المؤلفون: Helge Hebestreit, Anne-Marie Lapstich, Lilly Brandstetter, Christian Krauth, Jürgen Deckert, Kirsten Haas, Lisa Pfister, Stefanie Witt, Christopher Schippers, Jan Dieris-Hirche, Tim Maisch, Oliver Tüscher, Lavinia Bârlescu, Alexandra Berger, Mark Berneburg, Vanessa Britz, Anna Deibele, Holm Graeßner, Harald Gündel, Gereon Heuft, Thomas Lücke, Christine Mundlos, Julia Quitmann, Frank Rutsch, Katharina Schubert, Jörg Bernhard Schulz, Susann Schweiger, Cornelia Zeidler, Lena Zeltner, Martina de Zwaan, Federica Akkaya, Christine Babka, Lisa Bannert, Anja Bärsch-Michelmann, Leonie Böhm, Folke Brinkmann, Monika Bullinger, Holger Cario, Moritz de Greck, Klaus-Michael Debatin, Katrin Dillmann-Jehn, Jutta Eymann, Julia Frisch, Anja Glode, Vega Gödecke, Corinna Grasemann, Eva Grauer, Astrid Haas, Lea Haisch, Isabell, Heinrich, Melissa Held, Julia Hennermann, Stephan Herpertz, Anne Herrmann-Werner, Julian Hett, Peter Heuschmann, Bettina Hilbig, Laura Holthöfer, Christiane Imhof, Florian Junne, Jan Kassubek, Kevin-Thomas Koschitzki, Heike Krassort, Birgit Kropff, Julia Kuhn, Philipp Latzko, Thomas Loew, Albert C. Ludolph, Torsten Meyer, Isabell Meyer dos Santos, Klaus Mohnike, Martina Monninger, Martin Mücke, Susanne Müller, Thomas Musacchio, Margret Nießen, Mariel Nöhre, Stephan Ott, Andrea Petermann-Meyer, Christina Pfeifer-Duck, Lea-Sophie Piduhn, Carina Rampp, Olaf Rieß, Kristina Schaubert, Annika Schmidt, Simone Schneider, Ludger Schoels, Martina Schwalba, Udo Selig, Alexandra Sroka, Toni Steinbüchel, Sebastian Stösser, Steffi Suchant, Kathrin Ungethüm, Matthias Vogel, Daniela Volk, Christoph Vollmuth, Solange Volnov, Thomas O.F. Wagner, Sabrina Walter, Bodo Warrings, Kamil Zajt, Karola Zenker, David Zhang, Stephan Zipfel, Lavinia Aurelia Bârlescu, Julia Hannah Quitmann, Jörg B. Schulz, Lena Margarete Zeltner

المصدر: EClinicalMedicine, Vol 65, Iss , Pp 102260- (2023)

مصطلحات موضوعية: Rare diseases, Diagnostic services, Mental health, Patient care team, Medically unexplained symptoms, Medicine (General), R5-920

وصف الملف: electronic resource

Relation: http://www.sciencedirect.com/science/article/pii/S2589537023004376; https://doaj.org/toc/2589-5370

URL الوصول: https://doaj.org/article/7104fbd316dd40be90da99c4bb8c26c0

المؤلفون: Lea Lackner, Julia Hannah Quitmann, Stefanie Witt

المصدر: Frontiers in Endocrinology, Vol 14 (2023)

مصطلحات موضوعية: health-related quality of life, short stature, caregiving burden, children and parents, isolated growth hormone deficiency, idiopathic short stature, Diseases of the endocrine glands. Clinical endocrinology, RC648-665

وصف الملف: electronic resource

Relation: https://www.frontiersin.org/articles/10.3389/fendo.2023.1093983/full; https://doaj.org/toc/1664-2392

URL الوصول: https://doaj.org/article/afeb4a032b7349468e156e27cfa4f6ff

المؤلفون: Stefanie Witt, Michaela Dellenmark-Blom, Susanne Kuckuck, Jens Dingemann, Kate Abrahamsson, Carmen Dingemann, John Eric Chaplin, Benno Ure, Monika Bullinger, Vladimir Gatzinsky, Linus Jönsson, Julia Hannah Quitmann

المصدر: Orphanet Journal of Rare Diseases, Vol 16, Iss 1, Pp 1-12 (2021)

مصطلحات موضوعية: Esophageal atresia, Congenital malformation, Rare disease, Health-related quality of life, Parent–child agreement, Medicine

وصف الملف: electronic resource

Relation: https://doaj.org/toc/1750-1172

URL الوصول: https://doaj.org/article/20c6c6c6bfde4a4b9e87a5282f203255

المؤلفون: Julia Hannah Quitmann, Monika Bullinger, Rachel Sommer, Anja Christine Rohenkohl, Neuza Maria Bernardino Da Silva

المصدر: PLoS ONE, Vol 11, Iss 4, p e0153953 (2016)

مصطلحات موضوعية: Medicine, Science

وصف الملف: electronic resource

Relation: http://europepmc.org/articles/PMC4838264?pdf=render; https://doaj.org/toc/1932-6203

URL الوصول: https://doaj.org/article/878690aa245641af8e618cb781a08f4e

المؤلفون: Laura Rautmann, Stefanie Witt, Christoph Theiding, Birgit Odenwald, Uta Nennstiel-Ratzel, Helmuth-Günther Dörr, Julia Hannah Quitmann

المصدر: International Journal of Environmental Research and Public Health; Volume 20; Issue 5; Pages: 4493

مصطلحات موضوعية: congenital adrenal hyperplasia, 21-hydroxylase deficiency, newborn screening, psychological stress, parental needs, parental coping, rare disease

جغرافية الموضوع: agris

وصف الملف: application/pdf

Relation: Children's Health; https://dx.doi.org/10.3390/ijerph20054493

الاتاحة: https://doi.org/10.3390/ijerph20054493

المؤلفون: Anna Rozensztrauch, Robert Śmigiel, Dariusz Patkowski, Sylwester Gerus, Magdalena Kłaniewska, Julia Hannah Quitmann, Michaela Dellenmark-Blom

المصدر: International Journal of Environmental Research and Public Health, Vol 19, Iss 8047, p 8047 (2022)

مصطلحات موضوعية: quality of life, esophageal atresia, child, patient-reported outcome, Medicine

Relation: https://www.mdpi.com/1660-4601/19/13/8047; https://doaj.org/toc/1661-7827; https://doaj.org/toc/1660-4601; https://doaj.org/article/40199b06634f4e9c8d68d208d059a324

الاتاحة: https://doi.org/10.3390/ijerph19138047
https://doaj.org/article/40199b06634f4e9c8d68d208d059a324

المؤلفون: Stefanie Witt, Kaja Kristensen, Janika Blömeke, Helge Hebestreit, Maximilian Wocker, Lisa Pfister, Monika Bullinger, Oliver Tüscher, Jürgen Deckert, Holm Graessner, Anne-Marie Lapstich, Martina de Zwaan, Christine Mundlos, Julia Hannah Quitmann

المصدر: PPmP - Psychotherapie · Psychosomatik · Medizinische Psychologie. 73:9-15

مصطلحات موضوعية: Psychiatry and Mental health, Clinical Psychology, Applied Psychology

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_________::1b43fae4ace3a85a2208817bc8c85b4e
https://doi.org/10.1055/a-1814-3998

المؤلفون: Helge Hebestreit, Anne-Marie Lapstich, Lilly Brandstetter, Christian Krauth, Jürgen Deckert, Kirsten Haas, Lisa Pfister, Stefanie Witt, Christopher Schippers, Jan Dieris-Hirche, Tim Maisch, Oliver Tüscher, Lavinia Bârlescu, Alexandra Berger, Mark Berneburg, Vanessa Britz, Anna Deibele, Holm Graessner, Harald Gündel, Gereon Heuft, Thomas Lücke, Christine Mundlos, Julia Hannah Quitmann, Frank Rutsch, Katharina Schubert, Jörg B. Schulz, Susann Schweiger, Cornelia Zeidler, Lena Margarete Zeltner, Martina DeZwaan

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_________::df68cacc9586d61f513c8bfe70b5a586
https://doi.org/10.2139/ssrn.4404858

المؤلفون: Stefanie, Witt, Kaja, Kristensen, Janika, Blömeke, Helge, Hebestreit, Maximilian, Wocker, Lisa, Pfister, Monika, Bullinger, Oliver, Tüscher, Jürgen, Deckert, Holm, Graessner, Anne-Marie, Lapstich, Martina de, Zwaan, Christine, Mundlos, Julia Hannah, Quitmann

المصدر: Psychotherapie, Psychosomatik, medizinische Psychologie.

URL الوصول: https://explore.openaire.eu/search/publication?articleId=pmid________::3ee873e102711f9a56860a112dc605c5
https://pubmed.ncbi.nlm.nih.gov/35793670

المؤلفون: Marie Uecker, Benno Ure, Julia Hannah Quitmann, Jens Dingemann

المصدر: Innovative surgical sciences. 6(4)

مصطلحات موضوعية: Surgery

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::c780f4ec32cec7e8add2c4e3cd5d7a6d
https://pubmed.ncbi.nlm.nih.gov/35937850

المؤلفون: Stefanie Witt, Michaela Dellenmark-Blom, Susanne Kuckuck, Jens Dingemann, Kate Abrahamsson, Carmen Dingemann, John Eric Chaplin, Benno Ure, Monika Bullinger, Vladimir Gatzinsky, Linus Jönsson, Julia Hannah Quitmann

مصطلحات موضوعية: humanities

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::575d91b6ee5eb90d666db213c852d47a
https://doi.org/10.21203/rs.3.rs-98876/v1

المؤلفون: Cystinosis Research Network, Leben eben! Cystinose-Selbsthilfe e.V.

المساهمون: Julia Hannah Quitmann, Principal Investigator

المصدر: Development of a Patient-reported Outcome to Measure the Health-related Quality of Life of Children, Adolescents and Young Adults With Cystinosis.