المؤلفون: Claudia Cruz Oliveira, Periklis Charalampous, Julien Delaye, Diana Alecsandra Grad, Pavel Kolkhir, Enkeleint A. Mechili, Brigid Unim, Brecht Devleesschauwer, Juanita A. Haagsma

المصدر: Orphanet Journal of Rare Diseases, Vol 19, Iss 1, Pp 1-17 (2024)

مصطلحات موضوعية: Disability-adjusted life years, Rare diseases, Methods, Population health, Review, Medicine

وصف الملف: electronic resource

Relation: https://doaj.org/toc/1750-1172

URL الوصول: https://doaj.org/article/66fd8e21fa6b4a8fb284ed47e7e6c033

المؤلفون: Julien Delaye, Pasquale Cacciatore, Anna Kole

المصدر: Frontiers in Pharmacology, Vol 13 (2022)

مصطلحات موضوعية: Quality of Life, Cost of illness, Rare diseases, Impact Assesment, burden of disease, Scoping review, Therapeutics. Pharmacology, RM1-950

وصف الملف: electronic resource

Relation: https://www.frontiersin.org/articles/10.3389/fphar.2022.914338/full; https://doaj.org/toc/1663-9812

URL الوصول: https://doaj.org/article/d67e7c82bc634e8c9363d507ef5c909d