المؤلفون: Graeden, Ellie, Rosado, David, Stevens, Tess, Knodel, Mallory, Hendricks-Sturrup, Rachele, Reiskind, Andrew, Bennett, Ashley, Leitner, John, Lekas, Paul, DeMooy, Michelle

مصطلحات موضوعية: Computer Science - Computers and Society

URL الوصول: http://arxiv.org/abs/2308.12955

المؤلفون: Rehm, Heidi L, Page, Angela JH, Smith, Lindsay, Adams, Jeremy B, Alterovitz, Gil, Babb, Lawrence J, Barkley, Maxmillian P, Baudis, Michael, Beauvais, Michael JS, Beck, Tim, Beckmann, Jacques S, Beltran, Sergi, Bernick, David, Bernier, Alexander, Bonfield, James K, Boughtwood, Tiffany F, Bourque, Guillaume, Bowers, Sarion R, Brookes, Anthony J, Brudno, Michael, Brush, Matthew H, Bujold, David, Burdett, Tony, Buske, Orion J, Cabili, Moran N, Cameron, Daniel L, Carroll, Robert J, Casas-Silva, Esmeralda, Chakravarty, Debyani, Chaudhari, Bimal P, Chen, Shu Hui, Cherry, J Michael, Chung, Justina, Cline, Melissa, Clissold, Hayley L, Cook-Deegan, Robert M, Courtot, Mélanie, Cunningham, Fiona, Cupak, Miro, Davies, Robert M, Denisko, Danielle, Doerr, Megan J, Dolman, Lena I, Dove, Edward S, Dursi, L Jonathan, Dyke, Stephanie OM, Eddy, James A, Eilbeck, Karen, Ellrott, Kyle P, Fairley, Susan, Fakhro, Khalid A, Firth, Helen V, Fitzsimons, Michael S, Fiume, Marc, Flicek, Paul, Fore, Ian M, Freeberg, Mallory A, Freimuth, Robert R, Fromont, Lauren A, Fuerth, Jonathan, Gaff, Clara L, Gan, Weiniu, Ghanaim, Elena M, Glazer, David, Green, Robert C, Griffith, Malachi, Griffith, Obi L, Grossman, Robert L, Groza, Tudor, Auvil, Jaime M Guidry, Guigó, Roderic, Gupta, Dipayan, Haendel, Melissa A, Hamosh, Ada, Hansen, David P, Hart, Reece K, Hartley, Dean Mitchell, Haussler, David, Hendricks-Sturrup, Rachele M, Ho, Calvin WL, Hobb, Ashley E, Hoffman, Michael M, Hofmann, Oliver M, Holub, Petr, Hsu, Jacob Shujui, Hubaux, Jean-Pierre, Hunt, Sarah E, Husami, Ammar, Jacobsen, Julius O, Jamuar, Saumya S, Janes, Elizabeth L, Jeanson, Francis, Jené, Aina, Johns, Amber L, Joly, Yann, Jones, Steven JM, Kanitz, Alexander, Kato, Kazuto, Keane, Thomas M, Kekesi-Lafrance, Kristina

المصدر: Cell Genomics. 1(2)

مصطلحات موضوعية: Biological Sciences, Genetics, Biotechnology, Human Genome, 8.3 Policy, ethics, and research governance, Generic health relevance, Good Health and Well Being

وصف الملف: application/pdf

URL الوصول: https://escholarship.org/uc/item/6hn3v1t6
https://escholarship.org/content/qt6hn3v1t6/qt6hn3v1t6.pdf

المؤلفون: Ambrose, Nalini, Amin, Alpesh N., Anderson, Brian, Aten, Adam, Canter, Brian, Chow, Daniel, D’Ambrosio, Matthew, Danan, Risa, Drews, Ashley L., Gaspar, Fraser W., Hendricks-Sturrup, Rachele, O’Horo, John, Razonable, Raymund R., Roberts, Seth, Shepard, Colin, Vahidy, Farhaan, Webb, Brandon, Yttri, Jennifer

المصدر: Data & Policy ; volume 6 ; ISSN 2632-3249

الاتاحة: https://doi.org/10.1017/dap.2024.77
https://www.cambridge.org/core/services/aop-cambridge-core/content/view/S2632324924000774

المؤلفون: Hendricks-Sturrup, Rachele M., Lu, Christine Y.

المصدر: Journal of Clinical and Translational Science ; volume 8 ; ISSN 2059-8661

الاتاحة: https://doi.org/10.1017/cts.2024.652
https://www.cambridge.org/core/services/aop-cambridge-core/content/view/S2059866124006526

المؤلفون: Hendricks-Sturrup, Rachele M, Yankah, Sandra E, Lu, Christine Y

المصدر: Health Affairs Scholar ; volume 2, issue 4 ; ISSN 2976-5390

الاتاحة: http://dx.doi.org/10.1093/haschl/qxae046
https://academic.oup.com/healthaffairsscholar/advance-article-pdf/doi/10.1093/haschl/qxae046/57223781/qxae046.pdf
https://academic.oup.com/healthaffairsscholar/article-pdf/2/4/qxae046/57354454/qxae046.pdf

المؤلفون: D’Ambrosio, Matt, Locke, Trevan, Hendricks-Sturrup, Rachele

المصدر: Journal of Public Health Management & Practice ; volume 30, issue 4, page E157-E160 ; ISSN 1078-4659 1550-5022

الاتاحة: http://dx.doi.org/10.1097/phh.0000000000001975
https://journals.lww.com/10.1097/PHH.0000000000001975

المؤلفون: HENDRICKS-STURRUP, RACHELE, JORDAN, SARA

المصدر: Health and Human Rights, 2021 Dec 01. 23(2), 269-270.

URL الوصول: https://www.jstor.org/stable/48636271

المؤلفون: Collins, Benjamin X, Bélisle-Pipon, Jean-Christophe, Evans, Barbara J, Ferryman, Kadija, Jiang, Xiaoqian, Nebeker, Camille, Novak, Laurie, Roberts, Kirk, Were, Martin, Yin, Zhijun, Ravitsky, Vardit, Coco, Joseph, Hendricks-Sturrup, Rachele, Williams, Ishan, Clayton, Ellen W, Malin, Bradley A, Group, Bridge2AI Ethics and Trustworthy AI Working

المصدر: JAMIA Open; Dec2024, Vol. 7 Issue 4, p1-9, 9p

المؤلفون: Skantharajah, Neerjah, Baichoo, Shakuntala, Boughtwood, Tiffany F., Casas-Silva, Esmeralda, Chandrasekharan, Subhashini, Dave, Sanjay M., Fakhro, Khalid A., Falcon de Vargas, Aida B, Gayle, Sylvia S., Gupta, Vivek K., Hendricks-Sturrup, Rachele, Hobb, Ashley E., Li, Stephanie, Llamas, Bastien, Lopez-Correa, Catalina, Machirori, Mavis, Melendez-Zajgla, Jorge, Millner, Mareike A., Page, Angela J.H., Paglione, Laura D., Raven-Adams, Maili C., Smith, Lindsay, Thomas, Ericka M., Kumuthini, Judit, Corpas, Manuel

مصطلحات موضوعية: GA4GH, diversity, EDI, community, equity, genomics, inclusion

وصف الملف: application/pdf

Relation: https://westminsterresearch.westminster.ac.uk/download/48c5d954b402ad5139db837ce5d3c98cbbd18dd6130f2091aefb6e3652b4e8c6/2160391/1-s2.0-S2666979X23001830-main.pdf; https://doi.org/10.1016/j.xgen.2023.100386; Skantharajah, Neerjah, Baichoo, Shakuntala, Boughtwood, Tiffany F., Casas-Silva, Esmeralda, Chandrasekharan, Subhashini, Dave, Sanjay M., Fakhro, Khalid A., Falcon de Vargas, Aida B, Gayle, Sylvia S., Gupta, Vivek K., Hendricks-Sturrup, Rachele, Hobb, Ashley E., Li, Stephanie, Llamas, Bastien, Lopez-Correa, Catalina, Machirori, Mavis, Melendez-Zajgla, Jorge, Millner, Mareike A., Page, Angela J.H., Paglione, Laura D., Raven-Adams, Maili C., Smith, Lindsay, Thomas, Ericka M., Kumuthini, Judit and Corpas, Manuel 2023. Equity, diversity, and inclusion at the Global Alliance for Genomics and Health. Cell genomics. 3 (10) 100386. https://doi.org/10.1016/j.xgen.2023.100386

الاتاحة: https://westminsterresearch.westminster.ac.uk/item/w6vy5/equity-diversity-and-inclusion-at-the-global-alliance-for-genomics-and-health
https://doi.org/10.1016/j.xgen.2023.100386

المؤلفون: Clayton, Ellen W., Hendricks-Sturrup, Rachele, Anders, Shilo, al., et

المصدر: Vanderbilt Law School Faculty Publications

مصطلحات موضوعية: artificial intelligence, AI, Delphi, disparities, engagement, ethics, health disparities, Computer Law, Health Law and Policy, Law

وصف الملف: application/pdf

Relation: https://scholarship.law.vanderbilt.edu/faculty-publications/1530; https://scholarship.law.vanderbilt.edu/context/faculty-publications/article/2568/viewcontent/Developing_Ethics_and_Equity_Principles__Terms_and_Engagement_Tools.pdf

الاتاحة: https://scholarship.law.vanderbilt.edu/faculty-publications/1530
https://scholarship.law.vanderbilt.edu/context/faculty-publications/article/2568/viewcontent/Developing_Ethics_and_Equity_Principles__Terms_and_Engagement_Tools.pdf

المؤلفون: Hendricks-Sturrup, Rachele, Lu, Christine Y.

المصدر: Interdisciplinary Health Studies Open Access Publications

مصطلحات موضوعية: abortion, digital data, digital footprint, family planning, privacy, reproductive health, reproductive informatics, research, women's health

وصف الملف: text/html

Relation: https://ohioopen.library.ohio.edu/health-studies-oapub/3; https://doi.org/10.2196/41937

الاتاحة: https://ohioopen.library.ohio.edu/health-studies-oapub/3
https://doi.org/10.2196/41937

المؤلفون: Hendricks-Sturrup, Rachele M., Lu, Christine Y.

المصدر: Interdisciplinary Health Studies Open Access Publications

مصطلحات موضوعية: engagement, Privacy, real-world data, real-world evidence, ResearchMatch

وصف الملف: text/html

Relation: https://ohioopen.library.ohio.edu/health-studies-oapub/1; https://doi.org/10.1017/cts.2023.4

الاتاحة: https://ohioopen.library.ohio.edu/health-studies-oapub/1
https://doi.org/10.1017/cts.2023.4

المؤلفون: Hendricks-Sturrup, Rachele M, Emmott, Nora, Nafie, Maryam, Edgar, Lauren, Johnson-Glover, Tracey, Christensen, Kurt D, Argetsinger, Stephanie, Lu, Christine Y

المساهمون: National Institutes of Health

المصدر: Health Affairs Scholar ; volume 1, issue 6 ; ISSN 2976-5390

الاتاحة: http://dx.doi.org/10.1093/haschl/qxad066
https://academic.oup.com/healthaffairsscholar/advance-article-pdf/doi/10.1093/haschl/qxad066/54347319/qxad066.pdf
https://academic.oup.com/healthaffairsscholar/article-pdf/1/6/qxad066/54679391/qxad066.pdf

المؤلفون: Hendricks-Sturrup, Rachele M., Edgar, Lauren M., Lu, Christine Y.

المصدر: Frontiers in Pharmacology ; volume 14 ; ISSN 1663-9812

الاتاحة: http://dx.doi.org/10.3389/fphar.2023.1276396
https://www.frontiersin.org/articles/10.3389/fphar.2023.1276396/full

المؤلفون: Hendricks-Sturrup, Rachele M., Yankah, Sandra E., Lu, Christine Y.

المصدر: Frontiers in Genetics; 2024, p1-5, 5p

مصطلحات موضوعية: GENOME-wide association studies, SOCIAL determinants of health, GENOTYPE-environment interaction, ELECTRONIC health records, NATURE & nurture

المؤلفون: Hendricks-Sturrup, Rachele M., Mazor, Kathleen M., Sturm, Amy C., Lu, Christine Y.

المساهمون: Meyers Primary Care Institute, Department of Medicine

المصدر: Journal of personalized medicine ; 9 ; 3 ; 32

مصطلحات موضوعية: barriers and facilitators, familial hypercholesterolemia, genetic testing, genomic medicine, implementation framework, Analytical, Diagnostic and Therapeutic Techniques and Equipment, Cardiovascular Diseases, Congenital, Hereditary, and Neonatal Diseases and Abnormalities, Diagnosis, Genetics and Genomics, Health Services Administration, Health Services Research, Medical Genetics

Relation: Link to Article in PubMed; J Pers Med. 2019 Jul 1;9(3). pii: jpm9030032. doi:10.3390/jpm9030032. Link to article on publisher's site; 2075-4426 (Linking); http://hdl.handle.net/20.500.14038/41132; https://escholarship.umassmed.edu/cgi/viewcontent.cgi?article=4937&context=oapubs&unstamped=1; https://escholarship.umassmed.edu/oapubs/3921; oapubs/3921

الاتاحة: https://doi.org/10.3390/jpm9030032
https://hdl.handle.net/20.500.14038/41132
https://escholarship.umassmed.edu/cgi/viewcontent.cgi?article=4937&context=oapubs&unstamped=1
https://escholarship.umassmed.edu/oapubs/3921

المؤلفون: Rehm, Heidi L, Page, Angela JH, Smith, Lindsay, Adams, Jeremy B, Alterovitz, Gil, Babb, Lawrence J, Barkley, Maxmillian P, Baudis, Michael, Beauvais, Michael JS, Beck, Tim, Beckmann, Jacques S, Beltran, Sergi, Bernick, David, Bernier, Alexander, Bonfield, James K, Boughtwood, Tiffany F, Bourque, Guillaume, Bowers, Sarion R, Brookes, Anthony J, Brudno, Michael, Brush, Matthew H, Bujold, David, Burdett, Tony, Buske, Orion J, Cabili, Moran N, Cameron, Daniel L, Carroll, Robert J, Casas-Silva, Esmeralda, Chakravarty, Debyani, Chaudhari, Bimal P, Chen, Shu Hui, Cherry, J Michael, Chung, Justina, Cline, Melissa, Clissold, Hayley L, Cook-Deegan, Robert M, Courtot, Mélanie, Cunningham, Fiona, Cupak, Miro, Davies, Robert M, Denisko, Danielle, Doerr, Megan J, Dolman, Lena I, Dove, Edward S, Dursi, L Jonathan, Dyke, Stephanie OM, Eddy, James A, Eilbeck, Karen, Ellrott, Kyle P, Fairley, Susan, Fakhro, Khalid A, Firth, Helen V, Fitzsimons, Michael S, Fiume, Marc, Flicek, Paul, Fore, Ian M, Freeberg, Mallory A, Freimuth, Robert R, Fromont, Lauren A, Fuerth, Jonathan, Gaff, Clara L, Gan, Weiniu, Ghanaim, Elena M, Glazer, David, Green, Robert C, Griffith, Malachi, Griffith, Obi L, Grossman, Robert L, Groza, Tudor, Guidry Auvil, Jaime M, Guigó, Roderic, Gupta, Dipayan, Haendel, Melissa A, Hamosh, Ada, Hansen, David P, Hart, Reece K, Hartley, Dean Mitchell, Haussler, David, Hendricks-Sturrup, Rachele M, Ho, Calvin WL, Hobb, Ashley E, Hoffman, Michael M, Hofmann, Oliver M, Holub, Petr, Hsu, Jacob Shujui, Hubaux, Jean-Pierre, Hunt, Sarah E, Husami, Ammar, Jacobsen, Julius O, Jamuar, Saumya S, Janes, Elizabeth L, Jeanson, Francis, Jené, Aina, Johns, Amber L, Joly, Yann, Jones, Steven JM, Kanitz, Alexander, Kato, Kazuto, Keane, Thomas M, Kekesi-Lafrance, Kristina, Kelleher, Jerome, Kerry, Giselle, Khor, Seik-Soon, Knoppers, Bartha M, Konopko, Melissa A, Kosaki, Kenjiro, Kuba, Martin, Lawson, Jonathan, Leinonen, Rasko, Li, Stephanie, Lin, Michael F, Linden, Mikael, Liu, Xianglin, Udara Liyanage, Isuru, Lopez, Javier, Lucassen, Anneke M, Lukowski, Michael, Mann, Alice L, Marshall, John, Mattioni, Michele, Metke-Jimenez, Alejandro, Middleton, Anna, Milne, Richard J, Molnár-Gábor, Fruzsina, Mulder, Nicola, Munoz-Torres, Monica C, Nag, Rishi, Nakagawa, Hidewaki, Nasir, Jamal, Navarro, Arcadi, Nelson, Tristan H, Niewielska, Ania, Nisselle, Amy, Niu, Jeffrey, Nyrönen, Tommi H, O'Connor, Brian D, Oesterle, Sabine, Ogishima, Soichi, Wang, Vivian Ota, Paglione, Laura AD, Palumbo, Emilio, Parkinson, Helen E, Philippakis, Anthony A, Pizarro, Angel D, Prlic, Andreas, Rambla, Jordi, Rendon, Augusto, Rider, Renee A, Robinson, Peter N, Rodarmer, Kurt W, Rodriguez, Laura Lyman, Rubin, Alan F, Rueda, Manuel, Rushton, Gregory A, Ryan, Rosalyn S, Saunders, Gary I, Schuilenburg, Helen, Schwede, Torsten, Scollen, Serena, Senf, Alexander, Sheffield, Nathan C, Skantharajah, Neerjah, Smith, Albert V, Sofia, Heidi J, Spalding, Dylan, Spurdle, Amanda B, Stark, Zornitza, Stein, Lincoln D, Suematsu, Makoto, Tan, Patrick, Tedds, Jonathan A, Thomson, Alastair A, Thorogood, Adrian, Tickle, Timothy L, Tokunaga, Katsushi, Törnroos, Juha, Torrents, David, Upchurch, Sean, Valencia, Alfonso, Guimera, Roman Valls, Vamathevan, Jessica, Varma, Susheel, Vears, Danya F, Viner, Coby, Voisin, Craig, Wagner, Alex H, Wallace, Susan E, Walsh, Brian P, Williams, Marc S, Winkler, Eva C, Wold, Barbara J, Wood, Grant M, Woolley, J Patrick, Yamasaki, Chisato, Yates, Andrew D, Yung, Christina K, Zass, Lyndon J, Zaytseva, Ksenia, Zhang, Junjun, Goodhand, Peter, North, Kathryn, Birney, Ewan

المصدر: nlmid: 9918284260106676 ; essn: 2666-979X

مصطلحات موضوعية: 31 Biological Sciences, 3105 Genetics, Biotechnology, Genetics, Human Genome, 8.3 Policy, ethics, and research governance, Generic health relevance, 3 Good Health and Well Being

وصف الملف: application/pdf

Relation: https://www.repository.cam.ac.uk/handle/1810/334447

الاتاحة: https://www.repository.cam.ac.uk/handle/1810/334447
https://doi.org/10.17863/CAM.81862

المؤلفون: Hendricks-Sturrup, Rachele M., Zhang, Fang, Lu, Christine Y.

المصدر: Interdisciplinary Health Studies Open Access Publications

مصطلحات موضوعية: personalized medicine, precision medicine, privacy, real-world data, real-world evidence, research

وصف الملف: text/html

Relation: https://ohioopen.library.ohio.edu/health-studies-oapub/4; https://doi.org/10.3390/jpm12111922

الاتاحة: https://ohioopen.library.ohio.edu/health-studies-oapub/4
https://doi.org/10.3390/jpm12111922

المؤلفون: Merola, David, Campbell, Ulka, Gautam, Nileesa, Rubens, Alexa, Schneeweiss, Sebastian, Wang, Shirley V., Carrigan, Gillis, Chia, Victoria, Ovbiosa, Osayi E., Pinheiro, Simone, Bruno, Amanda, Jiao, Xiaolong, Stewart, Mark, Hendricks‐Sturrup, Rachele, Rodriguez‐Watson, Carla, Khosla, Sajan, Zhang, Yiduo, Rimawi, Mothaffar, Huang, Jenny, Taylor, Aliki, Becnel, Lauren, McRoy, Lynn, Eckert, Joy, Taylor, Benjamin

المصدر: Clinical Pharmacology & Therapeutics ; volume 113, issue 6, page 1217-1222 ; ISSN 0009-9236 1532-6535

الاتاحة: http://dx.doi.org/10.1002/cpt.2800
https://onlinelibrary.wiley.com/doi/pdf/10.1002/cpt.2800
https://onlinelibrary.wiley.com/doi/full-xml/10.1002/cpt.2800
https://ascpt.onlinelibrary.wiley.com/doi/pdf/10.1002/cpt.2800

المؤلفون: Tanner, Clare, Strzyzykowski, Trevor, Mannor, Kara, Hendricks-Sturrup, Rachele

المصدر: Journal of Public Health Management and Practice ; volume 28, issue Supplement 4, page S171-S178 ; ISSN 1078-4659

الاتاحة: http://dx.doi.org/10.1097/phh.0000000000001460
https://journals.lww.com/10.1097/PHH.0000000000001460