المؤلفون: Anika Varma, Jennifer Weinstein, Jamison Seabury, Spencer Rosero, Nuran Dilek, John Heatwole, Charlotte Engebrecht, Shaweta Khosa, Kaitlin Chung, Asif Paker, Amy Woo, Gregory Brooks, Chan Beals, Rohan Gandhi, Chad Heatwole

المصدر: Orphanet Journal of Rare Diseases, Vol 19, Iss 1, Pp 1-22 (2024)

مصطلحات موضوعية: Adrenoleukodystrophy, Adrenomyeloneuropathy, Symptom, Disease burden, Qualitative research, Patient interview, Medicine

وصف الملف: electronic resource

Relation: https://doaj.org/toc/1750-1172

URL الوصول: https://doaj.org/article/b05f6dc5d6844e1eb9c2b11d419d422b

المؤلفون: Christine Zizzi, Jamison Seabury, Spencer Rosero, Danae Alexandrou, Ellen Wagner, Jennifer S. Weinstein, Anika Varma, Nuran Dilek, John Heatwole, Joanne Wuu, James Caress, Richard Bedlack, Volkan Granit, Jeffrey M. Statland, Paul Mehta, Michael Benatar, Chad Heatwole

المصدر: EClinicalMedicine, Vol 55, Iss , Pp 101768- (2023)

مصطلحات موضوعية: Amyotrophic lateral sclerosis, Patient-reported outcomes, PRISM, Disease burden, Motor neuron disease, Medicine (General), R5-920

وصف الملف: electronic resource

Relation: http://www.sciencedirect.com/science/article/pii/S2589537022004977; https://doaj.org/toc/2589-5370

URL الوصول: https://doaj.org/article/8588de4be3c14594b6b567d84d574240

المؤلفون: Jamison Seabury, Danae Alexandrou, Nuran Dilek, Brittany Cohen, John Heatwole, Jane Larkindale, David R. Lynch, Courtney Park, Spencer Rosero, Sub H. Subramony, Anika Varma, Ellen Wagner, Susan Walther, Jennifer Weinstein, McKenzie Wells, Christine Zizzi, Chad Heatwole

المصدر: Neurology

مصطلحات موضوعية: Neurology (clinical), Research Article

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::a0df1e01df7c43883e5c21de29decc1b
https://doi.org/10.1212/wnl.0000000000201598

المؤلفون: Olivia S, Brumfield, Christine E, Zizzi, Nuran, Dilek, Danae G, Alexandrou, Alistair M, Glidden, Spencer, Rosero, Jennifer, Weinstein, Jamison, Seabury, Aaron, Kaat, Michael P, McDermott, E Ray, Dorsey, Chad R, Heatwole

المصدر: Journal of Huntington's Disease. 11:217-226

مصطلحات موضوعية: Cellular and Molecular Neuroscience, Huntington Disease, Caregivers, Cost of Illness, Humans, Reproducibility of Results, Patient Reported Outcome Measures, Neurology (clinical)

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::5f6af8e021fddf373e347c51091875a2
https://doi.org/10.3233/jhd-210506

المؤلفون: Anika Varma, Jennifer Weinstein, Jamison Seabury, Spencer Rosero, Nuran Dilek, John Heatwole, Charlotte Engebrecht, Shaweta Khosa, Kaitlin Chung, Asif Paker, Amy Woo, Gregory Brooks, Chan Beals, Rohan Gandhi, Chad Heatwole

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_________::0ff9e97c5ddb75955bb72f0c0212cf7d
https://doi.org/10.21203/rs.3.rs-2856459/v1

المؤلفون: Spencer Rosero, Jennifer Weinstein, Jamison Seabury, Christine Zizzi, Ellen Wagner, Anika Varma, John Heatwole, Danae Alexandrou, Nuran Dilek MS, Brent A. Johnson, Chad Heatwole

المصدر: Journal of child neurology.

مصطلحات موضوعية: Pediatrics, Perinatology and Child Health, Neurology (clinical)

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::ed27a8358350b0ff49cb9af3658423e6
https://pubmed.ncbi.nlm.nih.gov/36537125

المؤلفون: Jamison Seabury, Abigail Arky, Megan Ayles, Nuran Dilek, Margaret Hance, Spencer Rosero, Elizabeth Santos, Jennifer Weinstein, Anika Varma, Chad Heatwole

المصدر: Alzheimer's & Dementia. 18

مصطلحات موضوعية: Psychiatry and Mental health, Cellular and Molecular Neuroscience, Developmental Neuroscience, Epidemiology, Health Policy, Neurology (clinical), Geriatrics and Gerontology

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_________::7d7261f0d4c8e9ff578e34aec77c9b42
https://doi.org/10.1002/alz.068858

المؤلفون: Spencer Rosero, Anika Varma, Jamison Seabury, Jennifer Weinstein, Ellen Wagner, Christine Zizzi, Charlotte Engebrecht, Aaron Kaat, Elizabeth Luebbe, Nuran Dilek, John Heatwole, Lawrence Saubermann, Larissa Temple, Scott Rogoff, Chad Heatwole

المصدر: Inflammatory Bowel Diseases. 29:S74-S75

مصطلحات موضوعية: Hepatology, Gastroenterology, Immunology and Allergy

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::399e40c237bf534f894011778e0e3b19
https://doi.org/10.1093/ibd/izac247.143

المؤلفون: Christine Zizzi, Jamison Seabury, Spencer Rosero, Danae Alexandrou, Ellen Wagner, Jennifer S. Weinstein, Anika Varma, Nuran Dilek, John Heatwole, Joanne Wuu, James Caress, Richard Bedlack, Volkan Granit, Jeffrey M. Statland, Paul Mehta, Michael Benatar, Chad Heatwole

المصدر: EClinicalMedicine. 55

مصطلحات موضوعية: General Medicine

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::d7b30d39a665fa5c3d88afc19ff475d6
https://pubmed.ncbi.nlm.nih.gov/36531982

المؤلفون: Anika Varma, Jennifer Weinstein, Jamison Seabury, Spencer Rosero, Ellen Wagner, Christine Zizzi, Elizabeth Luebbe, Nuran Dilek, Michael McDermott, John Heatwole, Lawrence Saubermann, Larissa Temple, Scott Rogoff, Chad Heatwole

المصدر: The American journal of gastroenterology. 117(12)

مصطلحات موضوعية: Adult, Cross-Sectional Studies, Hepatology, Crohn Disease, Gastroenterology, Humans, Patient Reported Outcome Measures, Disorders of Excessive Somnolence, Fatigue

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::54994727764a6f416398da18ec08a3e0
https://pubmed.ncbi.nlm.nih.gov/36375002

المؤلفون: Anika Varma, Spencer Rosero, Jamison Seabury, Jennifer Weinstein, Charlotte Engebrecht, Christine Zizzi, Nuran Dilek, John Heatwole, Megan Baumgart, Deborah Mulford, Ronald Maggiore, Lainie Conrow, Jennifer King, Jacinta Wiens, Chad Heatwole

المصدر: Cancer Research. 83:4383-4383

مصطلحات موضوعية: Cancer Research, Oncology

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_________::5c8f2516faed4975b79b3b5ebca3424c
https://doi.org/10.1158/1538-7445.am2023-4383

المؤلفون: Spencer Rosero (13921428), Jennifer Weinstein (14286817), Jamison Seabury (14286820), Christine Zizzi (14286823), Ellen Wagner (11932497), Anika Varma (14286826), John Heatwole (14286829), Danae Alexandrou (14286832), Nuran Dilek MS (14286835), Brent A. Johnson (7538213), Chad Heatwole (8828888)

مصطلحات موضوعية: Neuroscience, Neurology and Neuromuscular Diseases, Paediatrics, average impact, population impact, spinal muscular atrophy, spinal muscular atrophy health index, symptom prevalence

Relation: https://figshare.com/articles/journal_contribution/sj-docx-2-jcn-10_1177_08830738221135918_-_Supplemental_material_for_Disease_Burden_in_Children_With_Spinal_Muscular_Atrophy_Results_From_a_Large_Cross-Sectional_Study/21761290

الاتاحة: https://doi.org/10.25384/sage.21761290.v1

المؤلفون: Spencer Rosero (13921428), Jennifer Weinstein (14286817), Jamison Seabury (14286820), Christine Zizzi (14286823), Ellen Wagner (11932497), Anika Varma (14286826), John Heatwole (14286829), Danae Alexandrou (14286832), Nuran Dilek MS (14286835), Brent A. Johnson (7538213), Chad Heatwole (8828888)

مصطلحات موضوعية: Neuroscience, Neurology and Neuromuscular Diseases, Paediatrics, average impact, population impact, spinal muscular atrophy, spinal muscular atrophy health index, symptom prevalence

Relation: https://figshare.com/articles/journal_contribution/sj-pdf-1-jcn-10_1177_08830738221135918_-_Supplemental_material_for_Disease_Burden_in_Children_With_Spinal_Muscular_Atrophy_Results_From_a_Large_Cross-Sectional_Study/21761287

الاتاحة: https://doi.org/10.25384/sage.21761287.v1

المؤلفون: Anika Varma, Jennifer Weinstein, Jamison Seabury, Spencer Rosero, Christine Zizzi, Nuran Dilek, John Heatwole, Megan Baumgart, Deborah Mulford, Ronald Maggiore, Lainie Conrow, Jennifer King, Jacinta Wiens, Chad Heatwole

المصدر: SSRN Electronic Journal.

مصطلحات موضوعية: History, Polymers and Plastics, Business and International Management, Industrial and Manufacturing Engineering

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::404b54818cc7faf4c84dd249c426688f
https://doi.org/10.2139/ssrn.4121727

المؤلفون: Jamison Seabury, Jennifer Weinstein, Spencer Rosero, Anika Varma, Ellen Wagner, Christine Zizzi, Nuran Dilek, Michael McDermott, Aaron Kaat, Lawrence Saubermann, Larissa Temple, Scott Rogoff, Chad Heatwole

المصدر: American Journal of Gastroenterology. 117:817-817

مصطلحات موضوعية: Hepatology, Gastroenterology

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_________::31a51e7058a85bfef383993bf2d9dab1
https://doi.org/10.14309/ajg.0000000000001679

المؤلفون: Jamison Seabury, Jennifer Weinstein, Spencer Rosero, Anika Varma, Ellen Wagner, Christine Zizzi, Nuran Dilek, Michael McDermott, Aaron Kaat, Lawrence Saubermann, Larissa Temple, Scott Rogoff, Chad Heatwole, Zach Rose

المصدر: Inflammatory Bowel Diseases. 28:S73-S73

مصطلحات موضوعية: Hepatology, Gastroenterology, Immunology and Allergy

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::6aa1d05b0c11abf9fde038f8ab1ad23c
https://doi.org/10.1093/ibd/izac015.118

المؤلفون: Aaron Kaat, Larissa K. Temple, Ellen Wagner, Christine E. Zizzi, Michael P. McDermott, Jennifer Weinstein, Jamison Seabury, Chad Heatwole, Spencer Rosero, Scott Rogoff, Lawrence J. Saubermann, Nuran Dilek

المصدر: Gastroenterology. 160:S18

مصطلحات موضوعية: medicine.medical_specialty, Crohn's disease, Hepatology, business.industry, Cross-sectional study, Gastroenterology, medicine.disease, Inflammatory bowel disease, Patient Self-Report, Internal medicine, medicine, Immunology and Allergy, Defecation, Colitis, business, Irritable bowel syndrome, Disease burden

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::36107c41cb64245271836cbb52842293
https://doi.org/10.1053/j.gastro.2021.01.072