المؤلفون: Eva S. L. Pedersen, Leonie D. Schreck, Myrofora Goutaki, Sara Bellu, Fiona Copeland, Jane S. Lucas, Marcel Zwahlen, Claudia E. Kuehni

المصدر: International Journal of Public Health, Vol 68 (2023)

مصطلحات موضوعية: pandemic, chronic lung disease, rare disease, incidence, longitudinal, Public aspects of medicine, RA1-1270

وصف الملف: electronic resource

Relation: https://www.ssph-journal.org/articles/10.3389/ijph.2023.1605561/full; https://doaj.org/toc/1661-8564

URL الوصول: https://doaj.org/article/a741b76d83294a348d8d195eee4445ac

المؤلفون: Judy Martina Bradley, Rohan Anand, Brenda O’Neill, Kathryn Ferguson, Mike Clarke, Mary Carroll, James Chalmers, Anthony De Soyza, Jamie Duckers, Adam T. Hill, Michael R. Loebinger, Fiona Copeland, Evie Gardner, Christina Campbell, Ashley Agus, Alistair McGuire, Roisin Boyle, Fionnuala McKinney, Naomi Dickson, Danny F. McAuley, Stuart Elborn, On behalf of the CLEAR study group

المصدر: Trials, Vol 20, Iss 1, Pp 1-10 (2019)

مصطلحات موضوعية: Clinical trial protocol, Factorial design, Bronchiectasis, Hypertonic saline, Carbocisteine, Exacerbation, Medicine (General), R5-920

وصف الملف: electronic resource

Relation: https://doaj.org/toc/1745-6215

URL الوصول: https://doaj.org/article/c49520ad5c074eff891fd880d76a7061

المؤلفون: Eva S.L. Pedersen, Eugénie N.R. Collaud, Rebeca Mozun, Cristina Ardura-Garcia, Yin Ting Lam, Amanda Harris, Jane S. Lucas, Fiona Copeland, Michele Manion, Bernhard Rindlisbacher, Hansruedi Silberschmidt, Myrofora Goutaki, Claudia E. Kuehni

المصدر: ERJ Open Research, Vol 7, Iss 1 (2021)

مصطلحات موضوعية: Medicine

وصف الملف: electronic resource

Relation: http://openres.ersjournals.com/content/7/1/00843-2020.full; https://doaj.org/toc/2312-0541

URL الوصول: https://doaj.org/article/689388a382d74ad0b62d83d212e8d777

المؤلفون: Eva S. L. Pedersen, Maria Christina Mallet, Yin Ting Lam, Sara Bellu, Isabelle Cizeau, Fiona Copeland, Trini Lopez Fernandez, Michele Manion, Amanda L. Harris, Jane S. Lucas, Francesca Santamaria, Myrofora Goutaki, Claudia E. Kuehni, COVID-PCD Patient Advisory Group

المصدر: Vaccines, Vol 9, Iss 12, p 1496 (2021)

مصطلحات موضوعية: SARS-CoV-2, COVID-19, PCD, primary ciliary dyskinesia, vaccine, vaccinations, Medicine

وصف الملف: electronic resource

Relation: https://www.mdpi.com/2076-393X/9/12/1496; https://doaj.org/toc/2076-393X

URL الوصول: https://doaj.org/article/7fa7ee386e5c4bb785d947e006c5e3a4

المؤلفون: Corine Driessens, Siobhan Carr, Edel Clough, Fiona Copeland, Sharon Dell, Lucy Dixon, Amanda Harris, Rebecca Knibb, Margaret Leigh, Manjith Narayanan, Beatrice Redfern, Evie Robson, Michael Sawras, Lynne Schofield, Kelli Sullivan, Myra Tipping, Nhu Tran, Woolf Walker, Jane S. Lucas, Laura Behan

المصدر: Journal of Clinical Medicine; Volume 11; Issue 16; Pages: 4774

مصطلحات موضوعية: primary ciliary dyskinesia, diagnosis, caregiver burden, chronic illness, preschool, COVID-19, quality of life

وصف الملف: application/pdf

Relation: Pulmonology; https://dx.doi.org/10.3390/jcm11164774

الاتاحة: https://doi.org/10.3390/jcm11164774

المؤلفون: Sara Bellu, Trini Lopez Fernandez, Jane S. Lucas, Yin Ting Lam, Fiona Copeland, Isabelle Cizeau, Eva S.L. Pedersen, Michele Manion, Amanda Harris, Maria Christina Mallet, Claudia E. Kuehni, Francesca Santamaria, Myrofora Goutaki

المصدر: Vaccines, Vol 9, Iss 1496, p 1496 (2021)

مصطلحات موضوعية: medicine.medical_specialty, Coronavirus disease 2019 (COVID-19), media_common.quotation_subject, Severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2), primary ciliary dyskinesia, vaccinations, Disease, 03 medical and health sciences, 0302 clinical medicine, vaccine, Perception, medicine, 030212 general & internal medicine, media_common, Primary ciliary dyskinesia, SARS-CoV-2, business.industry, COVID-19, PCD, medicine.disease, 3. Good health, Vaccination, 030228 respiratory system, Family medicine, Medicine, Population study, business, Cohort study

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::d8a18072c8863763ad624f18699624af
https://doi.org/10.1101/2021.11.08.21266047

المؤلفون: Amelia Shoemark, Bruna Rubbo, Claire Hogg, Joseph Hayes, Fiona Copeland, Jane S. Lucas, Emily Frost, Robert A. Hirst, Isabel C. Reading, James Thompson, Christopher O'Callaghan, Claire L. Jackson

المصدر: Chest. 155:1008-1017

مصطلحات موضوعية: Pulmonary and Respiratory Medicine, medicine.medical_specialty, Interobserver reliability, Air liquid interface, business.industry, Diagnostic test, Diagnostic accuracy, Video microscopy, Critical Care and Intensive Care Medicine, medicine.disease, Multidisciplinary team, 03 medical and health sciences, 0302 clinical medicine, High speed video, 030228 respiratory system, otorhinolaryngologic diseases, medicine, 030212 general & internal medicine, Radiology, Cardiology and Cardiovascular Medicine, business, Primary ciliary dyskinesia

وصف الملف: text

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::80a0e83e036c21d79fea0f734370ec41
https://doi.org/10.1016/j.chest.2019.01.036

المؤلفون: Rebecca Roach, Danielle Callow, Laura Cunningham, Kim Bulman, Fiona Copeland, Seanne Wilmot, Sally Brett, J Krupa, Wendy Ellis, Tina Harvey, Monika Moranska, N Martin, Damian Milton

المصدر: Advances in Autism. 5:131-140

مصطلحات موضوعية: 030506 rehabilitation, Medical education, Cognitive Neuroscience, 05 social sciences, Perspective (graphical), Audit, medicine.disease, Project team, Insider, 03 medical and health sciences, Psychiatry and Mental health, Resource (project management), Alliance, Neurology, ComputingMilieux_COMPUTERSANDEDUCATION, Developmental and Educational Psychology, medicine, Mainstream, Autism, 0501 psychology and cognitive sciences, Neurology (clinical), 0305 other medical science, Psychology, 050104 developmental & child psychology

وصف الملف: application/pdf

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::9dbf78886647c23b852059c3adbf9841
https://doi.org/10.1108/aia-09-2018-0034

المؤلفون: Edel Clough, Sharon D. Dell, Kelli M. Sullivan, Michael Sawras, Corine Driessens, Manjith Narayanan, Amanda Harris, Woolf T. Walker, Lucy Dixon, Margaret W. Leigh, Lynne Schofield, Beatrice Redfern, Rebecca Knibb, Evie Robson, Myra Tipping, Nhu Tran, Jane S. Lucas, Laura Behan, Fiona Copeland, Siohan Carr

مصطلحات موضوعية: Chronic condition, Pediatrics, medicine.medical_specialty, Coronavirus disease 2019 (COVID-19), business.industry, Hearing loss, Caregiver burden, medicine.disease, Quality of life (healthcare), Pandemic, Medicine, medicine.symptom, Airway, business, Primary ciliary dyskinesia

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::ef366aa210f77bf2b5c4f239485521c7
https://doi.org/10.31124/advance.14071421

المؤلفون: Amanda Friend, Hannah Wilkins, Victoria Bright, Rajinder Kang, Fiona Copeland, Woolf T. Walker, Laura Bayton, Christopher O'Callaghan, Alison Truscott, Kenia Priti, Bruna Rubbo, Eduardo Moya, Charlotte Kewell, Manjith Narayanan, Amanda Harris, Corine Driessens, Clare Hogg, Siobhán B. Carr, Philip Chetcuti, Katy Waller, Gemma Marsh, Samantha Packham, Jane S. Lucas

المصدر: Paediatric respiratory epidemiology.

مصطلحات موضوعية: Service (business), medicine.medical_specialty, Social work, business.industry, Family medicine, Family support, Research studies, medicine, Young adult, business

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_________::7e45bf8a5414a4c5c93e290582e2e84e
https://doi.org/10.1183/13993003.congress-2019.pa302

المؤلفون: Judy Bradley, Rohan Anand, Brenda O'Neill, Kathryn Ferguson, Mike Clarke, Mary Carroll, James Chalmers, Anthony de-Soyza, Jamie Duckers, Adam T Hill, Michael R Loebinger, Fiona Copeland, Evie Gardner, Christina Campbell, Ashley Agus, Alistair Maguire, Roisin Boyle, Fionnuala McKinney, Naomi Dickson, Danny McAuley, Stuart Elborn

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::18164822138bf20aeb0da4f5c7777684
https://doi.org/10.21203/rs.2.248/v1

المؤلفون: Jane S. Lucas, Amelia Shoemark, Bruna Rubbo, Claire Hogg, Claire L. Jackson, Fiona Copeland, Joseph Hayes, Isabel Reading, Christopher O'Callaghan, Emily Frost, Robert A. Hirst, James Thompson

المصدر: Paediatric respiratory epidemiology.

مصطلحات موضوعية: medicine.medical_specialty, Patient benefit, High speed video, business.industry, Internal medicine, otorhinolaryngologic diseases, medicine, Diagnostic test, Video microscopy, medicine.disease, business, Multidisciplinary team, Primary ciliary dyskinesia

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_________::5aa7f542f76066f0df6117267a6e6ae9
https://doi.org/10.1183/13993003.congress-2018.pa5022

المؤلفون: Tom Kenny, Fiona Copeland, Christopher O'Callaghan, Eduardo Moya, Woolf T. Walker, Philip Chetcuti, Jane S. Lucas, Claire Hogg

المصدر: Paediatric Respiratory Reviews. 15:142-145

مصطلحات موضوعية: Pulmonary and Respiratory Medicine, Infertility, Pediatrics, medicine.medical_specialty, Bronchiectasis, Kartagener Syndrome, business.industry, Disease, Models, Theoretical, medicine.disease, United Kingdom, Situs inversus, Pediatrics, Perinatology and Child Health, Health care, otorhinolaryngologic diseases, Humans, Medicine, Observational study, Child, business, Primary ciliary dyskinesia, Specialist care

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::fd4bf206126370728f87894910aa676f
https://doi.org/10.1016/j.prrv.2013.04.007

المؤلفون: Bernhard Rindlisbacher, Sarah Masefield, Fiona Copeland, Bruna Rubbo, Audrey Dunn Galvin, Laura Behan, Michele Manion, Beatrice Redfern, Jane S. Lucas

المصدر: The European Respiratory Journal

مصطلحات موضوعية: Male, Pediatrics, Delayed Diagnosis, Primary Ciliary Dyskinesia, International Cooperation, Disease, Evidence-based clinical practice, 0302 clinical medicine, Health care, Diagnosis, Prevalence, 030212 general & internal medicine, Child, Language, Primary ciliary dyskinesia, Evidence-Based Medicine, Middle Aged, PCD, Europe, Treatment Outcome, Child, Preschool, Practice Guidelines as Topic, Female, European Respiratory Society (ERS) Task Force, Adult, Pulmonary and Respiratory Medicine, ERS Task Force guidelines, medicine.medical_specialty, Adolescent, Referral, MEDLINE, Young Adult, 03 medical and health sciences, Quality of life (healthcare), medicine, otorhinolaryngologic diseases, Humans, Healthcare Disparities, Aged, Kartagener Syndrome, business.industry, Infant, Original Articles, Evidence-based medicine, medicine.disease, 030228 respiratory system, Family medicine, Quality of Life, business, Rare disease

وصف الملف: text; application/pdf

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::481d167500856b2acce94c32a502e56d
https://eprints.soton.ac.uk/399378/

المؤلفون: Bernhard Rindlisbacher, Michele Manion, Fiona Copeland, Jane S. Lucas, Audrey Dunn Galvin, Beatrice Redfern, Sarah Masefield, Laura Behan

المصدر: 7.6 Paediatric Respiratory Epidemiology.

مصطلحات موضوعية: Pediatrics, medicine.medical_specialty, Referral, business.industry, Guideline, Disease, medicine.disease, Situs inversus, medicine.anatomical_structure, Health care, otorhinolaryngologic diseases, Medicine, Patient survey, business, Situs solitus, Primary ciliary dyskinesia

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_________::0c9b042fa68113a3367a2b0b439a620e
https://doi.org/10.1183/13993003.congress-2015.pa4520

المؤلفون: Neil Botting, Jane S. Lucas, Audrey DunnGalvin, Fiona Copeland

المصدر: Cilia
Cilia, Vol 1, Iss Suppl 1, p P6 (2012)

مصطلحات موضوعية: Health related quality of life, medicine.medical_specialty, Adult patients, lcsh:Cytology, medicine.medical_treatment, Cell Biology, Biology, medicine.disease, Bioinformatics, behavioral disciplines and activities, Support group, Likert scale, Lung disease, Family medicine, Poster Presentation, otorhinolaryngologic diseases, medicine, lcsh:QH573-671, Primary ciliary dyskinesia

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::ed194f0e81b2fe9856dd6ff7dbe5a6cd
https://doi.org/10.1186/2046-2530-1-s1-p6

المؤلفون: Nicola Collins, Rahul Chodhari, Hannah M. Mitchison, Pippa Hall, Fiona Copeland, Christopher O'Callaghan, Jane S. Lucas, Jonny Harcourt, Andrew Bush, Claire Hogg, Gill Phillips, Mohamed Hariri

المصدر: Archives of disease in childhood. 92(12)

مصطلحات موضوعية: Adult, Pathology, medicine.medical_specialty, Adolescent, Review, Opportunistic Infections, Cystic fibrosis, Biliary atresia, medicine, otorhinolaryngologic diseases, Humans, Cilia, Child, Primary ciliary dyskinesia, Bronchiectasis, Lung, business.industry, Kartagener Syndrome, Cilium, Infant, Newborn, Infant, medicine.disease, Respiration Disorders, Situs inversus, medicine.anatomical_structure, Child, Preschool, Pediatrics, Perinatology and Child Health, business

وصف الملف: text

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::3016427915ddcfacded751c2d87afa17
https://pubmed.ncbi.nlm.nih.gov/17634184