المؤلفون: Dorfer, Sonja, Ablinger, Michael, Wimmer, Monika, Hummel, Julia I., Ibrahimpašić, Selma, Diem, Anja, Laimer, Martin, Gruner, Stefanie, Hofbauer, Josefina Piñón, Guttmann‐Gruber, Christina, Koller, Ulrich, Gratz, Iris K., Bauer, Johann W., Zauner, Roland, Wally, Verena

المساهمون: DEBRA Austria

المصدر: The Journal of Dermatology ; ISSN 0385-2407 1346-8138

الاتاحة: https://doi.org/10.1111/1346-8138.17621
https://onlinelibrary.wiley.com/doi/pdf/10.1111/1346-8138.17621

المؤلفون: Salamon, Gudrun, Field‐Werners, Ursula, Strobl, Sophie, Hübl, Vinzenz, Diem, Anja

المصدر: Health Expectations ; volume 27, issue 3 ; ISSN 1369-6513 1369-7625

الاتاحة: http://dx.doi.org/10.1111/hex.14088
https://onlinelibrary.wiley.com/doi/pdf/10.1111/hex.14088

المؤلفون: Salamon, Gudrun, Field-Werners, Ursula, Strobl, Sophie, Hübl, Vinzenz, Diem, Anja

المساهمون: DEBRA Austria

المصدر: Orphanet Journal of Rare Diseases ; volume 19, issue 1 ; ISSN 1750-1172

الاتاحة: http://dx.doi.org/10.1186/s13023-024-03163-4
https://link.springer.com/content/pdf/10.1186/s13023-024-03163-4.pdf
https://link.springer.com/article/10.1186/s13023-024-03163-4/fulltext.html

المؤلفون: Salamon, Gudrun, Strobl, Sophie, Field-Werners, Ursula, Welponer, Tobias, Murrell, Dédée F, Diem, Anja

المساهمون: DEBRA Austria

المصدر: Journal of Health Psychology ; ISSN 1359-1053 1461-7277

الاتاحة: https://doi.org/10.1177/13591053231221369
https://journals.sagepub.com/doi/pdf/10.1177/13591053231221369
https://journals.sagepub.com/doi/full-xml/10.1177/13591053231221369

المؤلفون: Popenhagen, Mark P, Genovese, Paola, Blishen, Mo, Rajapakse, Dilini, Diem, Anja, King, Alex, Chan, Jennifer, Pellicer Arasa, Eduard, Baird, Simone, Ferreira da Rocha, Anna Carolina, Stitt, Gideon, Badger, Kellie, Zmazek, Vlasta, Ambreen, Faiza, Mackenzie, Caroline

مصطلحات موضوعية: Palliative care, Dermatology, Genetics, Clinical sciences, Science & Technology, Life Sciences & Biomedicine, Genetics & Heredity, Medicine, Research & Experimental, Research & Experimental Medicine

Relation: Orphanet Journal of Rare Diseases; Popenhagen, MP; Genovese, P; Blishen, M; Rajapakse, D; Diem, A; King, A; Chan, J; Pellicer Arasa, E; Baird, S; Ferreira da Rocha, AC; Stitt, G; Badger, K; Zmazek, V; Ambreen, F; Mackenzie, C; Price, H; Roberts, T; Moore, Z; Patton, D; Murphy, P; Mayre-Chilton, K, Consensus-based guidelines for the provision of palliative and end-of-life care for people living with epidermolysis bullosa, Orphanet Journal of Rare Diseases, 2023, 18, pp. 268; http://hdl.handle.net/10072/426915

الاتاحة: http://hdl.handle.net/10072/426915
https://doi.org/10.1186/s13023-023-02870-8

المؤلفون: Salamon, Gudrun, Strobl, Sophie, Field-Werners, Ursula, Diem, Anja, Schwieger-Briel, Agnes, Pope, Elena

المصدر: British Journal of Dermatology; Jul2024, Vol. 191 Issue 1, p75-81, 7p

مصطلحات موضوعية: PATIENT reported outcome measures, PSYCHOMETRICS, MEDICAL research, PATIENTS' attitudes, EPIDERMOLYSIS bullosa, TREATMENT effectiveness

المؤلفون: Krämer, Susanne, Hillebrecht, A. L., Bekes, K., Bucher, Kurt, Clark, Victoria, Haririan, Hady, Jakowski, Joachim, Joseph, Clara, Meißner, Nicola, Monteiro, Joana, Porter, Stephen R., Schilke, Reinhard, Véliz, Sebastian, Verhaeghe, Veroniek, Vinereanu, Arina, Bolling, Marieke C., Diem, Anja, Mellerio, Jemima E., Bodemer, Christine, Has, Cristina

المصدر: Journal of the European Academy of Dermatology and Venereologyeology. - (2024) , ISSN: 1468-3083

Relation: https://freidok.uni-freiburg.de/data/261285

الاتاحة: https://freidok.uni-freiburg.de/data/261285
https://doi.org/10.1111/jdv.20498

المؤلفون: Guttmann-Gruber, Christina, Piñón Hofbauer, Josefina, Tockner, Birgit, Reichl, Victoria, Klausegger, Alfred, Hofbauer, Peter, Wolkersdorfer, Martin, Tham, Khek-Chian, Lim, Seong Soo, Common, John E., Diem, Anja, Ude-Schoder, Katharina, Hitzl, Wolfgang, Lagler, Florian, Reichelt, Julia, Bauer, Johann W., Lang, Roland, Laimer, Martin

المساهمون: Debra Austria

المصدر: Orphanet Journal of Rare Diseases ; volume 16, issue 1 ; ISSN 1750-1172

الاتاحة: http://dx.doi.org/10.1186/s13023-021-02062-2
https://link.springer.com/content/pdf/10.1186/s13023-021-02062-2.pdf
https://link.springer.com/article/10.1186/s13023-021-02062-2/fulltext.html

المؤلفون: Fuentes-Bustos, María Ignacia, Guttmann-Gruber, Christina, Tockner, Birgit, Diem, Anja, Klausegger, Alfred, Cofre-Araneda, Glenda, Figuera, Olga, Hidalgo, Yessia, Morandé, Pilar, Palisson, Francis, Rebolledo-Jaramillo, Boris Eduardo, Yubero, María Joao, C

مصطلحات موضوعية: Multidisciplinary Sciences

Relation: https://doi.org/10.1038/s41598-020-71794-1; 1181093; WOS:000573753200004; https://hdl.handle.net/10533/73460

الاتاحة: https://hdl.handle.net/10533/73460
https://doi.org/10.1038/s41598-020-71794-1

المؤلفون: Has, Cristina, Bauer, Johann W., Bodemer, C., Bolling, Maria C., Bruckner-Tuderman, L., Diem, Anja, Fine, Jo-David, Heagerty, Adrian H., Hovnanian, Alain, Marinkovich, M. Peter, Martinez, Anna E., McGrath, John A., Moss, Celia, Murrell, Dedee F., Palisson, Francis, Schwieger-Briel, Agnes, Sprecher, Eli, Tamai, Katsuto, Uitto, Jouni, Woodley, David T., Zambruno, Giovanna, Mellerio, Jemima E.

المصدر: British journal of dermatology. - 183, 4 (2020) , 614-627, ISSN: 1365-2133

مصطلحات موضوعية: Epidermolysis bullosa hereditaria

وصف الملف: pdf

Relation: https://freidok.uni-freiburg.de/data/169455

الاتاحة: https://freidok.uni-freiburg.de/data/169455
https://nbn-resolving.org/urn:nbn:de:bsz:25-freidok-1694552
https://doi.org/10.1111/bjd.18921
https://freidok.uni-freiburg.de/dnb/download/169455

المؤلفون: Fuentes, Ignacia, Guttmann-Gruber, Christina, Tockner, Birgit, Diem, Anja, Klausegger, Alfred, Cofré-Araneda, Glenda, Figuera, Olga, Hidalgo, Yessia, Morandé, Pilar, Palisson, Francis, Rebolledo-Jaramillo, Boris, Yubero, María Joao, Cho, Raymond J, Rishel, Heather I, Marinkovich, M Peter, Teng, Joyce M C, Webster, Timothy G., Prisco, Marco, Eraso, Luis H, Piñon Hofbauer, Josefina, South, Andrew P.

المصدر: Department of Dermatology and Cutaneous Biology Faculty Papers

مصطلحات موضوعية: Epidermolysis Bullosa, Acute wounds, Impaired wound healing, Dermatology, Medicine and Health Sciences

وصف الملف: application/pdf

Relation: https://jdc.jefferson.edu/dcbfp/136; https://jdc.jefferson.edu/cgi/viewcontent.cgi?article=1147&context=dcbfp

الاتاحة: https://jdc.jefferson.edu/dcbfp/136
https://jdc.jefferson.edu/cgi/viewcontent.cgi?article=1147&context=dcbfp

المؤلفون: Prodinger, Christine, Diem, Anja, Ude-Schoder, Katherina, Piñón-Hofbauer, Josefina, Kitzmueller, Sophie, Bauer, Johann W., Laimer, Martin

المصدر: Orphanet Journal of Rare Diseases ; volume 15, issue 1 ; ISSN 1750-1172

الاتاحة: http://dx.doi.org/10.1186/s13023-020-01443-3
https://link.springer.com/content/pdf/10.1186/s13023-020-01443-3.pdf
https://link.springer.com/article/10.1186/s13023-020-01443-3/fulltext.html

المؤلفون: Bauer, Johann, Koller, Josef, Murauer, Eva, DE ROSA, LAURA, ENZO, ELENA, Carulli, Sonia, Bondanza, Sergio, RECCHIA, Alessandra, Muss, Wolfgang, Diem, Anja, Mayr, Elisabeth, Schlager, Pamina, Gratz, Iris, PELLEGRINI, Graziella, DE LUCA, Michele

المساهمون: Bauer, Johann, Koller, Josef, Murauer, Eva, DE ROSA, Laura, Enzo, Elena, Carulli, Sonia, Bondanza, Sergio, Recchia, Alessandra, Muss, Wolfgang, Diem, Anja, Mayr, Elisabeth, Schlager, Pamina, Gratz, Iri, Pellegrini, Graziella, DE LUCA, Michele

Relation: info:eu-repo/semantics/altIdentifier/pmid/27840234; info:eu-repo/semantics/altIdentifier/wos/WOS:000394933600041; volume:137; issue:3; firstpage:778; lastpage:781; numberofpages:4; journal:JOURNAL OF INVESTIGATIVE DERMATOLOGY; http://hdl.handle.net/11380/1128108; info:eu-repo/semantics/altIdentifier/scopus/2-s2.0-85013896166

الاتاحة: http://hdl.handle.net/11380/1128108
https://doi.org/10.1016/j.jid.2016.10.038

المؤلفون: Guttmann-Gruber, Christina, Tockner, Birgit, Scharler, Cornelia, Hüttner, Clemens, Common, John E., Tay, Angeline S. L., Denil, Simon L. I. J., Klausegger, Alfred, Trost, Andrea, Breitenbach, Jenny, Schnitzhofer, Peter, Hofbauer, Peter, Wolkersdorfer, Martin, Diem, Anja, Laimer, Martin, Strunk, Dirk, Bauer, Johann W., Reichelt, Julia, Lang, Roland, Piñón Hofbauer, Josefina

المصدر: Scientific Reports ; volume 8, issue 1 ; ISSN 2045-2322

الاتاحة: http://dx.doi.org/10.1038/s41598-018-31823-6
https://www.nature.com/articles/s41598-018-31823-6.pdf
https://www.nature.com/articles/s41598-018-31823-6

المؤلفون: Ablinger, Michael, Felder, Thomas K., Wimmer, Monika, Zauner, Roland, Hofbauer, Peter, Lettner, Thomas, Wolkersdorfer, Martin, Lagler, Florian B., Diem, Anja, Bauer, Johann W., Wally, Verena

المساهمون: Austrian Science Fund, Paracelsus Medical University Salzburg

المصدر: Orphanet Journal of Rare Diseases ; volume 13, issue 1 ; ISSN 1750-1172

الاتاحة: http://dx.doi.org/10.1186/s13023-018-0940-1
http://link.springer.com/content/pdf/10.1186/s13023-018-0940-1.pdf
http://link.springer.com/article/10.1186/s13023-018-0940-1/fulltext.html

المؤلفون: Wally, Verena, Hovnanian, Alain, Ly, Juliette, Buckova, Hana, Brunner, Victoria, Lettner, Thomas, Ablinger, Michael, Felder, Thomas K., Hofbauer, Peter, Wolkersdorfer, Martin, Lagler, Florian B., Hitzl, Wolfgang, Laimer, Martin, Kitzmüller, Sophie, Diem, Anja, Bauer, Johann W.

المساهمون: Austrian Science Fund (FWF)

المصدر: Journal of the American Academy of Dermatology ; volume 78, issue 5, page 892-901.e7 ; ISSN 0190-9622

الاتاحة: http://dx.doi.org/10.1016/j.jaad.2018.01.019
https://api.elsevier.com/content/article/PII:S0190962218301300?httpAccept=text/xml
https://api.elsevier.com/content/article/PII:S0190962218301300?httpAccept=text/plain

المؤلفون: Thiem, Alexander, Has, Cristina, Diem, Anja, Klausegger, Alfred, Hamm, Henning, Emmert, Steffen

المصدر: Der Hautarzt. - 73, 5 (2022) , 384-390, ISSN: 1432-1173

Relation: https://freidok.uni-freiburg.de/data/221849

الاتاحة: https://freidok.uni-freiburg.de/data/221849
https://doi.org/10.1007/s00105-021-04883-5

المؤلفون: Schlander, Michael, Holm, Søren, Nord, Erik, Richardson, Jeff, Garattini, Silvio, Kolominsky-Rabas, Peter, Marshall, Deborah, Persson, Ulf, Postma, Maarten, Simoens, Steven, de Solà Morales, Oriol, Tolley, Keith, Toumi, Mondher, Telser, Harry, Bonham, James R., Hintner, Helmut, Diem, Anja, Laimer, Martin, Hébert, Réjean, Dasgupta, Nabarun, Pierce, Carrie E., Jordan, Melissa, Bori, Barbara, Fors, Mohanad, Prazakova, Emilie, Day, Simon, Croce Jr., Thomas J., Fransson, Jonas, Wood, Philip, Lauridsen, Anne-Grethe, Higgs, Joanne, Stojmirova Aleksovska, Vesna, Olsen, Christina, Head, Ritchie, Asero, Antonio, Papa, Vincenzo, van Kan, Christa, Favennec, Loic, Venturella, Silvana, Salvador, Michela, Krol, Alan, Nielsen, Stephanie J., Holm, Birthe B., Lewi, Daniel, Durão, Patricia, Band, Heather, West, Andrea, Hammann, Marinda J. A., Effing-Boele, Marije C., Dekker, Hanka K., Hunter, Amy, Simpson, Amy, Liu, Gumei, Needleman, Katherine, Lewis, Debra, Rao, Gayatri, Whitaker, Martin J., Castro, Raquel

مصطلحات موضوعية: 610 Medical sciences Medicine

Time: 610

وصف الملف: application/pdf

Relation: https://archiv.ub.uni-heidelberg.de/volltextserverhttps://archiv.ub.uni-heidelberg.de/volltextserver/22078/1/13023_2016_Article_515.pdf; urn:nbn:de:bsz:16-heidok-220787; Schlander, Michael; Holm, Søren; Nord, Erik; Richardson, Jeff; Garattini, Silvio; Kolominsky-Rabas, Peter; Marshall, Deborah; Persson, Ulf; Postma, Maarten; Simoens, Steven; de Solà Morales, Oriol; Tolley, Keith; Toumi, Mondher; Telser, Harry; Bonham, James R.; Hintner, Helmut; Diem, Anja; Laimer, Martin; Hébert, Réjean; Dasgupta, Nabarun; Pierce, Carrie E.; Jordan, Melissa; Bori, Barbara; Fors, Mohanad; Prazakova, Emilie; Day, Simon; Croce Jr., Thomas J.; Fransson, Jonas; Wood, Philip; Lauridsen, Anne-Grethe; Higgs, Joanne; Stojmirova Aleksovska, Vesna; Olsen, Christina; Head, Ritchie; Asero, Antonio; Papa, Vincenzo; van Kan, Christa; Favennec, Loic; Venturella, Silvana; Salvador, Michela; Krol, Alan; Nielsen, Stephanie J.; Holm, Birthe B.; Lewi, Daniel; Durão, Patricia; Band, Heather; West, Andrea; Hammann, Marinda J. A.; Effing-Boele, Marije C.; Dekker, Hanka K.; Hunter, Amy; Simpson, Amy; Liu, Gumei; Needleman, Katherine; Lewis, Debra; Rao, Gayatri; Whitaker, Martin J.; Castro, Raquel (2016) 8th European Conference on Rare Diseases & Orphan Products (ECRD 2016). Orphanet Journal of Rare Diseases, 11, S1 (143). pp. 1-9. ISSN 1750-1172

الاتاحة: https://archiv.ub.uni-heidelberg.de/volltextserver/22078/
https://archiv.ub.uni-heidelberg.de/volltextserverhttps://archiv.ub.uni-heidelberg.de/volltextserver/22078/1/13023_2016_Article_515.pdf
https://nbn-resolving.org/urn:nbn:de:bsz:16-heidok-220787

المؤلفون: Schlander, Michael, Holm, Søren, Nord, Erik, Richardson, Jeff, Garattini, Silvio, Kolominsky-Rabas, Peter, Marshall, Deborah, Persson, Ulf, Postma, Maarten, Simoens, Steven, de Solà Morales, Oriol, Tolley, Keith, Toumi, Mondher, Telser, Harry, Bonham, James R, Hintner, Helmut, Diem, Anja, Laimer, Martin, Hébert, Réjean, Dasgupta, Nabarun, Pierce, Carrie E., Jordan, Melissa, Bori, Barbara, Fors, Mohanad, Prazakova, Emilie, Day, Simon, Croce, Thomas J., Fransson, Jonas, Wood, Philip, Lauridsen, Anne-Grethe, Higgs, Joanne, Aleksovska, Vesna Stojmirova, Olsen, Christina, Head, Ritchie, Asero, Antonio, Papa, Vincenzo, van Kan, Christa, Favennec, Loic, Venturella, Silvana, Salvador, Michela, Krol, Alan, Nielsen, Stephanie J., Holm, Birthe B., Lewi, Daniel, Durão, Patricia, Band, Heather, West, Andrea, Hammann, Marinda J. A., Effing-Boele, Marije C., Dekker, Hanka K.

المصدر: Orphanet Journal of Rare Diseases ; volume 11, issue S1 ; ISSN 1750-1172

الاتاحة: http://dx.doi.org/10.1186/s13023-016-0515-y
http://link.springer.com/content/pdf/10.1186/s13023-016-0515-y.pdf
http://link.springer.com/article/10.1186/s13023-016-0515-y/fulltext.html

المؤلفون: Laimer, Martin, Pohla-Gubo, Gabriela, Diem, Anja, Prodinger, Christine, Bauer, Johann W, Hintner, Helmut

المصدر: Wiener klinische Wochenschrift ; volume 129, issue 1-2, page 1-7 ; ISSN 0043-5325 1613-7671

الاتاحة: http://dx.doi.org/10.1007/s00508-016-1133-3
http://link.springer.com/content/pdf/10.1007/s00508-016-1133-3.pdf
http://link.springer.com/article/10.1007/s00508-016-1133-3/fulltext.html