia_Treatment_Center/14510712

الاتاحة: https://doi.org/10.6084/m9.figshare.14510712.v1

المؤلفون: YOUNG, G., BECKER, S., DÜRING, C., FRIEDRICHS, F., GOLDENBERG, N., KENET, G., MANCO-JOHNSON, M., SCHEFFOLD, C., NOWAK-GÖTTL, U.

المصدر: Journal of Thrombosis and Haemostasis ; volume 7, issue 1, page 72-79 ; ISSN 1538-7836

الاتاحة: http://dx.doi.org/10.1111/j.1538-7836.2008.03198.x
https://api.wiley.com/onlinelibrary/tdm/v1/articles/10.1111%2Fj.1538-7836.2008.03198.x
https://api.elsevier.com/content/article/PII:S1538783622124967?httpAccept=text/xml
https://api.elsevier.com/content/article/PII:S1538783622124967?httpAccept=text/plain
http://onlinelibrary.wiley.com/wol1/doi/10.1111/j.1538-7836.2008.03198.x/fullpdf

المؤلفون: Doherty, Dearbhla, Lavin, Michelle, Byrne, Mary, Nolan, Margaret, O’Sullivan, Jamie M., Ryan, Kevin, O’Connell, Niamh M., Haberichter, Sandra L., Christopherson, Pamela A., Di Paola, Jorge, James, Paula D., O’Donnell, James S., Montgomery, R., Flood, V., Haberichter, S., Abshire, T., Weiler, H., Lillicrap, D., James, P., O’Donnell, J., Ng, C., Di Paola, J., Sadler, B., Abshire, T., Bennett, C., Sidonio, R., Manco-Johnson, M., Di Paola, J., Ng, C., Journeycake, J., Zia, A., Lusher, J., Rajpurkar, M., Shapiro, A., Lentz, S., Gill, J., Flood, V., Leissinger, C., Ragni, M., Tarantino, M., Roberts, J., James, P.

المصدر: Blood Advances; February 2023, Vol. 7 Issue: 3 p302-308, 7p