المؤلفون: Nanetti, Lorenzo, Kearney, Mary, Boesch, Sylvia, Stovickova, Lucie, Ortigoza-Escobar, Juan Darío, Macaya, Alfons, Gomez-Andres, David, Roze, Emmanuel, Molnar, Maria Judit, Wolf, Nicole I., Darling, Alejandra, Vasco, Gessica, Bertini, Enrico, Indelicato, Elisabetta, Neubauer, David, Haack, Tobias B., Sagi, Judit C., Danti, Federica R., Sival, Deborah, Zanni, Ginevra, Kolk, Anneli, Boespflug-Tanguy, Odile, Schols, Ludger, van de Warrenburg, Bart, Vidailhet, Marie, Willemsen, Michèl A., Buizer, Annemieke I., Orzes, Enrico, Ripp, Sophie, Reinhard, Carola, Moroni, Isabella, Mariotti, Caterina

المصدر: ERN-RND Working Group for Management of Transition , Nanetti , L , Kearney , M , Boesch , S , Stovickova , L , Ortigoza-Escobar , J D , Macaya , A , Gomez-Andres , D , Roze , E , Molnar , M J , Wolf , N I , Darling , A , Vasco , G , Bertini , E , Indelicato , E , Neubauer , D , Haack , T B , Sagi , J C , Danti , F R , Sival , D , Zanni , G , Kolk , A , Boespflug-Tanguy ....

مصطلحات موضوعية: Child-to-adult transition, Clinical practice, European Reference Networks (ERNs), Rare neurological diseases, Transition care, Young healthcare management

وصف الملف: application/pdf

الاتاحة: https://hdl.handle.net/11370/b08ea651-c310-4fb6-866a-ed295dcccfeb
https://research.rug.nl/en/publications/b08ea651-c310-4fb6-866a-ed295dcccfeb
https://doi.org/10.1007/s10072-023-07101-3
https://pure.rug.nl/ws/files/1125970219/s10072-023-07101-3.pdf
http://www.scopus.com/inward/record.url?scp=85174415792&partnerID=8YFLogxK

المؤلفون: Ralitsa Raycheva, Kostadin Kostadinov, Elena Mitova, Nataliya Bogoeva, Georgi Iskrov, Georgi Stefanov, Rumen Stefanov

المصدر: Frontiers in Public Health, Vol 11 (2023)

مصطلحات موضوعية: rare disease registry, European Reference Networks (ERNs), electronic health records, issues, limitations, machine learning, Public aspects of medicine, RA1-1270

وصف الملف: electronic resource

Relation: https://www.frontiersin.org/articles/10.3389/fpubh.2023.1214766/full; https://doaj.org/toc/2296-2565

URL الوصول: https://doaj.org/article/98c77b905f46488e879f1ab8ef51ab77

المؤلفون: Ralitsa Raycheva, Kostadin Kostadinov, Elena Mitova, Nataliya Bogoeva, Georgi Iskrov, Georgi Stefanov, Rumen Stefanov

مصطلحات موضوعية: Mental Health Nursing, Midwifery, Nursing not elsewhere classified, Aboriginal and Torres Strait Islander Health, Aged Health Care, Care for Disabled, Community Child Health, Environmental and Occupational Health and Safety, Epidemiology, Family Care, Health and Community Services, Health Care Administration, Health Counselling, Health Information Systems (incl. Surveillance), Health Promotion, Preventive Medicine, Primary Health Care, Public Health and Health Services not elsewhere classified, Nanotoxicology, Health and Safety, Medicine, Nursing and Health Curriculum and Pedagogy, rare disease registry, European Reference Networks (ERNs), electronic health records, issues, limitations, machine learning, artificial intelligence

Relation: https://figshare.com/articles/dataset/Data_Sheet_1_Challenges_in_mapping_European_rare_disease_databases_relevant_for_ML-based_screening_technologies_in_terms_of_organizational_FAIR_and_legal_principles_scoping_review_pdf/24144798

الاتاحة: https://doi.org/10.3389/fpubh.2023.1214766.s001
https://figshare.com/articles/dataset/Data_Sheet_1_Challenges_in_mapping_European_rare_disease_databases_relevant_for_ML-based_screening_technologies_in_terms_of_organizational_FAIR_and_legal_principles_scoping_review_pdf/24144798