المصدر: A Prospective Natural History Study of Patients With Syringomyelia
Agarwalla PK, Dunn IF, Scott RM, Smith ER. Tethered cord syndrome. Neurosurg Clin N Am. 2007 Jul;18(3):531-47. doi: 10.1016/j.nec.2007.04.001.
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المصدر: Genetic Analysis of the Chiari I Malformation

المصدر: Neurosurgical Outcome Network Per La Predizione Dell'outcome in Neurochirurgia
Terrapon APR, Zattra CM, Voglis S, Velz J, Vasella F, Akeret K, Held U, Schiavolin S, Bozinov O, Ferroli P, Broggi M, Sarnthein J, Regli L, Neidert MC. Adverse Events in Neurosurgery: The Novel Therapy-Disability-Neurology Grade. Neurosurgery. 2021 Jul 15;89(2):236-245. doi: 10.1093/neuros/nyab121.
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Reponen E, Tuominen H, Korja M. Evidence for the use of preoperative risk assessment scores in elective cranial neurosurgery: a systematic review of the literature. Anesth Analg. 2014 Aug;119(2):420-432. doi: 10.1213/ANE.0000000000000234.

المصدر: Study of Fetoscopic Repair of Myelomeningocele in Fetuses With Isolated Spina Bifida
Bowman RM, McLone DG, Grant JA, Tomita T, Ito JA. Spina bifida outcome: a 25-year prospective. Pediatr Neurosurg. 2001 Mar;34(3):114-20. doi: 10.1159/000056005.
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Adzick NS, Thom EA, Spong CY, Brock JW 3rd, Burrows PK, Johnson MP, Howell LJ, Farrell JA, Dabrowiak ME, Sutton LN, Gupta N, Tulipan NB, D'Alton ME, Farmer DL; MOMS Investigators. A randomized trial of prenatal versus postnatal repair of myelomeningocele. N Engl J Med. 2011 Mar 17;364(11):993-1004. doi: 10.1056/NEJMoa1014379. Epub 2011 Feb 9.
Belfort MA, Whitehead WE, Shamshirsaz AA, Ruano R, Cass DL, Olutoye OO. Fetoscopic Repair of Meningomyelocele. Obstet Gynecol. 2015 Oct;126(4):881-884. doi: 10.1097/AOG.0000000000000835.

المساهمون: Jayapalli Rajiv Bapuraj, MD, Principal Investigator

المصدر: Dynamic Magnetic Resonance Imaging (MRI) and Quantitative MR Cerebral Spinal Fluid (CSF) Flow Studies in Craniovertebral Junction Anomalies

المؤلفون: Great Ormond Street Hospital for Children NHS Foundation Trust, University College London Hospitals

المساهمون: Amparo Saenz, PhD student and pediatric neurosurgeon

المصدر: Chiari II Brain Malformation: The Role of Cerebrospinal Fluid in Neurodevelopmental Defects Associated With Spina Bifida
Masse O, Kraft E, Ahmad E, Rollins CK, Velasco-Annis C, Yang E, Warfield SK, Shamshirsaz AA, Gholipour A, Feldman HA, Estroff J, Grant PE, Vasung L. Abnormal prenatal brain development in Chiari II malformation. Front Neuroanat. 2023 Apr 17;17:1116948. doi: 10.3389/fnana.2023.1116948. eCollection 2023.
Schneider J, Mohr N, Aliatakis N, Seidel U, John R, Promnitz G, Spors B, Kaindl AM. Brain malformations and cognitive performance in spina bifida. Dev Med Child Neurol. 2021 Mar;63(3):295-302. doi: 10.1111/dmcn.14717. Epub 2020 Nov 2.
Paslaru FG, Panaitescu AM, Iancu G, Veduta A, Gica N, Paslaru AC, Gheorghiu A, Peltecu G, Gorgan RM. Myelomeningocele Surgery over the 10 Years Following the MOMS Trial: A Systematic Review of Outcomes in Prenatal versus Postnatal Surgical Repair. Medicina (Kaunas). 2021 Jul 12;57(7):707. doi: 10.3390/medicina57070707.
Treble-Barna A, Juranek J, Stuebing KK, Cirino PT, Dennis M, Fletcher JM. Prospective and episodic memory in relation to hippocampal volume in adults with spina bifida myelomeningocele. Neuropsychology. 2015 Jan;29(1):92-101. doi: 10.1037/neu0000111. Epub 2014 Jul 28.
Treble A, Juranek J, Stuebing KK, Dennis M, Fletcher JM. Functional significance of atypical cortical organization in spina bifida myelomeningocele: relations of cortical thickness and gyrification with IQ and fine motor dexterity. Cereb Cortex. 2013 Oct;23(10):2357-69. doi: 10.1093/cercor/bhs226. Epub 2012 Aug 8.
Taylor HB, Barnes MA, Landry SH, Swank P, Fletcher JM, Huang F. Motor contingency learning and infants with Spina Bifida. J Int Neuropsychol Soc. 2013 Feb;19(2):206-15. doi: 10.1017/S1355617712001233. Epub 2013 Jan 8.
David AL. Improving motor function in fetal surgery for open spina bifida. BJOG. 2024 May;131(6):768. doi: 10.1111/1471-0528.17730. Epub 2023 Nov 30. No abstract available.
Vergote S, Van der Stock J, Kunpalin Y, Bredaki E, Maes H, Banh S, De Catte L, Devlieger R, Lewi L, Devroe S, Spencer R, David A, De Vloo P, Van Calenbergh F, Deprest JA. Patient empowerment improves follow-up data collection after fetal surgery for spina bifida: institutional audit. Ultrasound Obstet Gynecol. 2023 Oct;62(4):565-572. doi: 10.1002/uog.26230. Epub 2023 Aug 27.
Bueno D, Parvas M, Nabiuni M, Miyan J. Embryonic cerebrospinal fluid formation and regulation. Semin Cell Dev Biol. 2020 Jun;102:3-12. doi: 10.1016/j.semcdb.2019.09.006. Epub 2019 Oct 12.
Zappaterra MD, Lisgo SN, Lindsay S, Gygi SP, Walsh CA, Ballif BA. A comparative proteomic analysis of human and rat embryonic cerebrospinal fluid. J Proteome Res. 2007 Sep;6(9):3537-48. doi: 10.1021/pr070247w. Epub 2007 Aug 16.
Pal K, Sharma U, Gupta DK, Pratap A, Jagannathan NR. Metabolite profile of cerebrospinal fluid in patients with spina bifida: a proton magnetic resonance spectroscopy study. Spine (Phila Pa 1976). 2005 Feb 1;30(3):E68-72. doi: 10.1097/01.brs.0000152161.08313.04.
Shokohi R, Nabiuni M, Irian S, Miyan JA. In Vitro Effects of Wistar Rat Prenatal and Postnatal Cerebrospinal Fluid on Neural Differentiation and P roliferation of Mesenchymal Stromal Cells Derived from Bone Marrow. Cell J. 2018 Jan;19(4):537-544. doi: 10.22074/cellj.2018.4130. Epub 2017 Nov 4.
Alonso MI, Lamus F, Carnicero E, Moro JA, de la Mano A, Fernandez JMF, Desmond ME, Gato A. Embryonic Cerebrospinal Fluid Increases Neurogenic Activity in the Brain Ventricular-Subventricular Zone of Adult Mice. Front Neuroanat. 2017 Dec 19;11:124. doi: 10.3389/fnana.2017.00124. eCollection 2017.
Eid L, Lachance M, Hickson G, Rossignol E. Ex Utero Electroporation and Organotypic Slice Cultures of Embryonic Mouse Brains for Live-Imaging of Migrating GABAergic Interneurons. J Vis Exp. 2018 Apr 20;(134):57526. doi: 10.3791/57526.

المؤلفون: Patient-Centered Outcomes Research Institute, Johns Hopkins All Children's Hospital, Arkansas Children's Hospital Research Institute, Boston Children's Hospital, Children's Healthcare of Atlanta, Dartmouth-Hitchcock Medical Center, Children's Hospital Colorado, Birmingham Children's Hospital, Children's Hospital of New York-Presbyterian, Children's Hospital of Phoenix, Children's Hospital and Health System Foundation, Wisconsin, Children's National Research Institute, Children's Hospital of Philadelphia, Children's Hospital Medical Center, Cincinnati, Columbia University, Gillette Children's Specialty Healthcare, Levine Children's Hospital, Children's Hospital Los Angeles, Ann & Robert H Lurie Children's Hospital of Chicago, Mayo Clinic, Nicklaus Children's Hospital f/k/a Miami Children's Hospital, MUSC Children's Hospital, Oregon Health and Science University, Penn State University, University of Pittsburgh, Primary Children's Hospital, Seattle Children's Hospital, Stanford University, Baylor College of Medicine, The Children's Hospital at OU Medical Center, Nationwide Children's Hospital, University of California, University of Iowa, University of Michigan, The University of Texas Health Science Center, Houston, University of Minnesota, University of Vermont Children's Hospital, UVA Children's Hospital, University of Wisconsin, Madison, Vanderbilt University, Wake Forest University, Yale University

المصدر: Posterior Fossa Decompression With or Without Duraplasty for Chiari Type I Malformation With Syringomyelia
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Hida K, Iwasaki Y, Koyanagi I, Abe H. Pediatric syringomyelia with chiari malformation: its clinical characteristics and surgical outcomes. Surg Neurol. 1999 Apr;51(4):383-90; discussion 390-1. doi: 10.1016/s0090-3019(98)00088-3.
Mueller D, Oro' JJ. Prospective analysis of self-perceived quality of life before and after posterior fossa decompression in 112 patients with Chiari malformation with or without syringomyelia. Neurosurg Focus. 2005 Feb 15;18(2):ECP2. doi: 10.3171/foc.2005.18.2.11.
Tisell M, Wallskog J, Linde M. Long-term outcome after surgery for Chiari I malformation. Acta Neurol Scand. 2009 Nov;120(5):295-9. doi: 10.1111/j.1600-0404.2009.01183.x. Epub 2009 Jun 11.
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Vakharia VN, Guilfoyle MR, Laing RJ. Prospective study of outcome of foramen magnum decompressions in patients with syrinx and non-syrinx associated Chiari malformations. Br J Neurosurg. 2012 Feb;26(1):7-11. doi: 10.3109/02688697.2011.578771. Epub 2011 May 18.
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Navarro R, Olavarria G, Seshadri R, Gonzales-Portillo G, McLone DG, Tomita T. Surgical results of posterior fossa decompression for patients with Chiari I malformation. Childs Nerv Syst. 2004 May;20(5):349-56. doi: 10.1007/s00381-003-0883-1. Epub 2004 Mar 12.
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Yeh DD, Koch B, Crone KR. Intraoperative ultrasonography used to determine the extent of surgery necessary during posterior fossa decompression in children with Chiari malformation type I. J Neurosurg. 2006 Jul;105(1 Suppl):26-32. doi: 10.3171/ped.2006.105.1.26.
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المصدر: Analysis of Disturbances in Neurofluid Dynamics in Type I Chiari Malformations

المصدر: Multicenter, International, Prospective, Observational, Study Using Neuro-Patch® in Duraplasty in Neurosurgery (MiDura)

المؤلفون: Kramar Lyubov Vasilievna, Larina Tatyana Yurievna, Khlynina Yuliya Olegovna

المصدر: Паёми Сино, Vol 26, Iss 4, Pp 685-693 (2024)

مصطلحات موضوعية: children, meningococcal meningitis, arnold-chiari malformation, rare diseases, clinical case., Public aspects of medicine, RA1-1270

وصف الملف: electronic resource

Relation: https://doaj.org/toc/2074-0581; https://doaj.org/toc/2959-6327

URL الوصول: https://doaj.org/article/61519c2817b046f4a581873d2c33219c

المؤلفون: Mestres i Soler, Olga

Thesis Advisors: Poca Pastor, María Antonia, Force Sanmartín, Enriqueta, Tortosa i Moreno, Avelina, Escola Universitària d'Infermeria (Barcelona, Catalunya)

المصدر: TDX (Tesis Doctorals en Xarxa)

مصطلحات موضوعية: Malalties rares, Enfermedades raras, Rare diseases, Qualitat de vida, Calidad de vida, Quality of life, Ansietat, Ansiedad, Anxiety, Depressió psíquica, Depresión mental, Mental depression, Malformació d'Arnold-Chiari, Malformación de Chiari, Arnold–Chiari malformation, Ciències de la Salut

وصف الملف: application/pdf

URL الوصول: http://hdl.handle.net/10803/318809

المؤلفون: Ravindra, Vijay, Robinson, Lorraina, Jensen, Hailey, Kurudza, Elena, Joyce, Evan, Ludwick, Allison, Telford, Russell, Youssef, Osama, Ryan, Justin, Bollo, Robert, Iyer, Rajiv, Kestle, John, Cheshier, Samuel, Ikeda, Daniel, Mao, Qinwen, Brockmeyer, Douglas

المصدر: PLoS ONE. 19(1)

مصطلحات موضوعية: Child, Humans, Male, Female, Arnold-Chiari Malformation, Prospective Studies, Syringomyelia, Magnetic Resonance Imaging, Cranial Fossa, Posterior, Decompression, Surgical

وصف الملف: application/pdf

URL الوصول: https://escholarship.org/uc/item/3s15w83p
https://escholarship.org/content/qt3s15w83p/qt3s15w83p.pdf

المؤلفون: Julián Vicente Munar-Medina, David López-Valencia, Beatriz Elena Candela-Solano

المصدر: Iatreia, Vol 37, Iss 4, Pp 549-555 (2024)

مصطلحات موضوعية: arnold-chiari malformation, colombia, deglutition disorders, dysphagia, glossopharyngeal nerve diseases, Medicine, Medicine (General), R5-920

وصف الملف: electronic resource

Relation: https://revistas.udea.edu.co/index.php/iatreia/article/view/353399; https://doaj.org/toc/0121-0793; https://doaj.org/toc/2011-7965

URL الوصول: https://doaj.org/article/7de1d6bff248426ab15dc5c15a2aeaa9

المؤلفون: Urbizu Serrano, Aintzane

المساهمون: University/Department: Universitat de Barcelona. Departament de Genètica

Thesis Advisors: Macaya Ruiz, Alfons, Cormand Rifà, Bru

المصدر: TDX (Tesis Doctorals en Xarxa)

مصطلحات موضوعية: Genètica mèdica, Genética médica, Medical genetics, Morfometria, Morfometría, Morphometrics, Malformació d'Arnold-Chiari, Malformación de Chiari, Arnold–Chiari malformation, Neurologia pediàtrica, Neurología pediátrica, Pediatric neurology, Ciències Experimentals i Matemàtiques

وصف الملف: application/pdf

URL الوصول: http://hdl.handle.net/10803/145244

المصدر: Type of Surgical Intervention for Chiari Malformation-syringomyelia: a Multicenter Randomized Controlled Study
Hale AT, Adelson PD, Albert GW, Aldana PR, Alden TD, Anderson RCE, Bauer DF, Bonfield CM, Brockmeyer DL, Chern JJ, Couture DE, Daniels DJ, Durham SR, Ellenbogen RG, Eskandari R, George TM, Grant GA, Graupman PC, Greene S, Greenfield JP, Gross NL, Guillaume DJ, Heuer GG, Iantosca M, Iskandar BJ, Jackson EM, Johnston JM, Keating RF, Leonard JR, Maher CO, Mangano FT, McComb JG, Meehan T, Menezes AH, O'Neill B, Olavarria G, Park TS, Ragheb J, Selden NR, Shah MN, Smyth MD, Stone SSD, Strahle JM, Wait SD, Wellons JC, Whitehead WE, Shannon CN, Limbrick DD; Park-Reeves Syringomyelia Research Consortium Investigators. Factors associated with syrinx size in pediatric patients treated for Chiari malformation type I and syringomyelia: a study from the Park-Reeves Syringomyelia Research Consortium. J Neurosurg Pediatr. 2020 Mar 6;25(6):629-639. doi: 10.3171/2020.1.PEDS19493. Print 2020 Jun 1.
Chenghua Y, Min W, Wei L, Xinyu W, Fengzeng J. Comparison of foramen magnum decompression with and without duraplasty in the treatment of adult Chiari malformation Type I: a meta-analysis and systematic review. Turk Neurosurg. 2022 Jan 10. doi: 10.5137/1019-5149.JTN.35727-21.5. Online ahead of print.
Guan J, Yuan C, Zhang C, Ma L, Yao Q, Cheng L, Liu Z, Wang K, Duan W, Wang X, Wu H, Chen Z, Jian F. Intradural Pathology Causing Cerebrospinal Fluid Obstruction in Syringomyelia and Effectiveness of Foramen Magnum and Foramen of Magendie Dredging Treatment. World Neurosurg. 2020 Dec;144:e178-e188. doi: 10.1016/j.wneu.2020.08.068. Epub 2020 Aug 15.
Yuan C, Guan J, Du Y, Zhang C, Ma L, Yao Q, Cheng L, Liu Z, Wang K, Duan W, Wang X, Wu H, Chen Z, Jian F. Repeat Craniocervical Decompression in Patients with a Persistent or Worsening Syrinx: A Preliminary Report and Early Results. World Neurosurg. 2020 Jun;138:e95-e105. doi: 10.1016/j.wneu.2020.02.015. Epub 2020 Feb 12.
Heiss JD, Jarvis K, Smith RK, Eskioglu E, Gierthmuehlen M, Patronas NJ, Butman JA, Argersinger DP, Lonser RR, Oldfield EH. Origin of Syrinx Fluid in Syringomyelia: A Physiological Study. Neurosurgery. 2019 Feb 1;84(2):457-468. doi: 10.1093/neuros/nyy072.
Koueik J, Sandoval-Garcia C, Kestle JRW, Rocque BG, Frim DM, Grant GA, Keating RF, Muh CR, Oakes WJ, Pollack IF, Selden NR, Tubbs RS, Tuite GF, Warf B, Rajamanickam V, Broman AT, Haughton V, Rebsamen S, George TM, Iskandar BJ. Outcomes in children undergoing posterior fossa decompression and duraplasty with and without tonsillar reduction for Chiari malformation type I and syringomyelia: a pilot prospective multicenter cohort study. J Neurosurg Pediatr. 2019 Oct 18;25(1):21-29. doi: 10.3171/2019.8.PEDS19154. Print 2020 Jan 1.

المؤلفون: Institut National de la Santé Et de la Recherche Médicale, France

المصدر: Development of a Patient-reported Outcome Measure for Chiari Malformation and Syringomyelia

المساهمون: merve tugba ozfidan donmez, medical doctor

المصدر: The New Developed FIVE Score and Its Comparison With GCS and FOUR Scores Regarding Length of Hospital Stay Morbidity and Mortality in Neuro-intensive Care Patients. an Observational Prospective Study

المساهمون: Ahmed Hamdy Hussein, demonistrator

المصدر: Modalities of Surgical Treatment of Chiari Malformation Disease : Clinical Study and Outcomes
Shamji MF, Ventureyra EC, Baronia B, Nzau M, Vassilyadi M. Classification of symptomatic Chiari I malformation to guide surgical strategy. Can J Neurol Sci. 2010 Jul;37(4):482-7. doi: 10.1017/s0317167100010507.
2. Meadows J, Guarnieri M, Miller K, Haroun R, Kraut M, Carson BS. Type I Chiari malformation: a review of the literature. Neurosurg Q. 2001;11: 220-229.
Hankinson T, Tubbs RS, Wellons JC. Duraplasty or not? An evidence-based review of the pediatric Chiari I malformation. Childs Nerv Syst. 2011 Jan;27(1):35-40. doi: 10.1007/s00381-010-1295-7. Epub 2010 Oct 2.
Dones J, De Jesus O, Colen CB, Toledo MM, Delgado M. Clinical outcomes in patients with Chiari I malformation: a review of 27 cases. Surg Neurol. 2003 Aug;60(2):142-7; discussion 147-8. doi: 10.1016/s0090-3019(03)00131-9.

المساهمون: Calandrelli Rosalinda, Principal Investigator

المصدر: Quantitative Neuroradiological Assessment of the Airways, Cranial Base Foramina, and Posterior Cranial Fossae in Children With Chiari Malformation: Relationship With Sleep Disorders

المؤلفون: Utah State University, The University of Akron

المصدر: Examining Different Components of Online Acceptance and Commitment Therapy for Chronic Pain in a Sample of People With Chiari Malformation
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