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1Academic Journal
المؤلفون: Van Coillie, Samya, Prévot, Johan, Sánchez-Ramón, Silvia, Lowe, David M., Borg, Michael, Autran, Brigitte, Segundo, Gesmar, Pecoraro, Antonio, Garcelon, Nicolas, Boersma, Cornelis, Silva, Susana L., Drabwell, Jose, Quinti, Isabella, Meyts, Isabelle, Ali, Adli, Burns, Siobhan O., van Hagen, Martin, Pergent, Martine, Mahlaoui, Nizar
المصدر: Van Coillie , S , Prévot , J , Sánchez-Ramón , S , Lowe , D M , Borg , M , Autran , B , Segundo , G , Pecoraro , A , Garcelon , N , Boersma , C , Silva , S L , Drabwell , J , Quinti , I , Meyts , I , Ali , A , Burns , S O , van Hagen , M , Pergent , M & Mahlaoui , N 2024 , ' Charting a course for global progress in PIDs by 2030 — proceedings from the IPOPI global ....
مصطلحات موضوعية: antimicrobial resistance (AMR), artificial intelligence (AI), immunoglobulin replacement therapy (IGRT), pandemic preparedness, patient-reported outcome measures (PROMs), primary immunodeficiencies (PID), rare diseases (RD), targeted therapies
وصف الملف: application/pdf
الاتاحة: https://hdl.handle.net/11370/237458d5-f94f-43d0-a409-c5041d10b220
https://research.rug.nl/en/publications/237458d5-f94f-43d0-a409-c5041d10b220
https://doi.org/10.3389/fimmu.2024.1430678
https://pure.rug.nl/ws/files/1125854724/fimmu-15-1430678.pdf
http://www.scopus.com/inward/record.url?scp=85198048337&partnerID=8YFLogxK -
2Academic Journal
المؤلفون: Tadros, Susan, Prévot, Johan, Meyts, Isabelle, Sánchez-Ramón, Silvia, Erwa, Nahla H., Fischer, Alain, Lefevre, Guillaume, Hotchko, Matthew, Jaworski, Peter M., Leavis, Helen, Boersma, Cornelis, Drabwell, Jose, Van Hagen, P. Martin, Van Coillie, Samya, Pergent, Martine, Burns, Siobhan O., Mahlaoui, Nizar
المساهمون: Université de Lille, Inserm, CHU Lille, Royal Free London NHS Foundation Trust, Catholic University of Leuven = Katholieke Universiteit Leuven KU Leuven, University Hospitals Leuven Leuven, Instituto de Investigación Sanitaria del Hospital Clínico San Carlos Madrid, Spain IdISSC, University of Khartoum, Centre de Référence Déficits Immunitaires Héréditaires CEREDIH, Collège de France CdF (institution), Hôpital Necker - Enfants Malades AP-HP, Imagine - Institut des maladies génétiques (IHU) Imagine - U1163, Centre Hospitalier Régional Universitaire CHU Lille CHRU Lille, Institut de Recherche Translationnelle sur l'Inflammation (INFINITE) - U1286, Georgetown University Washington GU, University Medical Center Utrecht, University of Groningen Groningen, Open University of the Netherlands Heerlen, Erasmus University Medical Center Rotterdam Erasmus MC
مصطلحات موضوعية: primary immunodeficiencies/inborn errors of immunity, immunoglobulin replacement therapy/plasma derived medicinal products, hematopoietic stem cell transplantation, gene therapy, newborn screening, next generation sequencing, quality of life, targeted therapies/personalized medicine
وصف الملف: application/octet-stream; application/rdf+xml; charset=utf-8; application/pdf
Relation: Frontiers in Immunology; Front Immunol; http://hdl.handle.net/20.500.12210/100542
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3Academic Journal
المؤلفون: Tadros, Susan, Prévot, Johan, Meyts, Isabelle, Sánchez-Ramón, Silvia, Erwa, Nahla H., Fischer, Alain, Lefevre, Guillaume, Hotchko, Matthew, Jaworski, Peter M., Leavis, Helen, Boersma, Cornelis, Drabwell, Jose, van Hagen, Martin, Van Coillie, Samya, Pergent, Martine, Burns, Siobhan O., Mahlaoui, Nizar
المساهمون: MS Reumatologie/Immunologie/Infectie, Infection & Immunity
مصطلحات موضوعية: gene therapy, hematopoietic stem cell transplantation, immunoglobulin replacement therapy/plasma derived medicinal products, newborn screening, next generation sequencing, primary immunodeficiencies/inborn errors of immunity, quality of life, targeted therapies/personalized medicine, Immunology and Allergy, Immunology, Journal Article, Research Support, Non-U.S. Gov't
وصف الملف: application/pdf
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4Academic Journal
المؤلفون: Tadros, Susan, Prévot, Johan, Meyts, Isabelle, Sánchez-Ramón, Silvia, Erwa, Nahla H., Fischer, Alain, Lefevre, Guillaume, Hotchko, Matthew, Jaworski, Peter M., Leavis, Helen, Boersma, Cornelis, Drabwell, Jose, van Hagen, Martin, Van Coillie, Samya, Pergent, Martine, Burns, Siobhan O., Mahlaoui, Nizar
المصدر: Tadros , S , Prévot , J , Meyts , I , Sánchez-Ramón , S , Erwa , N H , Fischer , A , Lefevre , G , Hotchko , M , Jaworski , P M , Leavis , H , Boersma , C , Drabwell , J , van Hagen , M , Van Coillie , S , Pergent , M , Burns , S O & Mahlaoui , N 2023 , ' The PID Odyssey 2030 : outlooks, unmet needs, hurdles, and opportunities — proceedings from the IPOPI global multi-stakeholders’ summit (June 2022) ' , Frontiers ....
مصطلحات موضوعية: /dk/atira/pure/sustainabledevelopmentgoals/good_health_and_well_being, name=SDG 3 - Good Health and Well-being
وصف الملف: application/pdf
الاتاحة: https://pure.eur.nl/en/publications/46bdda9a-60e6-4729-8c60-541119472c2b
https://doi.org/10.3389/fimmu.2023.1245718
https://pure.eur.nl/ws/files/99624264/The_PID_Odyssey_2030_outlooks_unmet_needs_hurdles_and_opportunities_proceedings_from_the_IPOPI_global_multi-stakeholder.pdf
http://www.scopus.com/inward/record.url?scp=85169329593&partnerID=8YFLogxK -
5Academic Journal
المؤلفون: Meyts, Isabelle, Bousfiha, Aziz, Duff, Carla, Singh, Surjit, Lau, Yu Lung, Condino-Neto, Antonio, Bezrodnik, Liliana, Ali, Adli, Adeli, Mehdi, Drabwell, Jose
المصدر: Frontiers in Immunology ; volume 11 ; ISSN 1664-3224
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6Academic Journal
المؤلفون: Jones, Georgina, Williams, Kate, Edmondson-Jones, Mark, Prevot, Johan, Drabwell, Jose, Solis, Leire, Shrimpton, Anna, Mahlaoui, Nizar
المصدر: Patient Preference and Adherence ; volume Volume 14, page 1567-1584 ; ISSN 1177-889X
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7Electronic Resource
المؤلفون: MS Reumatologie/Immunologie/Infectie, Infection & Immunity, Tadros, Susan, Prévot, Johan, Meyts, Isabelle, Sánchez-Ramón, Silvia, Erwa, Nahla H., Fischer, Alain, Lefevre, Guillaume, Hotchko, Matthew, Jaworski, Peter M., Leavis, Helen, Boersma, Cornelis, Drabwell, Jose, van Hagen, Martin, Van Coillie, Samya, Pergent, Martine, Burns, Siobhan O., Mahlaoui, Nizar
URL:
https://doi.org/10.3389/fimmu.2023.1245718 http://hdl.handle.net/1874/450550 http://www.scopus.com/inward/record.url?scp=85169329593&partnerID=8YFLogxK
1664-3224
Frontiers in Immunology
14
1245718 -
8Academic Journal
المؤلفون: Espanol,Teresa, Prevot,Johan, Drabwell,Jose, Sondhi,Seema, Olding,Laurence
مصطلحات موضوعية: Patient Preference and Adherence
وصف الملف: text/html
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9Academic Journal
المؤلفون: Espanol, Teresa, Olding, Laurence, Prevot, Johan, Drabwell, Jose, Sondhi, Seema
المصدر: Patient Preference and Adherence ; page 621 ; ISSN 1177-889X
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10Electronic Resource
المؤلفون: Jones,Georgina, Williams,Kate, Edmondson-Jones,Mark, Prevot,Johan, Drabwell,Jose, Solis,Leire, Shrimpton,Anna, Mahlaoui,Nizar
مصطلحات الفهرس: Patient Preference and Adherence, Original Research, info:eu-repo/semantics/article
URL:
https://www.dovepress.com/the-development-of-a-new-questionnaire-to-measure-the-burden-of-immuno-peer-reviewed-fulltext-article-PPA
info:eu-repo/semantics/altIdentifier/doi/10.2147/PPA.S234669 -
11Academic Journal
المؤلفون: Suratannon, Narissara, van Wijck, Rogier T. A., Broer, Linda, Xue, Laixi, van Meurs, Joyce B. J., Barendregt, Barbara H., van der Burg, Mirjam, Dik, Willem A., Chatchatee, Pantipa, Langerak, Anton W., Swagemakers, Sigrid M. A., Goos, Jacqueline A. C., Mathijssen, Irene M. J., Dalm, Virgil A. S. H., Suphapeetiporn, Kanya, Heezen, Kim C., Drabwell, Jose, Uitterlinden, André G., van der Spek, Peter J., van Hagen, P. Martin
المصدر: Frontiers in Immunology; 4/15/2020, p1-8, 8p
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12Academic Journal
المؤلفون: Drabwell, Jose1 jose@ipopi.org
المصدر: Pharmaceuticals Policy & Law. 2009, Vol. 11 Issue 4, p261-263. 3p.
مصطلحات موضوعية: *MEDICAL care, *HEALTH services administration, *INTERNATIONAL cooperation, IMMUNODEFICIENCY, NUTRITIONAL immunology, MEDICAL care societies, THERAPEUTICS
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13Academic Journal
المؤلفون: Drabwell, Jose1
المصدر: Pharmaceuticals Policy & Law. 2008, Vol. 10 Issue 1, p19-21. 3p.
مصطلحات موضوعية: THERAPEUTIC use of immunoglobulins, NARRATIVES